• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Colonoscopy Results
0

7 posts in this topic

My results from the recent colonoscopy and second endoscopy I had are now in, and I was told that I have a second disease. It's chronic colitis and it's apparently everywhere in my colon, according to my dr. I'm very upset over this, of course, and was wondering if anyone else here has both celiac disease and Colitis, too. I was prescribed Asacol and will begin that drug tomorrow (anyone else here ever used that?) The dr. also said most of my Sprue appears to be gone, or at least improving, which is weird because the antobodies in my blood haven't dropped at all. Right now I just can't believe that I am only 30 and have two diseases neither of which runs in my family. Really depressing!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Sorry to hear of this, I do hope the meds begin to kick in and start working for you soon! I too have not improved as much as I thought I would have after being gluten-free for almost 8 months. I still have "some" abdominal pain and loose BM's everyday, hardly ever have a normal one. I know something else must be wrong but have not got the nerve up to go back to the GI doc.

:D I do hope you begin to feel better soon, take care & God Bless :D

0

Share this post


Link to post
Share on other sites

I found out I was gluten/dairy/yeast/egg sensitive through stool tests done with>www.Enterolab.com

They give the prices on their site, and most insurance companies will cover at least part of the cost. I found out both my kids also have the same problem, so it makes it a lot easier to know what to avoid.

I had previously done the allergy/sensitivity testing and found other foods I was sensitive to, and I have read that it is difficult to heal unless you avoid all the things you are sensitive to. If you can't afford this,I have read you can avoid the food you think you might be sensitive to for 4-5 days, and then first thing in the morning eat just that thing. Check your pulse before eating it and again during the 2 hours following, if your pulse increase it supposedly means you are reacting to that food.

good luck, Nin ;)

0

Share this post


Link to post
Share on other sites

Sorry to hear about that. I found out that I have Celiac D and Crohns about a month ago. I was very bummed when I was told and I'm still down about it. Not really sure how to react to news like that. All the bad side effects that can happen down the road run through my head and it depresses me. I'm 34 and having both of these diseases seems like a lot of baggage as far as carrying on a somewhat normal social life. But I'm doing my best to think positive and hopefully with a Gluten Free Diet, medication and more relaxed way of life, things will turn out fine.

Speaking of the positive -the meds I have taken have worked for me so far(knock on wood).

I was given 40 mg of prednisone for 2 week and have been cutting back slowly. I

0

Share this post


Link to post
Share on other sites

Steve,

Thanks, I too am very depressed right now and feel shocked to be this age and have 2 diseases to deal with. I don't understand why I wasn't put on Prednisone for 2 weeks just to get this problem under control, then switched over to the Asacol later. Seems like that is the usual way to go, but my dr. has very negative feelings about steroids. I thought they are usually no problem at all in the short term? Have you noticed any major side effects from Prednisone? Asacol is a "sulfa" drug, used for inflammation, and considered safer than steroids, but is usually used in preventing inflammation...my inflammation is currently there, so I really probably should've gone with Prednisone, but I guess I'll try this first and see how it goes. One question: What is the difference between Colitis and Crohn's? They're both inflammation of the intestine, so how does the dr. know one from the other? I asked my dr. which type of colitis I have, and he doesn't know!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi Gillian,

I'm sorry to hear about you having colitis. At least you know what is wrong and that you are doing well on the gluten-free diet with the Celiac Disease. When I had my colonoscopy my doctor took biopsies to test for microscopic colitis, she said there was a lot of inflammation in my colon, but since the biopsies were neg. for MC she didn't say anything else about it. And when I asked for them to mail me copies of the biopsy reports they only sent it for my endoscopy. I keep meanig to call them again, but never get around to it. I still wonder if that is part of the reason I still have some occasional rumbling in my intestines and fairly frequent loose stool...My children's Ped. GI thinks that both my son and I have some sort of inflammatory bowel disease.

It would be nice if they could pin point what is causing your colitis, so that you could do something to help it, other than meds. I hope the medication starts to work for you.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Gillian

For the first 2 weeks I was taking 40 mg of Prednisone I slept only 3 hours a night-I also got a nasty cold/flu. I was very hungry and ate all the time( a good thing for me). The thing is I didn't realize how long it takes to get off Prednisone. When all is said and done It will take around 4 -5 months.

The side effects at the moment (10 mgs a day) are pretty much gone.

Sometimes I feel like I'm getting my GI symptoms back as I lower the dose but after a day or two things settle down. Keeping my fingers crossed.

