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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Horrible Pressure Headaches After Eating
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Does anyone here get pressure headaches after eating? About 20 minutes after I eat anything I get really bad pressure headaches by my temples and on my forehaead between my eyes.

Lemonade

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I've had this exact symptom for 3 years now. I have intense pressure in my head and its always worse after eating. The veins in my temples and forehead also buldge sometimes. Its also triggered by chemicals of any kind. Its most intense between my eyes, at the temples and also in my jaw. There is swelling as well although its not noticeable to others. Its not gluten-related as far as I know cuz it happens regardless. I just got dx'd with C-Diff infection and am starting treatment tomorrow. Doctor thinks this might be causing alot if not all of my problems...but will have to see what happens following treatment.

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Does anyone here get pressure headaches after eating? About 20 minutes after I eat anything I get really bad pressure headaches by my temples and on my forehaead between my eyes.

Lemonade

Yes! I get these too. These headaches were one of my worst symptoms. They are better since going gluten-free last year but they still seem to happen at times. I figure it's a reaction to something I am eating, however, I have no idea what.

S

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perhaps they are related to blood sugar or due to food allergies/intolerances?

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perhaps they are related to blood sugar or due to food allergies/intolerances?

For me, I'm pretty sure its from intolerances from my immune system being all whacked out right now and from leaky gut.

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Does anyone here get pressure headaches after eating? About 20 minutes after I eat anything I get really bad pressure headaches by my temples and on my forehaead between my eyes.

Lemonade

Yes I get pressure head aches too. It is almost like sinus pressure for me. I also get feverish about 1 hour after I eat anything. My forehead and neck get burning hot. I am seeing a derm about this next week.

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I've had this happen to. Also, when I lay down at night after eating, I can hear my head throbbing on the pillow- like my heart is beating in my head- does that happen to anyone?

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I've had this exact symptom for 3 years now. I have intense pressure in my head and its always worse after eating. The veins in my temples and forehead also buldge sometimes. Its also triggered by chemicals of any kind. Its most intense between my eyes, at the temples and also in my jaw. There is swelling as well although its not noticeable to others. Its not gluten-related as far as I know cuz it happens regardless. I just got dx'd with C-Diff infection and am starting treatment tomorrow. Doctor thinks this might be causing alot if not all of my problems...but will have to see what happens following treatment.

Do your pressure headaches ever go away? I get pressure headaches after meals expecially at night. They make me feel really sick and dizzy...do you feel the same way?

On a different topic...

Did you have both a positive blood test and biopsy?

Lemonade

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I've had this happen to. Also, when I lay down at night after eating, I can hear my head throbbing on the pillow- like my heart is beating in my head- does that happen to anyone?

I get the heart pounding feeling when I eat dairy alot. I used to get that feeling at night in bed all the time but once I changed my diet it went away. I used to think I was losing it. I was always told that I was experiencing anxiety symptoms but it wasn't. It was gluten. I used to be able to feel it in my hands.

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Do your pressure headaches ever go away? I get pressure headaches after meals expecially at night. They make me feel really sick and dizzy...do you feel the same way?

On a different topic...

Did you have both a positive blood test and biopsy?

Lemonade

Yeah they were gone all summer when I only ate meat and veggies.

My headaches dont make me feel dizzy though. No I didnt have positive blood or biopsy. My bloodwork was 2 weeks after starting the diet. It was negative so I went back to eating gluten and forgot about it but I got very sick and a couple months later I wasnt able to get out of bed and had lost 25 lbs. I went back on the diet and had my biopsy 6 months later. It was kind of pointless and we knew it was gonna be negative but the GI wanted to take a look anyway and make sure nothing else was going on. I got tested through Enterolab 4 months into the diet and was positive for everything. I didnt want to go back on gluten for the tests and the GI didnt think it would be a good idea either so we just went ahead with the biopsy knowing it wasnt gonna show any damage after 6 months gluten-free.

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I've had this happen to. Also, when I lay down at night after eating, I can hear my head throbbing on the pillow- like my heart is beating in my head- does that happen to anyone?

Yes - I was also diagnosed with an adrenal insufficiency and now wonder if it is related?

Also feel very dizzy and lightheaded after eating especially at night but this is new to me only after starting the gluten-free diet.

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these type of headaches were my primary focus for the past 4 or 5 years.. I've pretty much had a headache every day since at least the start of 2003... I've had 2 MRI's, seen multiple doctors, had a glucose tolerance test... all mostly negative (glucose tolerance test - borderline hypoglycemic/reactive hypoglycemia)... I also took daily preventative headache medication for 3 years as well as a variety of meds at the onset of headaches (almost daily in addition to the preventative at one point)

since going on an elimination diet for a brief period of time in early December and now being firmly gluten-free for a month, I stopped daily preventative medication and only use onset medication once or twice a week... (only once in the past 2 plus weeks, knock on wood)... but that's not to say my headaches have gone away... I still get them daily... but I think I'm tolerating them better and they fluctuate naturally in intensity throughout the day... I think for myself, I'm going to have to keep trying some different things (accupuncture, exercise, chiropractor, etc.) in addition to the diet to completely get rid of my headaches, but it seems like the nutritional aspect is helping

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Does anyone get really hot? Like burning sweating hot? I have been getting so hot after I eat, particularily after dinner that I have to go stand outside in the snow! I am 35, so maybe this is early menopause, or something like that, but it pretty wild.

