• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

When Should I Have My Son Tested?
0

10 posts in this topic

Hello,

This is not Pastor Dave, it is his wife :rolleyes: . I do not have celiac disease and I frequently eat gluten. I have never taken our son Jonathan off of gluten either, although both of us eat mostly gluten-free whenever David is home. We live in rural Missouri and I have not been able to find a doctor here who can give me clear advice about when to test Jonathan, or the new baby I am pregnant with. Jonathan is tiny, 37 inches tall, but only 30 pounds at four years old. His stools have been coming more frequently and he is having lots of accidents although he was fully potty trained over a year ago. What type of testing should I recommend my doctor do first? I am at a loss, but am scheduling a check-up for Jonathan this month and would like to try to bring it up again then.

Also, I am planning on nursing our new baby exclusively for at least six to eight months before introducing solids, and not adding gluten until well over a year. Is there any research or advice on whether I should eat gluten while breastfeeding (does it cross through breastmilk)? I have not been gluten free through the pregnancy, truthfully the thought never occured to me. We were still reeling from David's diagnosis (he was diagnosed in November and I have been pregnant since September.)

Thanks in advance for the advice!

Pastor Dave's wife - Christina

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Christina - Your 4 year old son should most definately be tested. He could be small due to family genetics, or could be small because he has celiac disease and is malnourished from poor intestinal absorbtion! Ask your doctor to send off the following tests (and make sure he is not gluten free until the tests are done):

1. IgA quantitative (to make sure there is no IgA deficiency - this would render the next test inaccurate

2. Tissue transglutaminase IgA (tTG-IgA) - these tests are best performed by Prometheus or Mayo laboratories, but the tTG test is done by a computer so it may be OK even at another lab.

If the IgA levels are low, indicating an IgA deficiency, then your doc needs to ask for the IgG tTG test as well.

If your son tests positive, many docs will insist on a biopsy of the small intestine to confirm the diagnosis. If positive, then your son should be checked for thyroid levels, anemia and iron levels, and vitamin b12. anti-Gliadin antibodies should be done for a baseline level as these will need to be checked every 6-12 months for future follow-up/compliance with the gluten-free diet.

I recommend asking your doc to check with the University of Chicago Celiac Disease Program (773) 702-7593. This program offers assistance to doctors as well as to patients re: diagnosis and treatment of celiac disease.

As for the questions about your current pregnancy and whether you should be gluten-free now...I would definitely direct that question to the Univ. of Chicago also. They have the most up to date info...

Sara

0

Share this post


Link to post
Share on other sites

Sara,

Thank you so very much! It is very very helpful to have the number of the Univ. of Chicago to give to my doctor. He is very interested in celiacs, but lacks the knowledge, and lacks the time to do a full study. I will ask for/insist on scheduling testing for Jonathan, again thanks for the specifics. Jonathan might "just be small" (I am 4 foot 11 and usually weigh 115 pounds) but he looks more like his dad who is 5 foot 10 and only weights 130 pounds. Everybody always said David was "just small" until we insisted on testing after his mother was diagnosed.

Thanks again!

0

Share this post


Link to post
Share on other sites

I am wondering if anyone has any information on recommendations for a non celiac disease pregnant mom when one child in the family already has celiac disease? We have 2 kids (one with celiac disease, one without) and are thinking about a third.

1) First, should Mom be gluten-free during pregnancy?

2) Second, should Mom be gluten-free for breastfeeding?

2) Third, should the newborn be gluten-free for a year? longer? not be gluten-free and watch for symptoms?

I feel keeping the gluten away longer gives the newborn a better chance but I am wondering if there is any research to back this.

Any information is appreciated. Tania Greenville, PA

0

Share this post


Link to post
Share on other sites

This is an area with varying opinions. One study suggested that delaying gluten beyond normal intoduction actually increases the chances of celiac. Another study indicated that children who continue to breastfeed past the introduction of gluten are less likely to get celiac, although no one knows whether that continues into later life.

There's a similar debate about eating gluten while breastfeeding.

I'm fairly certain, though, that the general advice is to introduce gluten at what would be a "normal" time, whenever that is (my youngest is 12 so I've forgotten these things).

richard

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi,

I'm the celiac in our family, but we also have a child with a peanut allergy. I am 30 weeks pregnant. My OB is of little help regarding the entire Celiac issue. I just had to spend a long visit at my Gastro who I do like and trust very much to sort of all of my issues with regards to the pregnancy and what needs to happen or not.

My Gastro is under the opinion that you do not test a new born or very young child unless they are "faling to thrive" or showing other symptoms. My newborn would test positive for Celiacs because of me is the idea. I liked the idea of waiting until the child is having other blood tests done at an older age to discuss having the gene test or Celiac panel done on an otherwise healthy child just to know where you stand. My other child had the Celiac panel done twice right after I had the diagnoisis. She was elevated on one and normal on the other. The specialist said to go with the non-celiac until symptoms present.

(Christina - I would have your child blood tested. There is a numbing cream that your pediatrician should have. If not, you can order it through your pharmacist. It will make the blood work much less traumatic for you and the child.)

As for the nursing, as the celiac I have concerns here. My first ended up with double ear tubes, peanut allergy, and pencillian allergy. So nursing didn't do much to help out in the allergy category for her. My gastro is of the opinion that you need to do what works best for you the Mom, the baby, and the family. For me they recommend presumming that this next child does not have celiacs. The breast feeding didn't work too well with the first baby, so I think this one will be nursed and get supplimental bottles.

