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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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I have some problems with finding a make up that won't cause a rash on my face. What brands have worked well for you?

thanks

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When I use makeup, I use Mary Kay. I do not use foundation, and I am very selective about what cleanser I use, as they use nuts, which I am allergic to. My Mary Kay dealer gave me a book listing all of the products and th ingredients, so I am able to make informed choices.

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I use MAC makeup and it is all gluten-free!

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Some products in Clinque are gluten-free, but you might also want to try Almay. Clinque is allergy tested and I ran into the problem of Wheat being added to an ingredient in one of my favorite colors of lipstick when I went to go buy more the last time. Almay is supposed to be allergy free, I've started using their foundation with some of my other Clinque products.

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Sorry, my brain isn't entirely working tonight, but I have a question I should have added when I pinned my last comment. I break out in a horrible rash from sun screen. I was just wondering if this could have something to do with having celiac disease or if my skin is just nutty and doesn't like sun screen or the sun. Does any one else have this problem?? Thanks. (And in case anyone is wondering, I use extra virgin olive oil, which works great for sun burns, and Zinc Oxide, aka Destin.)

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It could be. I get rashes sometimes from gluten products.

I use Coppertone almost everyday.

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I recently started using bare essentials mineral makeup. The commercials are totally cheesy, I know, but I got some as a gift for my birthday and I love it. They claim it has natural sunscreen in it, but I generally avoid the sun so I haven't put that to the test. I had DH on my face before going gluten-free and I've never had a reaction to this makeup.

I make my own lye soap and use it for everything including washing my hair. It doesn't dry out skin and hair the way commercial products do. The crap you buy in the store is detergent, not real soap. After switching to homemade soap, I don't need lotion for skin or conditioner for hair.

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I use Bare Minerals and have had no problems. I have given up using anything for color on my lips though, everything with color makes them break out.

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I make my own lye soap and use it for everything including washing my hair. It doesn't dry out skin and hair the way commercial products do. The crap you buy in the store is detergent, not real soap. After switching to homemade soap, I don't need lotion for skin or conditioner for hair.

That sounds cool! Can you tell us how? :D

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I have huge problems with chemical sunscreens on my face, I just can't use them, I break out in a huge red rash every single time, regardless of the brand, I can however use them on my body its above my shoulders that is really sensitive.

The only kind i can use on my face are physical blocks, zinc oxide and titanium oxide.. there are a few companies that make them with no chemical blocks... the only bad thing about physical blocks is the give your face a white sheen. Not quite like straight zinc oxide but slightly.

The one I'm using right now I love, I think I got it at Sephora... its DDF brand their Organic Sunblock spf 30. It doesn't make you too white, it works and I don't get the rash at all. Might be worth a try.

Susan

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Benefit lipsticks are all gluten free (this is the company response to me a few weeks ago). Bare Escentuals--all gluten-free (I have some of their lipsticks now, very nice). MAC is not all gluten-free. I have ingredients for all their products and have been checking the past fews months, as I have a lot of their makeup. MAC lip conditioner has wheat germ oil in it, and one of their kinds of lipsticks also has a wheat product in it. I can look at my notes and let you know. I believe the majority of Stila lipsticks are gluten-free too, can't tell you exact types yet though. I am still waiting to hear from Clinique. Thanks!

:D

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Not alot of Clinique is. The email response I got from them was not impressing. It was for a few brands including clinique. I had lipstick by them and called them and I could not get a simple yes or no...it was all well they might be gluten free. They sent me on a wild goose chase and gave me # after #..I was not impressed.

Love Bare Escentuals!

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I use Lancome which is gluten free, but I still read the ingredients each time I buy anything new as you never know when they might change their formula. It is pricey though! I researched Estee Lauder and they give you a huge list with all these ingredients that can harbour gluten. They say to read their ingredients and compare it to the list. They own Bobbie Brown, MAC and Clinique and gave me the same list and answer for them. The list is good to have when you buy anything but takes forever to read and compare.

As for sunscreen, I use Banana Boat with no problems.

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Yea,I got that nice long list too <_< ...I wish they could just tell me which ones are and are not...I just hung those brands up.

As far as sunscreen...Banana Boat and Coppertone are good

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MAC's amplified cream lipstick has wheat germ oil in it--not gluten-free.

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Hi all,

Just wondering, do you think foundation/base make-up with gluten in it could give you headaches? I get headaches every day and don't know why. I get a lot of pressure around my eyes and forehead. I could be dreaming this, but it seems worse ater I put make up on.

