• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Seattle Area Anyone?
0

16 posts in this topic

Just wondering if there is anyone from the seattle area on here???

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Just wondering if there is anyone from the seattle area on here???

I am now! (moved up here three months ago)

0

Share this post


Link to post
Share on other sites
Just wondering if there is anyone from the seattle area on here???

I live in Seattle. I've also been looking for others in Seattle that frequent this forum. How long have you been gluten free? I'm on yahoo messenger as massage45678 if you want to chat.

0

Share this post


Link to post
Share on other sites

We live in Bellevue. My two daughters and I are all gluten-free. You're in Woodinville? Have you been to Made by Mona's yet? I just heard about this place -- it's just off of 522 and 202. Here is her website:

http://www.madebymona.com

Laura

0

Share this post


Link to post
Share on other sites

I live in lakewood, which is about 40 miles South of Seattle.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi,

I too am in Seattle, north end.

Do y'all go to any of the local support groups? Or is this the place?

bb22

0

Share this post


Link to post
Share on other sites

I'm in Federal Way. One of my children is gluten-free too. Just went to Kaili's kitchen in Edmonds today. It was a little, let's say, informal, but sure was nice to have fish and chips for the first time in 10 years.

Liz

0

Share this post


Link to post
Share on other sites




Hi All of You in the Seattle Area:

I LEAD A CELIAC SUPPORT GROUP WHICH MEETS IN BOTHELL (NORTH SEATTLE AREA) on every 2nd Tuesday of the Month. We meet next on Valentine's Day (February 14) 7-8:30pm. We will have free NAMASTE gluten-free goody samples and discuss 'Travelling with celiac disease'. If you're interested, email me, penguinea@hotmail.com and I'll send you directions to our meeting location. Our group is called 'SNOCOCELIACS' because we used to meet at "Kaili's Kitchen" in Snohomish County. When I assumed leadership last August, I chose a nonrestaurant location to eliminate restaurant noise distractions during our discussions.

If 2nd Tuesdays don't work for you or if you would prefer an Eastside (Bellevue/Redmond) location, another group which calls themselves "Seattle Celiacs" (yeah, that's confusing) meets on 3rd Tuesdays at the Group Health Eastside Hospital from 7-9pm. Contact earl.ley@comcast.net. He leads that group.

BURDEE

0

Share this post


Link to post
Share on other sites

I'm live in Bellevue...just moved here with my DF three weeks ago. I'm not officially gluten-free yet (tried an elimination diet, found some positive results, but waiting until I have Enterolab or similar to go off officially), but I would love to hang out and talk with other Seattle-area gluten-free folk. I have had eczema since I was an infant, IBS since 17 or so, and after I moved to Russia for six months, an explosion of systems, mostly related to pain/cramping/heaviness in legs and arms, breathlessness, bloatedness, and anxiety. Getting an EKG in Moscow....quite the adventure! I also have a family history of GI problems, anemia and infertility. I like the idea of drug-free treatments, so if the tests turn up even suggestive of gluten intolerance...I'm done with it.

I'd love to stop by these groups. Thanks for letting us know about them! :)

0

Share this post


Link to post
Share on other sites
I live in Seattle. I've also been looking for others in Seattle that frequent this forum. How long have you been gluten free? I'm on yahoo messenger as massage45678 if you want to chat.

I live in sammamish I was just diagnosed three weeks ago with celiac's. It really sucks so basiclly i have only been gluten free for three weeks.

0

Share this post


Link to post
Share on other sites




I used to live in Seattle. Most beautiful city ever--I still miss it :( . Go hear the Seattle Symphony--they are terrific!

0

Share this post


Link to post
Share on other sites

I was in Seattle last year for vacation. Loved it there.......I will vouch for Mona's mixes from Woodinville. Her pancake mix is the very best I have ever eaten.....I tried to contact Kailli's place but she just about hung up in m y ear so I can't say I was impressed with her. Maybe she was having a bad day ..........She was the first celiac that wasn't friendly and helpful ......

By the way Lisa from Mona's mixes contacted me immediately after I left her a message and she is very polite and friendly...

mamaw

0

Share this post


Link to post
Share on other sites

Hello Everyone!

I live in Kirkland, which is in the Greater Seattle area. I suspected I had celiac disease now for the last year or more, but I just received my results from the biopsy via the mail today, Yippee.

/wave

My first post here...

:unsure:

0

Share this post


Link to post
Share on other sites

I lived on Cap Hill for several years...now I live in Bellingham (1.5 hours north). I don't miss Seattle traffic, noise, or smell...but other than that. I miss Lake Union, and rowing, and restaurants that are open late, and "Whole Paycheck..." I mean, Whole Foods.

B-ham is great, though. Got the fresh air, enough dogs to satisfy anyone (even me), trails, mountains, skiing, Vancouver BC...yeah, I like Bellingham.

All you Seattle-area-ites should make a trip up here and we can all go on a Celiac hike in the Chuckanuts.

Welcome, anyway, though I see it was months ago you started this post.

Yeah, Seattle! (I read that Seattle was voted #2 good eatin by PETA - lost to San Francisco but beat out New York for place 2...never mind PETA makes me cranky, that's another story.)

0

Share this post


Link to post
Share on other sites

Can anyone confirm that Kaili's kitchen or Kaili's Bakery has moved to;

10003 Greenwood Ave N

Seattle, WA 98133

I haven't been there yet and would like to try it out!

-Thanks

0

Share this post


Link to post
Share on other sites
I lived on Cap Hill for several years...now I live in Bellingham (1.5 hours north). I don't miss Seattle traffic, noise, or smell...but other than that. I miss Lake Union, and rowing, and restaurants that are open late, and "Whole Paycheck..." I mean, Whole Foods.

B-ham is great, though. Got the fresh air, enough dogs to satisfy anyone (even me), trails, mountains, skiing, Vancouver BC...yeah, I like Bellingham.

All you Seattle-area-ites should make a trip up here and we can all go on a Celiac hike in the Chuckanuts.

Welcome, anyway, though I see it was months ago you started this post.

Yeah, Seattle! (I read that Seattle was voted #2 good eatin by PETA - lost to San Francisco but beat out New York for place 2...never mind PETA makes me cranky, that's another story.)

Bully4You,

I like Bellingham as well. I went to WWU for 2 + years up there. Very pretty area. Now I live about 30 minutes from Vancouver WA. Another pretty area but not as picturesque as Bellingham. I would love to try and get to NE Washington but jobs aren't very plentiful there and my hubby is the only income earner as I stay home with the kiddies.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,566
  • Member Statistics

    • Total Members
      64,999
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
  • Upcoming Events