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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ugg, Hit The Dreaded "worse Before Better" Thing
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3 posts in this topic

I was hoping I would skip this part, lol. I've been seeing so many small improvements since going gluten/casein free, but for the past few days I have been very off-balance and feeling nauseated. I'm also having some problems with low blood pressure which produces a different kind of feeling--more like the blood is draining from my head type of thing.

I saw my regular GP yesterday, who basically just took my pulse and said the off-balance/nausea was probably related to inner ear/sinus problems. She prescribed something similar to dramamine for that and said I could take dramamine or the prescription. I had some Bonine (similar to dramamine) at home so took one of those yesterday afternoon, but ugh, still feeling nausea. I have an appointment with an ENT next week. (For the record, I don't get motion sickness usually or easily...can take the wildest of ocean cruises, air planes, car rides etc. with no ill affect--hard to believing sitting at my desk would produce motion sickness, but I'm no doctor, lol.)

She also said to monitor my blood pressure and to not move suddenly, get up quickly, and avoid standing or sitting for too long. Um, I'm going to Disneyland in about two weeks...it may involve some standing and sitting, lol. She didn't really say anything about it...course, she didn't have my chart in front of her either which would have shown YEARS of my "normal" BP readings...

I don't think this is related to being glutened although I have eaten out at Carl's Jr. (fries and a low carb burger) ...but then I do that every Saturday and have for months and haven't felt this way--I've even asked the manager if they have dedicated fryers at that location, which he said yes (course I guess I should be wary of the "deer in the headlight" look he gave me as I was asking). I don't feel like I'm coming down with anything either.

It's frustrating!

I guess I'm going to have to go back to bare basics for a while until my system calms down.

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I was hoping I would skip this part, lol. I've been seeing so many small improvements since going gluten/casein free, but for the past few days I have been very off-balance and feeling nauseated. I'm also having some problems with low blood pressure which produces a different kind of feeling--more like the blood is draining from my head type of thing.

I saw my regular GP yesterday, who basically just took my pulse and said the off-balance/nausea was probably related to inner ear/sinus problems. She prescribed something similar to dramamine for that and said I could take dramamine or the prescription. I had some Bonine (similar to dramamine) at home so took one of those yesterday afternoon, but ugh, still feeling nausea. I have an appointment with an ENT next week. (For the record, I don't get motion sickness usually or easily...can take the wildest of ocean cruises, air planes, car rides etc. with no ill affect--hard to believing sitting at my desk would produce motion sickness, but I'm no doctor, lol.)

She also said to monitor my blood pressure and to not move suddenly, get up quickly, and avoid standing or sitting for too long. Um, I'm going to Disneyland in about two weeks...it may involve some standing and sitting, lol. She didn't really say anything about it...course, she didn't have my chart in front of her either which would have shown YEARS of my "normal" BP readings...

I don't think this is related to being glutened although I have eaten out at Carl's Jr. (fries and a low carb burger) ...but then I do that every Saturday and have for months and haven't felt this way--I've even asked the manager if they have dedicated fryers at that location, which he said yes (course I guess I should be wary of the "deer in the headlight" look he gave me as I was asking). I don't feel like I'm coming down with anything either.

It's frustrating!

I guess I'm going to have to go back to bare basics for a while until my system calms down.

The effects you are describing are the same first effects I get from being glutened. Be careful and check your OTC meds for gluten binders. It may well be from the Carl's trip, having worked in the restaurant business for years I will say if they had someone new they may have made a mistake with the fryer, and while these fryers (contrary to popular opinion) are changed daily in most places that doesn't mean an 'accident' didn't happen. Also an employee may have put you burger on a bun and then taken it off. I hope you get some relief soon, if it was gluten it will pass as long as you are not reinjesting. You have checked all your cosmetics, toiletries etc. and changed toasters also, right?

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Thank you! Yes, I have a new toaster oven. I don't use makeup everyday, just on weekends and then use Bare Minerals, except for mascara which is Maybelline and a lip liner which is Mary Kay...hum, maybe I need a new lip liner. I've been using Gluten-Free Sav. soap and alternate their shampoo/conditioner with a huge bottle of Bumble & Bumble that I'm trying to use up. The Bumble & Bumble ingredients look okay, but of I don't know about cross-contamination. I've checked the ingredients on most of the products I use as toiletries, and most look okay. I take Zyrtek, and haven't checked that yet, and I did just start taking it again a week ago. All my vitamins are gluten-free/casein-free and in fact don't contain any of the top 8 allergins now that I think about it. I also don't have the box anymore for the Bonine I took, but I've had the symptoms before yesterday.

I'm thinking it may very well have been the Carl's Jr. Arg...we just have to be such detectives.

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