• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Many Of You With celiac disease Have Sleep Apena?
0

34 posts in this topic

Recommended Posts

Guest SusieQ   
Guest SusieQ

Someone mentioned cost of the test and machine. My insurance didn't cover anything for me, and actually it has been good insurance otherwise.

They had a sleep study program here that I could have paid for, but it was more expensive then going to the philippines for the study. I am working on an island in the pacific. I stretched the trip out and made it a vacation so I could see the rice terraces too.

When I returned, I had to pay for the machine totally out of pocket. It wasn't cheap for any of it, but worth every penney in the long run.

I think it is awful that we have citizens that can't get proper medical care. Proper sleep affects everything.

I think when one reaches 62, can get help from Medicare on all of this. I hope that isn't too long for some to wait for help.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am pre-diagnosis (negative biopsy in the past), but I have a sister with celiac and another with gluten-sensitivity (negative biopsy - Enterolabs results point to gluten sensitivity), I've had baaaadddd belly probs since I was a little girl. I'm 51 and have severe osteoporosis - so bad that in the last two years, I've lost 3/4 of an inch in height. That said, I have bad sinus problems and I "forget to breathe."

I also have moderate sleep apnea, but I refuse to do CPAP. Claustrophobic...23yo son also has mild sleep apnea, and considering how my ex snored like a freight train, I wouldn't be shocked if he had it too.

Recent immunological tests show I have an IgG2 (subclass 2) deficiency and Hashimoto's thyroiditis (the beginning stages) - both parents and three of four sisters have it. IgG2 deficiency can result in a predisposition to upper and lower respiratory infections. That could possibly be contributing to breathing issues while you're sleeping, too. Might be worth checking out.

Share this post


Link to post
Share on other sites
heather201    0

Hi, I am new to this forum not sure where to begin. I too have sleep Apena but do not use a mask because I had the surgery. I think it did work a little. Before, the surgery I was waking up 36 times an hour. I would not recommend the surgery because, it was the most painful thing I have ever had done. Some doctors won't even do it anymore.

I have just recently been told I have celiac's disease not sure if the to have anything to do with each other but it sure seems a lot of people have sleeping problems have celiac's disease or a gluten intolerance. I have been gluten free since jan 4th and already feel a great deal better. I have drive again something I haven't had in almost 18 years. The depression has gone and I am losing weight down 8 pounds in just 11 days. I hope to lose 72 more pounds.

Share this post


Link to post
Share on other sites
Quasior    0

I don't know where the poll part is but... I was very recently diagnosed with sleep apnea. Whether directly caused by celiacs or because I am overweight so indirect cause I'm not sure... but I do have the other neuralogical probls a lot of celiacs have like mind fog, memory loss etc.

Share this post


Link to post
Share on other sites
Cranberry7    0

HI all,

I just joined this group this morning,and the first topic that I read was this one. I hope I'm not too late to discuss this.

I also have celiac, and sleep apnea, and I never knew that there is a possibility that they are "linked," other than by the fact that I gained lots of weight over the last 15 years--while I was being diagnosed with everything else under the sun--such as fibro, chronic fatigue, IBS, Epstein Barr, lactose intolerance, etc. etc. I did find out that I have Hashimoto's (that one was true).

I use a CPAP every night, and I'm totally gluten free (except for accidents), but I'm not losing any weight.

I'd welcome any discussion or tips.

Cranberry7

Share this post


Link to post
Share on other sites
LD89    0

For those suffering from sleep apnea, there is hope. I know the CPAP machine..well, sucks. But there is a special pillow designed to fit the mask or nasal pilows and help wild sleepers keep the cord in place so it doesn't get tangled.

try (Company Name Removed - They Spammed This Forum and are Banned) sleep apnea pillow by CPAP

Share this post


Link to post
Share on other sites
Guest sueward   
Guest sueward

Susie

Thanks so the note...No time now to really write a long note but here are the main points-- and let's keep in touch ok.

can us the PM also or my email which i think is posted

Been gluten-free for 6 months and fibro is almost gone ---was TOTALLY Glutened by dairy from my gluten-free lasganna I made the other nite. In the am couldn't go down the stairs for 1 hr. pain in every single joint, muscle, and man was I fibro fogged..and had a board meeting

gluten-free diet and proper mask is the answer for me...keep up the gluten-free diet and think it will work for you. I've been fighting my weight for years and this 35 # weight loss has been so easy when gluten-free.

let's keep in touch..

Judy in Philly :P

Share this post


Link to post
Share on other sites
bincongo    20

HI

I'm really having a problem with my nasel pillow mask. I put a post on earlier and didn't get many responces so thought i'd try this poll option. I've never done a poll before but here goes...

I'm sure since so many people are having sleep issues ( did a search and found so many posts on this)

I know i can call the company but wanted to hear from the 'real experts' as you are the users and thought so many might have some ideas.

One nite i woke up and the hose was wrapped around my neck. Found if i put a pillow under my knees it keeps me from moving around so much.

Last nite I was sent to the guest room again....UCK! Hate to keep my dh awake and he's been so supportive of the noise etc but this has been a problem for the past week.

Lost 35 #'s but thought that the pressure was only a problem if you gained weight.

