• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Pipes

Advice Please

Rate this topic

Recommended Posts

Hi all,

I've been real sick for several months going to doctor to doctor and being told it's depression causing my symptoms, fatigue, bloated, gas, fuzzy head, weight loss...Finally, I went to a gastro doc who believes it is celiac. Going for biopsy next week. My question has to do with work. For several months I was so sick I could barely function. Having no diagnosis I dragged myself to work. Now my managers are telling me that I am lazy and unproductive and maybe my feeling sick is in my head. I've worked in this company for twenty years and never had any complaints about my work, always compliments. Now these managers are threatening to get rid of me. Can't afford to lose my job. My question is...Is Celiac disease considered a disability? I really need to protect myself at work. Thank you so much for listening.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I dont know if it is......I have had problems with my insurance company paying for doctor vists and some of the random testing. I see a nutritionists and I have to pay out of pocket because my Insurance company does not believe that what I have is really a problem.

I know for a fact that my insurance company does not reconize what I have to be a real mediacal issue.

I wish you the best of luck and if you find anything out let us know, but I would call the your insurance company to see if they reconize it.

Good Luck and I hope that you feel better soon :)

Amanda NY

Share this post


Link to post
Share on other sites

Hi Pipes,

Welcome to the board! I hope you find all your answers here and any questions you might have, feel free to ask ANYTHING! There is no question too stupid to ask, we have all been there done that!

In regards to your question about disability, I am currently on it but I live in Canada and I am covered through my work (I am on long term disability right now). It is the combination of celiac disease and collagenous colitis that has me off since my collagenous colitis has not been able to be brought under control. I basically have severe fecal incontinance. I basically go 20 - 30 times a day and I have at the most 10 second to get to the bathroom once the urge hits..... I basically feel like I am a prisoner in my own home, it is very difficult to go out with this..... Also, it is very nocturnal, keeping me up most of the night.

Here is a link regarding disability that you might find interesting......

http://www.glutenfreeforum.com/index.php?showtopic=12923

Welcome aboard!

Karen

Share this post


Link to post
Share on other sites
Hi all,

I've been real sick for several months going to doctor to doctor and being told it's depression causing my symptoms, fatigue, bloated, gas, fuzzy head, weight loss...Finally, I went to a gastro doc who believes it is celiac. Going for biopsy next week. My question has to do with work. For several months I was so sick I could barely function. Having no diagnosis I dragged myself to work. Now my managers are telling me that I am lazy and unproductive and maybe my feeling sick is in my head. I've worked in this company for twenty years and never had any complaints about my work, always compliments. Now these managers are threatening to get rid of me. Can't afford to lose my job. My question is...Is Celiac disease considered a disability? I really need to protect myself at work. Thank you so much for listening.

How big is your company? If it has more than 50 people, you should talk to the HR about FMLA and see if there is a way around your illness until you get a proper dx and get healthy again. Unfortunately, Celiac isn't considered and disability because it doesn't affect (supposedly) your ability to do your job. Good luck and keep us posted!! No matter what your biopsy results are, I would highly recommend the gluten-free diet the minute you're done with the procedure. Didn't the GI do a blood panel? Anyhow, I do sincerely hope you are better soon.

Annette

Share this post


Link to post
Share on other sites
Guest katzmeow21
Hi Pipes,

Welcome to the board! I hope you find all your answers here and any questions you might have, feel free to ask ANYTHING! There is no question too stupid to ask, we have all been there done that!

In regards to your question about disability, I am currently on it but I live in Canada and I am covered through my work (I am on long term disability right now). It is the combination of celiac disease and collagenous colitis that has me off since my collagenous colitis has not been able to be brought under control. I basically have severe fecal incontinance. I basically go 20 - 30 times a day and I have at the most 10 second to get to the bathroom once the urge hits..... I basically feel like I am a prisoner in my own home, it is very difficult to go out with this..... Also, it is very nocturnal, keeping me up most of the night.

Here is a link regarding disability that you might find interesting......

http://www.glutenfreeforum.com/index.php?showtopic=12923

Welcome aboard!

This is off the subject but I am curious as to whether you have ever tried the Diet from the Book " Breaking the Vicious cycle" by Elaine Gottschall . She was Canadian, had a daughter with severe digestive issues and studied up on this and all digestive issues and created something called the SBD diet. Maybe it could help you.

regards MJ

Karen

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,915
    • Total Posts
      943,485
  • Member Statistics

    • Total Members
      67,085
    • Most Online
      3,093

    Newest Member
    Pamelas
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks so much for the tips! I told my mom them and she thought they were pretty clever. And I never realized how lucky I was to have medical help. I’ll be much more careful with personal information. I was going to delete the post in case it had too much info but i can’t unless you delete your reply. It’s ok though. Thank you!
    • I didn't mean my world fell apart because of celiac but because of something else. Finding out about celiac disease actually gave me hope.
    • @PosterboyOne thing is though I never get heartburn. And this only happens when I've consumed something for consecutive days, like I had the bananas and too many nuts. But if PH has something to do with it then maybe when I'm eating more vegetables and broth that's why I usually feel much better, it's more alkaline. On a ph urine test whenever I'm feeling like this I ALWAYS have a reading towards the acidic part. When I feel better it always goes towards the alkaline level and usually in the ideal level. Part of it started when I was under high stress in the first place. A few years ago. I couldn't eat as much/well because I was very worried about things. The realization about celiac came later but basically my world fell apart and I've fought but never felt really okay again. Then at the worst before I knew about celiac disease I was vomitting for days. Now I can eat many more foods but it's still very touchy if I don't strictly eat vegetables, broth, lots of water and small amounts of fats and protein. I'm scared to take anything artificial. I've only recently been able to take very small amounts of probiotics. Is there no way to repair your stomach acid without taking pills? Would going on a strict alkaline diet help?  I read everything you wrote except the link which I don't know if I can concentrate right now. Thank you.
    • I have seen this a few times....run a gluten free bakery....one of my previous customers has the disease, but he gawks at my prices and then goes eats from other stores and consumes gluten products.....I tried offering freebies left over items to get him to switch....been watching him degrade over the past 3 years. He now walks...odd like Frankenstein with locked knees and a wobble and seems be much less active not appearing at this job few days a month now....I do worry about these people. Celiac effects everyone different some violently, others do not see the damage or have grown so use to the issues that they consider them normal. It is a sad thing to see. I have seen improvement in my own body following a strict diet and regime and see major consequences when I trip ......I can not imagine anyone cheating but my reactions are bad with many side effects. Celiac being a AI disease can cause other secondary complications I am all to aware of if  you cheat, mess up.
    • I don't know, it's probably best described as a lot of bile, sometimes yellow, sometimes green (sorry) and a lot of mucus (sorry_) and when I eventually throw it up  (if it gets to that point) it's burning in my throat, so I equate it with acid. Also because of the term "antacid" I think of it as a lot of acid but I guess it's a lot of bile, mucus and I thought the extra stomach acid produced dealing with whatever food I ate. I've done the wrong thing though because now I'm in the pain I was dreading, with swollen eyes and everything and really bad depression now and hopelessness. I keep feeling like it's all futile and too late. That however hard I try I can't figure everything out in time to be well.
  • Upcoming Events