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I have had night sweats, and I'm only 31. You are probably not menopausal, but gluten sensitivity can cause some adrenal and/or hormonal imbalances. These have very gradually ceased since I went gluten-free.

DavidB, I also was diagnosed with adrenal insufficiency. Sometimes I feel lightheaded when going from laying down to standing. Yes- it is possibly related. I really think the head-pounding thing is gluten- cuz it's really declined since I went gluten-free 1 month ago. What are your other symptoms of adrenal insufficiency, if you don't mind me asking?

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Posted (edited)

I have been getting this headache since 2011 (it is 2017 now). I am myself a medical doctor (a forensic specialist actually), and during my medical studies, I never studied this disease in my books. After I got this headache, I was sure, this disease is not in the medical books, so despite working in a tertiary care hospital, it never occurred to me to get advice from a traditional allopathic doctor. I visited homeopathic doctors instead, who are so sought after in India. After a long and unsatisfactory treatment, I started visiting allopathic doctors, and after much hit and trial, I finally went to neurology department of GB Pant hospital, New Delhi, where the HOD prescribed Allegra 120 mg for me daily in the morning at about 11 am. It is an antihistaminic. When I asked him to tell me the cause of it, he told me that eating is causing histamine to be liberated from somewhere - most probably my GIT - and this must be countered. He also told me that my "trigeminal-vascular axis" [whatever he meant by that] is getting activated by histamine" I started this medicine, without much hope, but it worked wonders. The headache disappeared within 7 days. Afters several months, I decided, it was no use taking it daily. So I stopped taking it. Nothing happened for one week, but after that it started happening again. The headache [after food but never at other times] is so bad, I started taking Allegra again, but it didn't go immediately. It took about one week. Since last 6 years, this has happened to me 4-5 times. The cycle is like this. I take allegra -> headache disappears (i.e. there is no headache after food) after about a week -> 6-8 months pass -> I get complacent -> stop taking drug ->headache starts within a week ->I start taking Allegra again -> headache disappears in a week.

In Oct 2013, I had a double bypass surgery. I was 57 at that time.

This time (i.e. in Mar-Apr 2017), when I stopped taking medicine, the intensity of headache was unbearable. It had increased! Sometimes I felt like committing suicide. Once I told my postgraduate student to take me to Operation theater to get me general anesthesia. He thought I was joking although I meant it. Then I asked him to give a fortwin injection. He refused that too. I thought it was the worst kind of torture, and if histamine indeed was causing it, the best way to torture someone was to inject histamine in his system. Finally I took about 8 pain killing medications, one after one during next hour. That gave me partial relief. My neurologist advised me MRI this time, while earlier he had vehemently opposed it. When I asked him why MRI this time, he told me that it was because the "character of my pain had changed" Thankfully, it came normal. One night, when I started having headache after dinner, and my wife did not allow me any more pain killing medicines (she thought those medicines were causing harm to my heart),  I cried like a child and prayed to God to help me and make me get rid of this terrible headache.

This time headache took about 10 days to disappear. So one thing is clear. As my age is advancing (I am 61 now), the headache is increasing in intensity, and it takes longer to go away, after I start Allegra.

I now intend never to stop taking Allegra, because this has come as a boon for me. Like many commentators here, my headache is concentrated on both temples, and nowhere else. During the bouts of headache, I press my both thumbs against my both temples with all my might, and that gives partial relief.

I am making this post, mainly to help my colleagues who are suffering like me. Try this and God willing, this would help you too. I have searched medical journals (especially one called "Cephalalgia", which means headache in plain English), but found very little relevant information. Virtually nothing that recommended antihistamines for this. So I thank my neurologist to recommend this off-the-book medicine for me

 

Edited by Anil
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2 hours ago, Anil said:

I have been getting this headache since 2011 (it is 2017 now). I am myself a medical doctor (a forensic specialist actually), and during my medical studies, I never studied this disease in my books. After I got this headache, I was sure, this disease is not in the medical books, so despite working in a tertiary care hospital, it never occurred to me to get advice from a traditional allopathic doctor. I visited homeopathic doctors instead, who are so sought after in India. After a long and unsatisfactory treatment, I started visiting allopathic doctors, and after much hit and trial, I finally went to neurology department of GB Pant hospital, New Delhi, where the HOD prescribed Allegra 120 mg for me daily in the morning at about 11 am. It is an antihistaminic. When I asked him to tell me the cause of it, he told me that eating is causing histamine to be liberated from somewhere - most probably my GIT - and this must be countered. He also told me that my "trigeminal-vascular axis" [whatever he meant by that] is getting activated by histamine" I started this medicine, without much hope, but it worked wonders. The headache disappeared within 7 days. Afters several months, I decided, it was no use taking it daily. So I stopped taking it. Nothing happened for one week, but after that it started happening again. The headache [after food but never at other times] is so bad, I started taking Allegra again, but it didn't go immediately. It took about one week. Since last 6 years, this has happened to me 4-5 times. The cycle is like this. I take allegra -> headache disappears (i.e. there is no headache after food) after about a week -> 6-8 months pass -> I get complacent -> stop taking drug ->headache starts within a week ->I start taking Allegra again -> headache disappears in a week.

