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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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11 posts in this topic

i'm fairly new to all of this - diagnosed with celiac on 12/21/05, gluten free since 1/1/06

and i am all for being 100% gluten-free with no cheating

this guy i work with that has celiac also, told me that your intestines heal in a matter of weeks. any gluten will damage them again. and they will heal again in a couple of weeks. but there is some amount of 'scarring' damage that is cumulative (meaning the scarring on top of previous scarring gets worse and worse with each incident'

i don't remember reading that anywhere else.

anyone know if this is true? or false? or theoretically makes sense, but not proven?

thanks

rg

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To begin with it takes more then a few weeks to heal--some people take up to 5 yrs, average I think is around 2 yrs. I dont know if anyone truly knows how much damage is done by celiacs disease and a celiac must stay gluten free. Any gluten is too much. If you eat gluten on purpose, you are only adding to the damage already done. Sometimes we do get glutened by accident, we learn from those mistakes. When we go gluten free, we heal, but we cant really know what damage was already done, we can only prevent further damage from occuring. Keep at it! Deb

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All evidence suggests that the vast majority of people - who stay completely gluten free - do eventually completely heal. That is *not* all of them. The chemical reaction that is celiac disease (reacting to the gluten and destroying the intestines) can run for a week or two itself. Then there's time needed for repair of the damage caused during that reaction. So, theorectically, if you start with pristine intestines, have one gluten-ing episode, you may have gone through the reacting/damaging/healing cycle in four weeks, if you're a fast reactor and a fast healer.

But the 'starting with pristine intestines' thing is a HUGE assumption. It doesn't take into account daily contamination risks. It doesn't take into account any large scale damage that your body is trying to recover from if you ate gluten for a number of years earlier in life (where it could take many months or many years to completely heal). And it doesn't take into account the leftover chemical indicators of the inflammatory process in your intestines. These secondary chemicals can stick around for months, and from my reading, I would guess these are what play a large role in some of the more serious long term complications of celiac disease. (There is thought that other autoimmune diseases can be triggered by extended inflammatory cycles in the body.)

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All comments here address intestinal damage done by gluten. Why is it that the neurological damage that is real threat to people with Celiac is rarely ever mentioned. Maybe you can, over time, heal a damaged gut but how do you heal a damaged brain? Is gluten worth the risk? Claire

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I'm guessing your friend was diagnosed as a small child and has never known (or remembered) being really sick with long-term damage. If glutened, he or anyone will feel like cr&p for a few weeks and then feel better. This has nothing to do with actual intestinal damage. He is simply uninformed.

Merika

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If you ate a little rat poison, you would get sick, then recover eventually.

If you ate it again, you would get sick, and recover again.....

Over the long haul, it would be safe to assume that you are slowing poisoning yourself to death.

Same goes for gluten. It is toxic to us. Sure, it won't kill us immediately, but the more exposure to it, the closer you are to it killing you.

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anyone know if this is true? or false?

Umm....I would say false.

YUP...thats my final answer. :D

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If anyone knows, or it maybe different for everyone. But say that you are gluten-free for I dunno a couple of months and then you are glutened. You heal and then you are gluten-free for a year, then you get glutened again. The second time that you are glutened do you become more sensitive to it and it does more damage then the first time, or is the damage always the same amount and never gets more severe?

Hope that I worded it right (its kinda late :P )

Amanda NY

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The longer your body is free from gluten, the more sensitive it is to it when it is exposed to it.

For all those people who are suffering right now with celiac symptoms but don't know it is celiac, they are still basically functioning on a daily basis while consuming gluten, struggling until finally they get the proper diagnosis. Once they get their answer and go gluten free, it is like a breath of fresh air for the body. Six months later, expose the body to some gluten, and it is like a knock out punch in boxing.

I probably am not making any sense whatsoever since it is 2:30 in the morning and I am rocking back and forth in pain right now, but that's the best I can do under the circumstances!!!

Hugs.

Karen

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Awww I am really sorry that you were up that late......I was up until about 1:00 <_<

You are making sense, I have heard it before I jsut didnt know if it was true or anyone had heard of that.

It is greatly appericated, Hope that you feel better soon :)

Amanda NY

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The longer your body is free from gluten, the more sensitive it is to it when it is exposed to it.

For all those people who are suffering right now with celiac symptoms but don't know it is celiac, they are still basically functioning on a daily basis while consuming gluten, struggling until finally they get the proper diagnosis. Once they get their answer and go gluten free, it is like a breath of fresh air for the body. Six months later, expose the body to some gluten, and it is like a knock out punch in boxing.

I probably am not making any sense whatsoever since it is 2:30 in the morning and I am rocking back and forth in pain right now, but that's the best I can do under the circumstances!!!

Hugs.

Karen

I agree 100% Karen ~ Wow, you make great sense at 2:30 am!! Hope you are feeling better!!! :)

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