I don't know if my Clinique foundation is gluten free or not, I'm waiting to hear from them. Also, does anyone know anything about Gucci make up? I sure hope it's gluten free because it was wickedly expensive!!!

S

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Hi all,

Just wondering, do you think foundation/base make-up with gluten in it could give you headaches? I get headaches every day and don't know why. I get a lot of pressure around my eyes and forehead. I could be dreaming this, but it seems worse ater I put make up on.

S

As far as I know, headaches are not an "official" symptom of celiac disease. But I do believe that gluten contributes to getting headaches because since going gluten-free mine have almost totally gone away. I used to get really bad ones a couple times a week. So, if the gluten in your makeup is getting into your system, I would think that it could affect this. I know that even though you don't eat your makeup it does constantly get on your hands and then into your mouth through food, etc. I don't know if the brands you asked about are gluten-free though.

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I'm looking for a safe gluten-free liquid foundation.

And I'm not interesed in the Bare Essentials powers, I need liquid.

Any ideas?

I'm off to the store with my magnifying glass... (giggle)

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    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
    • I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share.  There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough to make it so that they are processed differently in your guy. Bad casein is actually broken down into a casomorphin, which is an opioid peptide. That does not mean that milk gets you high, or is as addictive as heroin, or anything like that, it just means that it can interact with opioid receptors (which the gut has a bunch of). It's worth noting that opioids cause constipation due to their interaction with the opioid receptors in the gut, and that a lot of people feel like cheese and dairy slow things down, but any connection between the two is pure speculation on my part at this point.  Now here's where things get weird. The vast majority of milk cows in the western world are derived from Holstein-like breeds, meaning black and white cows. In a few select places, you'll see farms that use Jersey-type cows, or brown cows (Jersey cows produce less milk than Holsteins, but many connoisseurs feel it's a higher quality milk, particularly for cheese).  Holstein-like cows have A1 and A2 casein (bad and good), however, Jersey-type cows only have A2 (good casein), unless their genetic line involved a Holstein somewhere in the past, which does happen.  A company in New Zealand figured out how to test their cows for these two genes, and selected their herd down to cows that specifically produce ONLY A2 (good) casein. You might have seen it in the store, it's called A2 milk. Some people have had a lot of luck with this milk, though it still doesn't solve the problem of cheese.  I have suspected, due to trial and error and a few accidental exposures, that I have a problem with A1 casein, but not A2. In line with this: I am able to eat sheep and goat dairy without any difficulty, so at least I can still enjoy those cheeses! I am also fortunate because I'm apparently not too sensitive, as I can still eat cow-milk butter. The process of making butter removes *most* (read: enough for me) of the casein.  However, if I eat cow cheese or a baked good with milk, I get really sick. It's a much faster reaction than if I get glutened. Within minutes I'm dizzy and tired and my limbs are heavy. I have to sleep for a couple of hours, and then, over the next couple of days, I'm vulnerable to moodiness and muscles spasms and stomach upset just as though I'd been glutened (though the brain fog isn't as bad). I actually haven't tried A2 milk yet, mostly due to lack of availability (and motivation, I don't miss milk, I miss CHEESE). However, last year, when I was getting ready to go on a trip to Italy, I had a thought. Once, in the recent past, when I'd been testing dairy, I'd had a slice of parmesan cheese. Miracle of miracles, I was fine. I didn't feel a thing! I was so excited that I ran out and got some brie to eat as a snack. That did not go so well... Turns out parmigiano reggiano is made from the milk of the Reggiana variety of cow which is, you guessed it, a brown cow (they say red). I did a little more research and found that dairies in Italy predominantly use brown cows. So I decided to try something. As some of you may know, Italy is something of a haven for celiacs. It's one of the most gluten-free friendly places I've ever been. You can say "senza glutine" in the smallest little town and they don't even bat their eyelashes. You can buy gluten free foods in the pharmacy because they're considered a MEDICAL NECESSITY. If travelling-while-celiac freaks you out, go to Italy. Check out the website for the AIC (Italy's Celiac society), find some accredited restaurants, and GO NUTS. While I was there, I decided to see if I could eat the dairy. I could.  Friends, I ate gelato Every. Single. Night. after that. It was amazing. Between the dairy being safe for me and the preponderance of gluten free options, it was almost like I didn't have dietary restrictions. It was heaven. I want to go back and never leave.  So that's my story. Almost too crazy to believe.  TL;DR: Black and white cows make me sick, brown cows are my friends.
    • I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal.  http://www.gastrojournal.org/article/S0016-5085(17)36352-7/pdf The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind that I can't have gluten, so any additional testing would be purely academic. But like I said, I'm a scientist. I can't help myself. 
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