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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Foods, Shampoos, And Other No-no's
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18 posts in this topic

I've heard that there is gluten in a lot of places you wouldn't think of. I'll list what I know about, but if anyone knows another product that you wouldn't directly digest that contains gluten, please add it. From what I know gluten is in:

- Glue

- Clay

- Playdough

- The side of the stamp that you lick

- The part of the envelop that you lick to seal

Any other weird places?

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I am a potter and I have never heard of gluten in clay! Though, I am talking about clay clay and not the little packets of modeling clay and such from the store. I always where gloves, eye protection, and a breathing mask when mixing the chemicals for glazes, though.

Play-doh is not say, don't play with it!

It is not in any glue I have used. . .maybe in some fancy brands? I do a lot of crafts and glue related projects, too.

Maybe I am wrong here, where are you getting your information?

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Ok..from reading these posts I've found there are a lot of things to stay away from. Shampoos?? :o I'm new to all of this, so can someone point me to these lists you keep talking about that will ease the confusion as to what I can and can not eat or use or whatever. Something preferably that is as simply as don't eat bread, eggs, waffles, blah blah blah. And is it entirely necessary to also get rid of dairy? I'm just overwhelmed at what I'm finding I CAN'T eat..I don't have a single thing in my house that is gluten-free...and ugh..can't go to Taco Bell or Sonic. Okay..deep breaths. Anybody that can help with a list of do's and don'ts I would appreciate it.

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You say you dont have ne thing to eat in the house, eat some fruit, cheese, make some gluten free cookies, vegetables if you think about it there is alot of stuff out there to eat. Go to the health food store and stock up on some gluten free food. I dont think you need to get rid of dariy if your not allergic to it. So if your not allergic i think your safe. and yes you need to check very thing your make up, shampoos, tooth paste yes things that you would never think of. I have read some of the lists and i have also been told that they are not always right so i think you would be better off if you would just read lables ore even call the company before you eat/ use them. and once you know that they are safe write it down in a journal so you dont forget. hope i helped some and if you would like to talk my msn sn is pippigirl32@hotmail.com feel free to IM me whenever.

Joe Moe

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I'm sure you have plenty of things in your house that are gluten free.

Do you have any carrots? Bananas? Tomatoes? Apples? Oranges? Zucchini? Broccoli? Potatoes? Rice? Chicken? Eggs? Beef? Pork? Corn Tortillas (you do have to check the package, but lots of them are the basic corn, salt, lime recipe)?

Dairy is a call you have to make yourself. It's often useful to drop dairy for a bit at first, while you heal, but not all celiacs are casein sensitive or lactose intolerant. I can still have dairy (in fact, I used to be lactose intolerant, but I'm not any more - or don't appear to be). (I should add that if I have a gluten accident, I do lay off the dairy for a week or so until I feel better.)

I'm unaware of a single list that covers all the non-food items. It's a matter of reading lots of different things and getting it stored in your head. (I'm glad I'm a "simple" sort of person, who avoids most common health care products like makeup and specialty stuff. :-) )

Sorry I can't give you a specific list, but pretty much, if you come in contact with it, think about whether or not it has gluten (and that includes and non-gluten-free relatives who try to kiss you! ;-) )

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I never stopped eating dairy and never had a problem. Until you start getting this straighter in your head, stick with basic meat, veggies, fruit, eggs, cheese. That's what I did. And believe me, it becomes much easier to deal with. I don't even haul around lists any more.

richard

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The nutritionist I recently went to works for an adult Celiac doctor. She said that if I use clay at school (I'm only 13) I shoud scrub my hands really well before eating something that my hands touch. She also said that Elmers glue is known to contain high levels of gluten. I just believed this to be true since she probably knows more about it than I do (I'm only 9 weeks on diet). Perhaps it is only certain types of clay; the kind I use at school comes from a large block, so it might be okay. I don't know, but I'm being careful anyway, just in case.

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This concerned me considering my daughter plays with Rose Art Clay and uses Elmers Glue almost daily. I looked on Elmers website where they state that it is made from only synthetic materials and in one of the FAQ they state that it is lactose free. I emailed both Elmers and Rose Art and will post their replies as soon as I get them.

