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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Moongirl

Belly Button Pain...

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I get a pinching pain come and go around my belly button area and up between my rib cage area....did anyone get this after they went gluten-free? my GI thinks it hurts cause of inflamtion/irritation...but i didnt have it before...started after i went gluten-free

(we ruled out ulcers and reflux with CT scans and GI xrays)

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I get that pinching pain. I didn't get it until after my gallbladder was removed, so I thought maybe it was related to that.

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Wow! I swear, I never thought anyone got that but me. I never even suspected it was from being a celiac until about a month ago. I used to get the pain about 10 years ago. Thought it was weird, but hey, bodies are weird, so I never thought much of it. About 5 years ago, I stopped getting it, but that’s when I also started to have larger medical problems. I went gluten-free about 8 months ago, and as my large issues resolved themselves, my smaller weird intestinal issues came back, like my belly button pain. I was confused as to why it came back, but then I realized that I was getting it after gluten exposures. I think for me, my system was so damaged that some issues no longer registered. However, since I am getting better, getting gluten now causes an intestinal response where it did not before. So I would agree with your Doctor, it probably does have something to do with inflammation/irritation, and the reason as to why you are getting it now rather than before, is because maybe like me, you finally have a healthy enough gut that it can actually feel discomfort again.

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I get the same thing, but i have a hital hernia and I need surgry to get it fixed in order for the pain to stop. I just dont have about 2 1/2 weeks to totally stop everything that I do and finally get it done......plus I am not a big fan of people cutting me open <_< . I have had the pain for about 3 years.

Amanda NY

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I get a pinching pain come and go around my belly button area and up between my rib cage area....did anyone get this after they went gluten-free? my GI thinks it hurts cause of inflamtion/irritation...but i didnt have it before...started after i went gluten-free

(we ruled out ulcers and reflux with CT scans and GI xrays)

I don't know if it is the same thing but I will share anyway, might help some...

Before my gluten intolerance diagnosis in Feb 2004, I complained of off and on pain next to belly button and doctor replied "it's your intestines" and dismissed it (I changed doctors after that). After I went gluten free, this pain disappeared, only to show up again whenever I ingested gluten food. Now I know it is an inflammation of part of GI tract when in contact with gluten. Glad to know I am not only one with this belly button thing.

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wow freaky i thought i was goin crazy because whenever anyone touches me in the bellybutton area i get a pinching pain as well....i never would of guess it was due 2 celiac disease but glad 2 know im not alone on this

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well i finally found the culprit, i ate McDs fries a few days before these pains started ( i had them before they came out that the fries werent safe anymore, literally a week before!!), they lasted about a week and a half. I GOT GLUTENED. After visiting my GI he confirmed that it was most likely due to inflamtion and since im newly dx i still have a lot of of it. So give it time

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well i finally found the culprit, i ate McDs fries a few days before these pains started ( i had them before they came out that the fries werent safe anymore, literally a week before!!), they lasted about a week and a half. I GOT GLUTENED. After visiting my GI he confirmed that it was most likely due to inflamtion and since im newly dx i still have a lot of of it. So give it time

Hi,

My daughter was recently diagnosed with Celiac, about 3 months ago. Since she was diagnosed she has been feeling fine until recently. She started having pain behind her bellybutton over toward the left side. We don't know what is causing that. The gi said she should be feeling fine now. They say that it usually takes around 2 months to feel better. We are now possibly looking into something else in addition to Celiac. He wants her to wait another 2 months to see if her body is just taking longer to respond to the diet. You are the only one I have heard of that has belly button pain. She does not cheat either so I dont know whats with the pain in the bellybutton. Good luck!!!!

glutenmom14

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Hi,

My daughter was recently diagnosed with Celiac, about 3 months ago. Since she was diagnosed she has been feeling fine until recently. She started having pain behind her bellybutton over toward the left side. We don't know what is causing that. The gi said she should be feeling fine now. They say that it usually takes around 2 months to feel better. We are now possibly looking into something else in addition to Celiac. He wants her to wait another 2 months to see if her body is just taking longer to respond to the diet. You are the only one I have heard of that has belly button pain. She does not cheat either so I dont know whats with the pain in the bellybutton. Good luck!!!!

glutenmom14

Your gi can say she should be, doesnt mean she is going to be...everyones body heals differently....well i know from most people and from my own experience it can take 6+months to start to heal and feel a difference. I have never in my life had belly button pain before either. When I questioned my GI he said that the belly button area is associated with your small intestines, and since thats where my damage and inflamtion was, it made sense that I would be having pain there. Because they ran all sorts for blood tests and ran me through a CT scan and upper GI xrays and i was picture perfect. Eventually the pain subsided, Im thinking that it was caused by a flare up, believe me i dont cheat, but doesnt mean i cant be getting glutened unintentionally (ie McD fries) ;)

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well i finally found the culprit, i ate McDs fries a few days before these pains started ( i had them before they came out that the fries werent safe anymore, literally a week before!!), they lasted about a week and a half. I GOT GLUTENED. After visiting my GI he confirmed that it was most likely due to inflamtion and since im newly dx i still have a lot of of it. So give it time

Yes, same here. I ate McDonald's fries and then looked up this fries topic on this site and turned out it has wheat!! I am recovering from it as I ate it over the weekend. Those fries taste good, dang. Whenever I get the belly button pain, it is a sign that I ate hidden gluten somewhere. My iron (ferritin) level is low due to malabsorption, my doctor said for me to increase to healthy iron level, I must stay away from gluten at all costs for healing to take place.

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