Best of luck on your pregnancy and delivery!

0

Share this post


Link to post
Share on other sites

Hi,

Regarding the breastfeeding, there is a newish study out on celiac disease that shows the ONLY external variable in whether a person gets celiac disease is LENGTH OF EXCLUSIVE NURSING TIME, meaning the longer you exclusively breastfeed, the less likely your child will develop celiac.

So, nurse nurse nurse :) This won't prevent celiac, but it does increase your odds. Check out www.lalecheleague.org for lots of great info on breastfeeding and to find a group near you.

Good luck!

Merika

0

Share this post


Link to post
Share on other sites




I do not agree with that study by the reaon for it happening and how they select people to participate.

From everything I researched before it is that being breastfed can push back the onset of symptoms, and that's it.

0

Share this post


Link to post
Share on other sites

Hmmm...that's interesting. I wonder how long they suggest to nurse? I breastfed both of my boys and although we haven't had them tested they are having a positive response to being gluten-free. When my second son had gluten a week ago, his stools were white and runny. The rash on his arms and legs tripled in size( layers of bumps), and his mood was severly affected. So we are pretty certain that he is gluten intolerant. He had breastmilk until he was nearly 10 months old and my husband is the one with celiac...not me. He is currently 2.5 years old and has shown symptoms since being introduced to solids at 6 months old.

0

Share this post


Link to post
Share on other sites

Hi,

I don't think they make a recommendation for exact length of nursing because they don't know. They did find that the longer you *exclusively* nurse, the less likelihood of celiac. Unfortunately, it is difficult in the United States to find many mothers who nurse exclusively even up to 6 months. I bet, for example, that if you stopped nursing at 10 months, then you introduced formula or solids before 6 months. Am I right? :)

Also, it's not whether the mother has celiac, it's whether the baby carries the gene(s) for celiac. Apparently, 25% of the US population carries the gene for celiac - that's a lot! But only 1% of us actually get celiac.

hth,

Merika

(ex-sociologist and loves statistics and studies :) )

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,536
  • Member Statistics

    • Total Members
      64,994
    • Most Online
      3,093

    Newest Member
    Daisy Charlize
    Joined
  • Popular Now

  • Topics

  • Posts

    • LOL, re: trousers vs. pants.   Here in the US, trousers are a specific kind of pants/slacks, with a looser fit and often with pleats in the front.   I also read that Vit D helps digestion;  can't recall the links, but likely within Gundry's writings about lectin.   My Dr. just told me to resume 2000 IU per day, and I do think it's made a slight difference. Have also read that bone broth is helpful, its gelatinous nature supposedly coats the stomach.   I know bone broth has not been formally studied much, but again, probably can't hurt and might help.
    • I'd try the gluten free diet for a few months to see if that helps at all. Can't hurt. If it doesn't help I'd try a low FODMAP meat and veggies diet.
    • A good amount of the neurological effects from celiac are also related to nutrient deficiencies caused by malabsorbtion from damaged intestines and the fact that most gluten-free foods are not fortified and your net eating many grains. You sound good about the CC and everything and seem to be taking percations goods, I still use freezer paper for a clean safe work surface even in my gluten free home lol. Anyway top things to look for and consider are magnesium and B vitamin deficiencies . I take my in a drink to avoid pills and the sublingual forms are more easily absorbed by the body. I normally suggest 2 brand or forms of magnesium and you need to find the one that works for you there. They are Natural Vitality Calm, a magnesium citrate in a powder, you add it to a warm drink let it fizz and drink it. Magnesium citrate can be a bit harsh on some peoples guts, I suggest you start off with 1/4 tsp and work your way up to the full dose over a week, if you get D then your taking too much and need to back down or the citrate version might be too rough for you. In which case I suggest Doctors Best, bit more off tasting and mixes best with a juice but with the powdered form of it you do not have to worry about digestion issues, I just found the citrate to seem to help with my nerve issues more. B Vitamins, I take Liquid Health Stress & Energy and the Neurological Support, I take 1 tbsp of each 2-3 times a day before meals. Really helps with everything and being in liquid forms I just add to tea and drink it. There are many other vitamins to look into and we each have ones we have issues with more then others, getting tested might help, NOTE magnesium and B vitamins sometimes show normal but you will still find you need supplementation...bit of a odd thing I found. Yeah the neurological effects are  huge thing with me as my issues with this disease cause my immune system to attack my nervous system and brain....accumulated brain and nerve damage over the years. Had a whole mental trauma issues with them, my gastro issues back then were mostly just constipation. NOW days I get the Vomiting, D, gas, bloat, and then constipation for a week along with neurological issues which NOW if I get exposed to eating straight gluten (happened twice in 3 years to this extent) I loose motor control and collapse unable to move, normally while vomiting violently to the point of blood coming up (this was what happened last June 2016 after eating out).  
    • Started thinking the only cereal I allow in my house is Vans, they have a cinnamon one that is like a captain crunch with cinnamon, and a strawberry O type that I keep in stock for a friend that comes over sometimes and for my cousins littler girls who I end up babysitting sometimes. There was a coconut flake (corn flake knock) off I used to eat, but the company discontued it. There is a stuff called progranola from julians bakery made without grains that looks great but is a bit expensive at $9 a bag.
    • I would add your pharmacist to that that list and double check when getting a script filled that they checked to make sure it is safe. You will also need to tell any romatic partners as if they are gluten consumers they should brush their teeth before any kissing.
  • Upcoming Events