I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am curious if Sleep Apnea is related to Celiac. I was diagnosed with Sleep Apnea 5 years ago and went through several masks and was never really happy with the results. I think partly because I am a women and my hair would make the masks slip off. Anyway 2 years ago my sleep doctor said I may do well with a mouth piece to wear at night. It brings your lower jaw forward. At that time my insurance would not pay for it but now it does. A dentist does all the work and it did cost me 300 dollars but it is wonderful. It is so much better than the C-Pap. I would recommend it to anyone who has Sleep Apnea and confirm that you may do well with just wearing something that pulls the jaw forward.

Share this post


Link to post
Share on other sites
bincongo    20

HI

I'm really having a problem with my nasel pillow mask. I put a post on earlier and didn't get many responces so thought i'd try this poll option. I've never done a poll before but here goes...

I'm sure since so many people are having sleep issues ( did a search and found so many posts on this)

I know i can call the company but wanted to hear from the 'real experts' as you are the users and thought so many might have some ideas.

One nite i woke up and the hose was wrapped around my neck. Found if i put a pillow under my knees it keeps me from moving around so much.

Last nite I was sent to the guest room again....UCK! Hate to keep my dh awake and he's been so supportive of the noise etc but this has been a problem for the past week.

Lost 35 #'s but thought that the pressure was only a problem if you gained weight.

I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am curious if Sleep Apnea is related to Celiac. I was diagnosed with Sleep Apnea 5 years ago and went through several masks and was never really happy with the results. I think partly because I am a women and my hair would make the masks slip off. Anyway 2 years ago my sleep doctor said I may do well with a mouth piece to wear at night. It brings your lower jaw forward. At that time my insurance would not pay for it but now it does. A dentist does all the work and it did cost me 300 dollars but it is wonderful. It is so much better than the C-Pap. I would recommend it to anyone who has Sleep Apnea and confirm that you may do well with just wearing something that pulls the jaw forward.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,905
    • Total Posts
      938,589
  • Member Statistics

    • Total Members
      65,818
    • Most Online
      3,093

    Newest Member
    Ccllcc46
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sometimes this happens, odd as it might be, you have to be eating gluten for the test first off daily. We call it a gluten challenge. Second some people due test negative on the blood test but can have celiac which is why we consider the endoscope and biopsy the golden standard. Also the gluten test back when you had it done previously was much less accurate then it is now days or at least it seems.  Do you have your numbers? We have had many cases where the doctor said it was negative...and the idiot could obviously not read the test cause when member posted their lab forms we can see it obviously positive. What ever the case we know what the issue is now and your on your way to getting better. Unlike most AI disease we know the cure and fix for celiac is a strict gluten free diet. So you can now begin you road to healing......and yeah I know that feeling of finding out the nerve issues....sadly nerve damage is VERY slow to heal unlike gut damage. But it has it's odd messed up benefits, I have most coordination back but it comes and goes in waves. Funny thing, I can grab stuff out of the oven or burn myself and the reaction to it delayed or non existent pain wise. So they do not bother me. I can cut my hand and go "oh look I should super glue that back together" without the pain, I just logically deal with it and do not have much panic or pain unless it is VERY deep.
    • This has been my life for the past three years! Oh man! I have had every muscle and nerve test known to man and...nothing. The doctors finally stopped trying and just referred me for cognitive behavior therapy.  I'm still confused about the negative blood test though?
    • Thank you @Megamaniac - I don't hear about chest tightness as a symptom of being glutened, so it's good to hear of someone else. My current symptoms aren't bad, just annoying. It's hard to tell if it's anxiety tightening my chest, or something else. But since it's only been happening since I ate that damn tortilla, my guess is it's gluten-related. My doctor made me have an echocardiogram and stress test to rule out cardiac issues before he would do the endoscopy (this was a couple of years ago). I learned that telling a doctor "my chest tightness gets worse when I walk up a hill" makes everything else grind to a hart until the heart gets checked out!
    • They use the same fryers for everything, so the fresh fried corn tortilla chips are gluten contaminated when they get dropped in the fryers.....
    • Yes, gluten ataxia is one form where it effects your brain and nervous system. I lose feelings in my hands and feet, have all kinds of muscle issues when even traces get introduced via CC or walking through the bakery section of the grocery store -_ - Last time I got glutened at a restaurant back in 2016 I got home and lost full motor control and collapsed on the floor and started vomiting unable to move my body.

      Your veggie issues made me think of a few other things. I can not eat those veggies in the produce section, they put some kind of veggie wax on them that makes me vomit no matter what, makes a waxy film in my stomach and they float.....I have to buy farmers market fresh, or canned no salt (del monte canned no salt spinach is my number 1 vitamin a and k staple in omelettes) Other members have issues with glyphosate and have to have organic produce that is not treated on the farm with these chemicals. Some members develop histamine response issues so foods are limited by histamine number and how they are prepared. Just a few things to consider. UPDATE I suggest supplementation to deal with those nerve issues. Celiac causes issues with b-vitamins, magnesium and a bunch of others. So supplementation works wonders. Here are my suggestions Liquid Health Stress & Energy + Liquid Health Neurological Support 1 tbsp each 3 times a day in a beverage like tea.] Either Doctors Best Magnesium or Natural Vitality Calm. If you have constipation issues calm is suggested. Note start off small dose like 1/4 tsp slowly raise the dose to the full amount. Some of use need more or less, depending on activity levels etc.
        Liquid Health Vitamin D drops might be needed, some of use have issues with this also.
        We suggest starting off eating whole foods only, dropping dairy and oats (some of us react to oats just like gluten). You can try introducing processed gluten free foods later.
  • Upcoming Events