• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Wonder About This Pain?
0

5 posts in this topic

Recommended Posts

mysterypain    0

Hi everyone! :D This is my first time posting but I have been doing alot of reading here. I am being tested for celiac and am very confused about the symptoms. :( I am confident that my doctor ordered the test based on information I have given her over the past three years. I have had every test there is I am sure! My heart has been tested and I have had MRI and catscan to test for tumors and MS. I have alot of the symptoms that show up here on your board but one is not mentioned. My question is do any of you get pain between the shoulder blades that goes through you like a knife? I have episodes of this pain that stop me dead in my tracks. I call it white pain.....the kind that takes you over and makes you wish you could just die and get it over. :blink: I have had three children, naturally! When I have this pain I say I would rather be having a fourth child! It feels like a heart attack. My doc has checked into it and says my heart is normal and it is nothing to worry about ,but with this idea of me possibly having celiac I can't help but wonder if it could be connected. I am very confused about this disease and need some help sorting out what is caused by the food I eat and what is not related. I do get very dizzy and lose some of the feeling on my right side when I am not careful with my diet. I get horrible abdominal pain an feel soooo tired I cannot walk very far, I also have been suffering terrible migraines. I am sorry this is so long, I really have come to a point of total desperation.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm not sure if your mystery pain is food-related or not. Are you keeping a food diary? If you write down everything you ingest and the timing of your symptoms, you might notice a pattern.

I doubt this is the same sort of pain that you have, but I have had a "mystery pain," too. I started experiencing it before I got pregnant with my first child, and I remember it being especially frequent during my second pregnancy, but I haven't had it in quite a while now. It was a throbbing pain that "blossomed" from the area right below my shoulder blades, just to the left side of my spine. It was intense, and my heart would pound and I would breathe heavily while it lasted (maybe 30 seconds?). I remember worrying that I had an aneurysm! Now I wonder if it might have originated in my stomach, instead. I'll probably never know!

Where exactly are you in the testing process? Do let us know when you have your results! Good luck!

Share this post


Link to post
Share on other sites
paulstefano    0

I just had this happen last week. It's got to be a weird coincidence, though. I was carrying a heavy object over my head at the time. All of a sudden, I had a stabbing pain in my back, right between the shoulder blades. It never went away though. I've had back pain ever since, for about a week. I have to think it's a muscle pull, not related to celiac, but you never know.

Share this post


Link to post
Share on other sites
j9n    0

I get this pain too. When I had my endoscopy they found a hiatal hernia and ulcers on my esophogus from reflux which is causing my pain. I also get some pain when swallowing at times, like the food is getting stuck (which it is).

Share this post


Link to post
Share on other sites
GEF    0

Just wondering... did your doctor check your gallbladder? I've heard that pain in your shoulder area can happen when you have stones, debilitating abdominal pains accompany.

Good luck in finding your answers.. hope you feel better soon!

Gretchen

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,919
    • Total Posts
      938,681
  • Member Statistics

    • Total Members
      65,842
    • Most Online
      3,093

    Newest Member
    chibody
    Joined
  • Popular Now

  • Topics

  • Posts

    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
    • Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. Once I get glutened I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard adjustment) I got to a stage of knowing what I needed to do. Your medical background will help you methodically work out what you need to cut out and what is safe and you will get there. Stick with college. Don't let this crappy stage take that away.   The thing that saved me though over everything was finding this article: https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40
    • Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent for endoscopy and colonoscopy. I consumed gluten for just over two weeks, then went back to my grain free, dairy free diet. I saw my Dr this am and she said my bowels were healthy, that the Dr had taken 'several' samples and that all is well on both ends.  (No celiac, but also not H Pylori, crohn's, etc). She is running all kinds of other bloodwork, because I am still feeling terrible, and obviously the assumption I had made was that it was celiac. I'm going to stay off gluten for now, in hopes that I'll start to feel better. My GI symptoms are worse this week than they have been in ages...so something is up, but apparently I'm healthy??! I am pretty sure my Dr. would not refer me to another GI. She's not the best, but it's very hard to find another Dr. here, especially if you already have a Dr. (Canada) I am going to ask her for a copy of the report though, as well as the rest of the bloodwork she's sending me for. 
    • This is exactly what I'm wondering also.
    • I'm confused. You don't have celiac? Have you had a blood test or biopsy? Have you been diagnosed with DH?  What were you diagnosed with 9 years ago? If it was celiac or DH why have you only been gluten-free for 6 months? We need a better picture of what's going on here to help you more successfully.
  • Upcoming Events