I'm not sure what the difference is. I think Crohns can be in the small and large intestine while Colitis is in the large only.

Crohns also effects all layers of tissue while Colitis is just one.

Correct me if I'm wrong :)

They can tell the difference from a Biopsy, location of irritation, Blood tests (Crohns and Colitis have different anti bodies), and how you react to certain meds will also give clues. Thats as much as I know.

Good luck

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,400
    • Total Posts
      930,339
  • Member Statistics

    • Total Members
      63,822
    • Most Online
      3,093

    Newest Member
    Tara@yardgarden.ca
    Joined
  • Popular Now

  • Topics

  • Posts

    • MelissaNZ,  Has your daughter been checked for vitamin deficiencies??? Vitamin D deficiency symptoms include urinary incontinence, oral candidiasis (thrush), skin rashes, bumps on the backs of arms, joint pain, distended stomach and short stature.  Bones can't grow much without vitamin D.  Vitamin D deficiency causes delayed gastric emptying (food doesn't move through the gastrointestinal tract at a normal speed and the intestines bloat) which explains your daughter's delayed reaction to the cake.   Vitamin A deficiency is also a cause of bumps on the back of the arms. Vitamin A deficiency causes vision problems. Vitamin A and D are both fat soluble vitamins.  Absorption of fats is a problem for Celiacs.  So is absorption of B vitamins and important minerals. B Complex vitamins are water soluble and must be replenished every day. Skin rashes are associated with several B vitamins like niacin (B3), B12, and thiamine (B1).   I went through a period of severe malnutrition prior to diagnosis.  It was not a pleasant experience.  I had symptoms similar to your daughter's, including the incontinence, which resolved on vitamin D supplementation.   Please, please have your daughter tested for vitamin D deficiency.  And have her B vitamins checked as well.  Celiac Disease causes malabsorption.  Malabsorption causes deficiency diseases.  Newly diagnosed Celiacs need to be checked for deficiencies.   I hope this helps.  
    • I will try to make my long story short, I have been searching my whole life for a diagnosis,  I have seen pretty much every doctor possible I even went through a spinal tap recently because they thought I had multiple sclerosis,  when I was younger I was always throwing up and having stomach problems, a couple hospital visits they thought I had appendicitis, I started having a neurological symptoms as well as  anxiety and depression,  The fatigue was just over bearing,  I was having numbness and tingling and muscle spasms all the time eventually started having seizures,  which kind of cycled through and stop happening after a couple months,  and then it dawned upon me my brother has celiac pretty severely, my grandmother also has celiac, my dad does as well, I don't know why I never thought that it could be my issue, for the last week I have   Been gluten-free and steering clear of cross-contamination,  my dizziness is improved my fatigue is improved as well as rashes I was getting on my arms  and sides,  I have no more muscle jerks or spasms, The problem is I have horrible insurance and I cannot afford testing, so I am at least trying to do it an home blood test,  I know it's not very accurate on telling me if I have celiac or not,   But the thought I may never know for sure if I have it is very daunting.  My family keeps telling me you don't need  to spend thousands of dollars to have a doctor tell you you can't eat something you already know you can't. Just was wondering if anybody else has been in my position and seeing if anybody has a vi just was wondering if anybody else has been in my position and seeing if anybody has advice,  I don't want to be known as one of those people who believe they have something and people with the disease frown upon them it's a very scary thing to think about. 
    • ...ON a side note this is quite easy, you can make your own out of any gluten-free Bread mix, I recently started using a coconut flour blend for this.......Most often people associate caraway with Rye Bread so you just add caraway seeds to the dough and a bit more vinegar to sour it a tad and BAM gluten-free Rye Bread knock off. I think Authentic Foods even has a additive to put in bread mixes to make it taste like Rye Bread....Or you can buy it preamade, I have issues with all the other ingredients but as for one of the best gluten-free Breads out the Canyon House makes a Rye like bread https://canyonglutenfree.com/buy-gluten-free-bread-products/Gluten-Free-Rye-Deli-Sandwich-Bread.html  
    • Took me less than a minute, although why did they need our addy and phone?
    • As mentioned before you said she had rashes, have they checked if that is DH? That is a positive sign of celiac and those with the DH manifestation can have problems getting a postive with the gut biopsy.   Here are some links. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ https://www.gluten.org/resources/getting-started/dermatitus-herpetiformis/ Please read up on this. She can get the rash tested for the disease if it is DH.
  • Upcoming Events