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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Advice On Celiac Diagnosis
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Hey all,I am new to these boards so please bear with me. I have been running around with GI doctors for the past two years. I have received two opinions. My current doctor feels I have IBS. However, e tested me for celiac and one of the tests the Gliadin AB IgG test was elevated(35). The other tests were negative. I had a endoscopy done about two years ago from a different doctor where he biopsied me for celiac and it was negative. My current doctor feels that was sufficient and doesnt want to pursue another endoscopy. I am at a crossorads right now because I still have bad cramping and D even with the antispasmotics he has prescribed. ANy advice how to handle this?

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I have heard of people who had nothing but a positive Igg who went gluten-free and that solved everything.

How bad do you feel and how much do you want to feel better? Going gluten-free without knowing if that's really the problem seems radical, but if your doctors are at a complete dead end, what they're doing isn't helping, and you aren't functioning, you can always take a deep breath, go gluten-free and see if it helps. If it doesn't, then all you've lost is a few weeks of eating gluten. If it does, then you have your answer and you feel good again. You might have to do this for at least a few weeks and maybe longer to know if it's working. Some people feel better almost immediately while others take some time.

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Hi Tommy1976,

You could always check into Enterolab. There are many different levels of gluten intolerance. If you have a lesser level then you will not have enough damage in your intestines to cause antibodies to leak out of the intestines into the blood stream. Enterolab tests for antibodies in the stool, since they are eliminated from the intestines through the stool, and are therefor easier to determine in gluten intolerant people who are not yet classified as Celiac (which is the worst form of gluten intolerance).

You can order the tests from home without a doctors order and you perform the test ans send it back overnight mail. It is very simple to do and many of us here at this site have done their testing. Most of us were in similar situations as yours, where the doctors won't test us anymore due to negative tests. I just wanted a more concrete answer. Yes or NO. I knew I felt better off gluten, but I wanted to know it was really necessary before doing it, and I wanted my kids tested. It ends up we are all 4 gluten intolerant. All of us are doing better now and I highly recommend Enterolab. Not all doctors will accept the diagnosis (I've got about a 70% rate of acceptance with 6 different doctors), and most insurance won't pay for it, but in my mind it was worth it. The tests range from $99 to $349, depending on what you are testing for. If you are interested in checking them out here is a link to their website.

http://www.enterolab.com

God bless,

Mariann

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    • Hi Allie and welcome First off, I know 3 years was a long wait, but at 17 you've figured out celiac way before many people do. That should make a big impact on minimising its effects and helping you with the diet, so, bizarrely enough, congratulations!   A lot of good advice has been brought together in this thread:  Don't worry that your symptoms are bad now. As you follow the diet your body will begin healing itself and you're still very young so hopefully this will go really smoothly. Think in terms of the next 6 months rather than weeks however, recovery will likely take a little time. Eat as healthily as you can, lots of whole foods and try to avoid the gluten free processed substitutes as your digestive system needs all the help it can get at this moment.  You may want to avoid dairy as well for now and think about reintroducing it later. This site has been really helpful to me and others. I hope you find it just as useful. Best of luck!   ps, your increased reaction to gluten during the challenge phase was perfectly normal. Many find that reintroducing it much worse than the initial affects and take some time to get over the challenge. That's why you'll see lots of posts here urging folks to 'stay on gluten' till their testing is complete!
    • Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!
    • Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks 
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    • ^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick.  also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some. 
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