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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Advice On Celiac Diagnosis
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3 posts in this topic

Hey all,I am new to these boards so please bear with me. I have been running around with GI doctors for the past two years. I have received two opinions. My current doctor feels I have IBS. However, e tested me for celiac and one of the tests the Gliadin AB IgG test was elevated(35). The other tests were negative. I had a endoscopy done about two years ago from a different doctor where he biopsied me for celiac and it was negative. My current doctor feels that was sufficient and doesnt want to pursue another endoscopy. I am at a crossorads right now because I still have bad cramping and D even with the antispasmotics he has prescribed. ANy advice how to handle this?

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I have heard of people who had nothing but a positive Igg who went gluten-free and that solved everything.

How bad do you feel and how much do you want to feel better? Going gluten-free without knowing if that's really the problem seems radical, but if your doctors are at a complete dead end, what they're doing isn't helping, and you aren't functioning, you can always take a deep breath, go gluten-free and see if it helps. If it doesn't, then all you've lost is a few weeks of eating gluten. If it does, then you have your answer and you feel good again. You might have to do this for at least a few weeks and maybe longer to know if it's working. Some people feel better almost immediately while others take some time.

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Hi Tommy1976,

You could always check into Enterolab. There are many different levels of gluten intolerance. If you have a lesser level then you will not have enough damage in your intestines to cause antibodies to leak out of the intestines into the blood stream. Enterolab tests for antibodies in the stool, since they are eliminated from the intestines through the stool, and are therefor easier to determine in gluten intolerant people who are not yet classified as Celiac (which is the worst form of gluten intolerance).

You can order the tests from home without a doctors order and you perform the test ans send it back overnight mail. It is very simple to do and many of us here at this site have done their testing. Most of us were in similar situations as yours, where the doctors won't test us anymore due to negative tests. I just wanted a more concrete answer. Yes or NO. I knew I felt better off gluten, but I wanted to know it was really necessary before doing it, and I wanted my kids tested. It ends up we are all 4 gluten intolerant. All of us are doing better now and I highly recommend Enterolab. Not all doctors will accept the diagnosis (I've got about a 70% rate of acceptance with 6 different doctors), and most insurance won't pay for it, but in my mind it was worth it. The tests range from $99 to $349, depending on what you are testing for. If you are interested in checking them out here is a link to their website.

http://www.enterolab.com

God bless,

Mariann

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