In Oct 2013, I had a double bypass surgery. I was 57 at that time.

This time (i.e. in Mar-Apr 2017), when I stopped taking medicine, the intensity of headache was unbearable. It had increased! Sometimes I felt like committing suicide. Once I told my postgraduate student to take me to Operation theater to get me general anesthesia. He thought I was joking although I meant it. Then I asked him to give a fortwin injection. He refused that too. I thought it was the worst kind of torture, and if histamine indeed was causing it, the best way to torture someone was to inject histamine in his system. Finally I took about 8 pain killing medications, one after one during next hour. That gave me partial relief. My neurologist advised me MRI this time, while earlier he had vehemently opposed it. When I asked him why MRI this time, he told me that it was because the "character of my pain had changed" Thankfully, it came normal. One night, when I started having headache after dinner, and my wife did not allow me any more pain killing medicines (she thought those medicines were causing harm to my heart),  I cried like a child and prayed to God to help me and make me get rid of this terrible headache.

This time headache took about 10 days to disappear. So one thing is clear. As my age is advancing (I am 61 now), the headache is increasing in intensity, and it takes longer to go away, after I start Allegra.

I now intend never to stop taking Allegra, because this has come as a boon for me. Like many commentators here, my headache is concentrated on both temples, and nowhere else. During the bouts of headache, I press my both thumbs against my both temples with all my might, and that gives partial relief.

I am making this post, mainly to help my colleagues who are suffering like me. Try this and God willing, this would help you too. I have searched medical journals (especially one called "Cephalalgia", which means headache in plain English), but found very little relevant information. Virtually nothing that recommended antihistamines for this. So I thank my neurologist to recommend this off-the-book medicine for me

 

Welcome!  This thread is pretty old, so I am going to offer help.  Learn more about celiac disease testing here: 

http://www.cureceliacdisease.org/screening/

http://www.montana.edu/mountainsandminds/2012/fall/celiac.php

You might research Mast Cell Activation Syndrome/Disorder:

https://en.m.wikipedia.org/wiki/Mast_cell_activation_syndrome

I wish you well! 

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Anil, 

I understand how uncomfortable migraines can be.  I've suffered from them for many years, too.  

I found several scientific studies that suggest that Riboflavin (vitamin B 2), omega 3 fatty acids, and magnesium may help.  My migraines began to decrease in intensity and frequency after taking these supplements.  

This article explains more about these and some herbal remedies:

https://www.migrainetrust.org/living-with-migraine/treatments/supplements-and-herbs/

I sincerely hope this helps. 

Namaste

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2 hours ago, knitty kitty said:

Anil, 

I understand how uncomfortable migraines can be.  I've suffered from them for many years, too.  

I found several scientific studies that suggest that Riboflavin (vitamin B 2), omega 3 fatty acids, and magnesium may help.  My migraines began to decrease in intensity and frequency after taking these supplements.  

This article explains more about these and some herbal remedies:

https://www.migrainetrust.org/living-with-migraine/treatments/supplements-and-herbs/

I sincerely hope this helps. 

Namaste

Thanks Knitty kitty. My headaches have thankfully stopped (since about a couple of days), and I cannot stop thanking God!

I wish I never need any medicines, besides Allegra. But just in case! Can you please tell me exact dosages, and exact timings of those drugs. What about relation to food (empty stomach or after food).

Furthermore, was your character of pain same as mine, i.e. after food.

You will not believe that I never got any kind of headache anytime in my life. In fact I used to ask people what headache is (honest!).

Since last 6-7 years, the story has changed.

Regards

Anil Aggrawal

9818272307

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Anil, I'm so glad you are feeling better!  

The article suggests 600mg of magnesium (too much magnesium will cause diarrhea), 400mg of riboflavin (too much will cause tingling or flushing), and 500mg of omega 3.  

I took my supplements in divided doses with each meal.  I also take a B-Complex vitamin that has 50mg of all the B vitamins and 400mg of folate.  I take the B vitamins at breakfast and lunch because they give you lots of energy.

And I take vitamin D (1000 IU).  Mast cell activation syndrome (cycling lady mentioned it earlier) is linked to vitamin D deficiency.  

Yes, I would get headaches after I ate, especially if I ate high histamine containing foods like fermented foods (pickles, sauerkraut), citrus fruits, smoked fish, cashews, soy sauce, wine, and hard cheeses.  

Keeping a food and migraine journal may help you pinpoint foods that you have the most  trouble with. 

Best wishes on your journey to health.

Knitty Kitty

 

 

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