RaeAnn

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If you get all the gluten out of your diet (and off your skin!) and still have some stomach issues, that is when you would need to try cutting out dairy for at least two weeks. If it makes a difference then it would be up to you if you cut dairy for more long term or just for a short amount of time. Most people are not truely "allergic" to milk, and the intolerance goes away after a while of being gluten-free. This will vary for everyone, for some it is a few weeks, others require anywhere from a few months to a few years. Hopefully it is not an issue for you. I am sensitive to casein right now and I miss cheese. There are so many gluten-free foods that I would love to have, but just don't taste the same without cheese! My kids would love to have some gluten-free ice cream, too. Maybe someday soon.

God bless,

Mariann

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Thank you guys for answering. This really helps. I have one more question about reading labels (which is basically what I've been doing anyway to be safe). The obvious ones say wheat gluten or gluten. Is there anything else that I need to be looking for. Or if it doesn't say one of these two things does that mean I'm safe? I had found something yesterday (I can't remember what it was now) that I thought would have gluten in it, yet it didn't have either of those things in the list of ingredients..it also didn't say gluten-free. So...anything else I need to check in the ingredients before I chow down? And I know I've heard some people say things about processed foods..and that some cheeses are dusted with flour and can't be eaten...will these foods say gluten in the ingredients..and will the shampoos/soaps and such have gluten listed in the ingredients? Sheesh it's a lot to look for, lol. :unsure:

Cynthia

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Other suspect ingredients are: barley, rye, malt flavorings, food starch, modified food starch, confectioners sugar, and yes, shredded cheeses. The starches are suspect only until you call the manufacturer to determine what kind of starch was used, and not all confectioners sugar and shredded cheese use wheat flour. Reading labels is an absolute must! If the confusion gives you a headache, just stick with meat, fruits, and veggies. Give yourself time for all of the information to sink in! Cosmetic and healthcare products usually will say something along the lines of wheat proteins. While they are not a problem for some, they cause severe problems for others!

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Other suspect ingredients are: barley, rye, malt flavorings, food starch, modified food starch, confectioners sugar, and yes, shredded cheeses.

So, if it says these things on the ingredients label..I should stay away from that food, too right? Except the starch I can call the company and ask what type of starch. So..with the wheat thing in the shampoos and stuff..if in the ingredients the word wheat is used at all..even if it's not saying wheat gluten..does that mean I should stay away from that item as well?

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There is a list of safe and forbidden ingredients on this website that you can bring with you to the supermarket. I suggest you print them out. There are a lot more ingredients that you need to look for besides just "wheat." It gets a lot easier after the first couple weeks. Then you just know what you can and cannot have, and if you look through this website there are a lot of posts that will tell you which brands are safe for celiacs. Good luck. I was only diagnosed abou 3 months ago and it really isn't as bad as it seems (when you eat at home). Going out to eat is a different story, but at home there are TONS of foods you can have.

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http://www.celiac.com/st_main.html?p_catid...-21104477116.e7

click on this link and it will take you to the page with the lists you need. I agree that you should print them out. After a while you will know which ingredients you need to look out for. Anything that is questionable you should call the manufacturer.

It does get easier.

God bless,

Mariann

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I've heard that alot of cosmetics also contain gluten. Is this true? I've tried to contact different companies and haven't had any responses. I also understand that some lotions, soaps and bodywashes contain gluten too.

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The nutritionist I recently went to works for an adult Celiac doctor.  She said that if I use clay at school (I'm only 13) I shoud scrub my hands really well before eating something that my hands touch.  She also said that Elmers glue is known to contain high levels of gluten.  I just believed this to be true since she probably knows more about it than I do (I'm only 9 weeks on diet). 

Here are the responses I received from Elmers regarding glue and RoseArt regarding their clay:

Elmers:

Thank you for contacting us regarding Elmer's Glue products.

All products are gluten free except for our brand of finger paints, as they

contain a wheat ingredient and should be avoided.

Sincerely,

Robert Thompson

Mgr. of Consumer Response and Technical Services

RoseArt:

Both our modeling clay and Fun Dough contain wheat flour.

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Jessicasns17,

Yes, cosmetics, lotions, soaps and bodywashes can contain gluten, too!

You just have to read labels. Look for "Hydrolized Wheat Protien" and avoid it...

No matter what I used on my skin, I inadvertantly get some in my mouth at one time or another! :rolleyes: So, I steer clear of gluten in my bath products...

And, Lipsticks can contain gluten, too!

--For you boys out there:

Check your girlfriends lipsticks, lotions, and makeup before kissing!! ;)

It's everywhere!!!

Connie

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burts bees cosmetics and lotions sent me a gluten free list

they have a web site to contact them

the baby bee lotion is excellent for adults AND gluten-free the carrot creme has gluten but there lip sticks don't

e-mail them for a list

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