Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Results Of Late Or No Treatment

Jala

By Jala
in Related Issues & Disorders

Recommended Posts

Jala Newbie
Jala
Posted

I am 38 and just found out I have a wheat intolerance. I have not been tested for Celiac. I can see the progression of my symptoms from aversion to food, to buckling over cramping, to facial and eye swelling, to year long rounds of diarrhea, to brain fog, to chronic fatigue and more. All my symptoms immediately alleviated when I stopped eating gluten. I no longer have to read the same piece of paper 5 times, and my severe IBS is gone. I feel like a million bucks.

I know this is a hereditary disease and my father died of multiple sclerosis by age 43. I have also read about the links between celiac and MS. Does anyone know what happens if you are not treated? In particular, has anyone actually experienced or seen a link to MS?

FYI, my 11 year old nephew has already been in the emergency room twice for severe abdominal cramping and no detectable cause.

Thanks, Jala.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

I don't know about the link to MS, but the untreated celiac dies an early, painful death.

Link to comment
Share on other sites
Guest jhmom
Guest jhmom
Posted

Hi Jala, first I would like to say, I am glad you are feeling better after going Wheat Free. I also sorry to hear of your loss, 43 is very young to pass away.

I found these and wanted to share them with you...

MS and Celiac Disease

Here is also another link Diseases that may be linked to Celiac

You take care of yourself and hang in there! God Bless you and your family.

Link to comment
Share on other sites
Karina Explorer
Karina
Posted

Interesting. Last year I had an MRI of the brain to check for MS as I had many MS symtoms. It was negative. I hadn't a clue as to what celiac disease was or what it involved and now I am diagnosed. I have had symtpoms a long time--probably all my life really. I hope I don't have something new to worry about now. I am gluten-free now, but only for two days so far. I know the more I learn about this disease the more motivated I am to do what I need to do. My advice is to find out for sure if you have it, or just go all the way gluten-free since you know you can't have wheat now anyway. Sorry I just checked and you are gluten-free--good :lol:

I am learning not to get carried away with all the possibilities of this disease because if I did I would be scared all the time...we have to live our lives and take care of our bodies. I am so sorry about your father, and that you have to deal with that in your family medical history, but worry can be damaging too......

Link to comment
Share on other sites
Jala Newbie
Jala
  • Author
Posted

Many thanks for the input. I worry about those who don't find out in time. Hope others can benefit from your info as well. Jala.

Link to comment
Share on other sites
LUAP Newbie
LUAP
Posted

THANK YOU STACIE FOR THE LINKS, IT ANSWERS SOME OF MY QUESTIONS ;)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,185
    • Most Online (within 30 mins)
      7,748
    Shelleyb
    Newest Member
    Shelleyb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Finding out I’m coeliac whilst pregnant

      By Beverage · Posted

      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Seeking Gluten-Free Advice for My Trip to South Korea!

      By Beverage · Posted

      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      Not Sure What to Think

      By trents · Posted

      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
×
×
  • Create New...