• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help! (new Here...)
0

6 posts in this topic

Greetings all!

My son is almost three, and has been diagnosed with a developmental delay. He doesn't talk much, and when he does, his speech is at an 18 month level. He has none of the sensory issues or repetitive motions associated with autism spectrum disorders.

Is it possible to have Celiac disease without the skin problems? Also he rarely has constipation or diarrhea.

He does, however, have painful gas and loss of tooth enamel; he's very pale and small for his age; he's an incredibly picky eater, and he's only grown an inch and a half and gained three pounds in the past year.

I'm going to ask the ped. about this at Kent's appointment in two weeks, but the responses to this query will determine how hard I push for a referral.

Is a biopsy really the only valid diagnostic tool?

Thanks,

Jen

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Jen, welcome, you have come to the right place for support and encourgement.

yes it is possible to have celiac disease without Skin problems. It is also possible to not have diarrhea or constipation, in fact some people have the disease and never have GI problems at all.

In my opinion a biopsy is not the end all be all however docs look at it as the "gold standard". The reason I say this is because I went through all the blood test, biopsies and they all came back negative. My doc NOW informs me that it takes TIME for a disease to show up in the blood or to damage the villi in the small intestines. A lot of docs will accept an improvement on a gluten-free diet as a dx too.

I was tested through Enterolab they test the stool which is more sensitive than blood and more accurate than blood. You also do not have to be on gluten. This is how my 8 year old daughter was tested too, I refused to put her through ALL the test that I went through.

Ihope your little one feels better soon! :D

0

Share this post


Link to post
Share on other sites

Yes, it is possible to have Celiac and have no Gi symptoms and no skin problems. I would definitely insist on blood tests. I personally do not think you "need" to have a biopsy to make a diagnosis. The procedure is not without risk, and false-negatives are really common. I would say have the blood work up and if any of that is positive, do the gluten free diet.

Mel

0

Share this post


Link to post
Share on other sites

Hi Jen,

if your son is very small, pale, has tooth enamel loss and painful gas then looking into celiac disease is indeed a good idea as the others have suggested. Could I also add as a suggestion that you could put the time before the ped. visit to good use by keeping a food diary? Make notes on absolutely everything your son eats and also on anything that could be related - like mood (for example, irritability), physical things (the gas, but also trips to the toilet), tiredness, etc. Is his belly distended?

I found keeping this type of diary invcredibly useful when we first put our son on a gluten-free diet, but we were striking out sort of blindly, looking for answers without really knowing where we were going (it turned out to be a really good direction, though!). A diary might give you some extra info to give your pediatrician, too.

Best,

Kaylee

0

Share this post


Link to post
Share on other sites

Hi Jen, I agree that you are looking in the right direction here! I think you have gotten some great advice, I would like to add that you might have to educate your ped about celiacs. My daughter was having extremely slow growth, but everyone assured me it could't be celiac disease. Unfortunately, she had to get extremely sick (the diarrhea did come eventually!) and lethargic before we were able to get her to the RIGHT specialist who could diagnose her. I later sent some information to our Ped who is ordering Danna Korn's book for the ped office now! Just be prepared to have to put up a fight, and don't let the Ped reassure you without doing tests! If it is celiac disease, it would be much better to find out now then to have him get really sick. Hang in there, you are doing the right thing!

Michelle

0

Share this post


Link to post
Share on other sites
Ads by Google:


Jen,

You are definately doing the right thing by seeking information regarding Celiac. Take the time to study as much as you can. Some information seems conflicting but this site is really an excellant place to start.

My daughter's blood tests came back inconclusive but her symptoms were severe. I wish I had known about Enterolab at that time because I would have gone that route instead of putting her through the biopsy. It's a personal decision I think, but the biopsy procedure was very hard on all of us and I won't do it again with any future children I'd have that may have Celiac.

Hope this helps! Again, you're on the right track!

RaeAnn

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,754
    • Total Posts
      932,210
  • Member Statistics

    • Total Members
      64,219
    • Most Online
      3,093

    Newest Member
    MalMask
    Joined
  • Popular Now

  • Topics

  • Posts

    • My question is, how long does it take for the anxiety to fade? My anxiety is out of this world. It's horrendous. I have health anxiety and it's real, and it's bad. I thought going gluten-free would help me and I think it's actually gotten worse. But I don't think that's from being gluten-free. I think having an AI disorder panicked me. I've been on the diet 6 months and it's going well for the most part, but like I said, the anxiety is no better. Does that just take a really long time?
    • Thank y'all for the info! His doc said he may not have celiac bc he doesn't look the part whatever that means I guess bc he's a big boy lol but he did the panel anyways And said he'll prob get false neg even if he has gluten issues . He also testing for b12 iron and his vit d, and inflammation. We already know his vit D is low he's been taking high amounts of D3 with magnesium for months now. Doc said could be possible MS but he had spinal tab a while back and physical test also nurve and muscle study and Nero said the results were perfect but he did have some white matter change in MRI but could be from head trauma he's had or high blood pressure or migraines . It's all too much to process sometimes. He's 26  But I would think bc his stomach issues have improved so much in the past weeks bc of going gluten free it makes me lean more towards gluten issues rather than MS wouldn't u think? 
    • Thanks  I didn't pay attention to how long ago this study came out and wasn't sure if anyone had any "recent" data or information. Plus, my retainer is a Hawley retainer and I think it's made of acrylic. I'm not sure that would even have gluten products in it. I'll keep wearing it.
    • My husband bought some McCormick's skillet sauce on Sunday and it says it's certified gluten free. We always use the gluten free seasoning and I've never had an issue. I've just noticed the last couple days that my tummy has been kinda funny and I can't really think of anything that I've eaten that would have caused it, so it may very well not be gluten. But I went to their website and checked out the ingredients and it lists worscestshire sauce as an ingredient. It also lists the ingredients in that and I don't see any malt - just distilled vinegar. But I haven't eaten worscestshire sauce since I was diagnosed because I thought it wasn't safe. But I trust McCormick and know they have a good reputation. Thoughts? Oh, and here's the link to the product.  https://www.mccormick.com/spices-and-flavors/cooking-sauces/skillet-sauces/fajita-skillet-sauce
    • First STAY on gluten til you are done testing, you need 12 weeks for blood test with it in your system and 2 weeks for hte follow up endoscope.  Second yes, if he has celiac then his intestines are damaged and he will not be getting all the nutrients his body needs, so even when off gluten you can have issues show up like this. These can be helped by supplementing I suggest a full B-vitamin regime, and magnesium myself, there are others he might be low in like iron, folate, potassium etc. You should probably see about having his levels checked and talking to a dietician about what me might need. I personally love this blend from liquid health called stress & energy and another one from them called neurological support that I take 1tbsp of each 3 times a day. Best part they are liquid so you just add them to tea, water, or juice. Another I might suggest is Doctors Best Magnesium or Natural Vitality Calm Magnesium Supplements. Doctors best is easier on the stomach while calm can cause gut issues and a laxative effect and it is suggest you start off with 1/4tsp doses and step it up from there to the full dose. I take 2-3 times the dose on this but we are all different in the levels we will need.
  • Upcoming Events