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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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lisa922

Biliary Tract/pancreas Problems

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I had a severe attack in Feb 2003 that left me with abdominal pain and pale yellow stools. I couldn't eat anything other than easily digestible waffles and bagels - all the things a Celiac shouldn't eat! A few months later, a Hida Scan showed my gallbladder to only be working 1%, so it was removed and we thought that was the problem. I also had some female issues that were taken care of, again thinking that was the problem. Then in Jan 2004, a return of the pain, pale stools and eating difficulties came back. Blood work in March indicated Celiac as a possibility, although, the gastroenterologist thought no since my IgA was a weak positive at 24, my IgG was high positive of 127 (but he said that was not specific to Celiac), my tTG IgA and Reticulin IgA Ab were both negative, and my Reticulin IgG Ab was 1:40 (negative is less than 1:20 and this is another one not specific to Celiac). So, I did the small intestine biopsy and that says I have a "focal blunting of villi with increased intraepithelial lymphocytes" and is consistent with Celiac Sprue. I'm just wondering, though, about these pale stools. I had to have an ERCP with sphincterotomy to clean out my bile duct (biopsy done at same time). Bile flow was good for a little while after that because I had dark stools, but now they're back to being pale. I just don't know if I really have Celiac or something else wrong with my biliary system and/or pancreas. Thanks

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Hi Lisa922,

You most likely have Celiac AND something wrong with your biliary system and/or pancreas. Your blood tests and biopsy show Celiac. So don't think just because you have other health problems that you were mis daignsosed. How are you doing on the gluten free diet? How long has it been since your diagnosis? And finally what does your doctor say about the return of the pale stool?

Mariann

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Mariann - thanks for your reply - that was kind of the answer I was afraid of!!! I'd like to blame every symptom on one thing, but I just don't think that is what is going on here. I was only diagnosed on April 23rd, so I have only been gluten-free for about a week-and-a-half. I am still having bowel problems off and on, but I suppose it will take a while for that to be fixed. The pale stools have really just started yesterday and then today they are worse and I haven't called the doctor yet. I figured I would give it a few days and see if anything changes. Thanks, again!

LISA

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