• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
hungryforlife

So New To This Testing

Rate this topic

Recommended Posts

Hi.

I have been lurking for a while why I waited for blood test results. They came today, finally, after two weeks. Long story. Dr's a Jerk!

He would only test my IGG/IGA... then told me that following a gluten free diet was impossible, and to follow up with the gastroenterologist.

My results were:

IgG - 3 where less then 10 is normal

IgA - 4 where normal range is -11 to 17. The nurse who gave me the results said this is just hanging out there at a 4, but didnt mean anything without the AGG.

I was just wondering if that is in the normal range (is there a normal range?) and/or should I continue to seek the full panel, then endo....etc???

Thank you for your support on this group....I've learned lots already! :unsure:

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi--I'm sorry that I can't help you with the blood test results--I never had those--only the biopsy. I do want to say that the gluten-free diet is far from impossible. If you've been reading here for a while, I'm sure you have seen the wonderful things it can do for people with gluten intolerance--literally save our lives. There are lots of naturally gluten-free foods, as well as a ton of products and mixes. You can search here for product ideas and recipes. I'm sure someone who knows about the tests will weigh in soon.

Share this post


Link to post
Share on other sites
Guest nini

I would reccommend the full panel

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

but you have to be eating gluten for them to have any chance of being accurate... The two tests at minimum you should have are the EMA and the tTG... if you cannot get a Dr. to support you on getting these tests done, I would suggest trying the diet. It really is NOT impossible and there are so many of us that can help you find good food to eat while you are figuring out the diet for yourself.

A positive dietary response is just as valid a diagnostic tool as the blood tests and biopsy. And if you suspect you have a gluten intolerance, the diet is a much cheaper route to go. And you don't need a Dr.s permission to go on the diet.

Share this post


Link to post
Share on other sites

I agree with Nisla. I would either 1)insist that the doctor take a more proactive approach in your diagnosis or 2)find a different doctor. There are a multitude of physicians out there now -- it's a buyer's market!!

She's also right in that, you don't need the doctor's permission to lead a gluten-free lifestyle. Just because he/she is a jerk, don't base your healthcare needs on an answer that may be, in fact, wrong.

Just chiming in there . . . . Lynne

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you for replying. I agree that I do not need a doctor's diagnosis to go gluten free. That night after I posted here I spoke with my husband and we decided that we were going to convert our home to gluten free. ( I asked who I was getting a diagnosis for, me or others, and couldnt honestly answer me...., sorta like I needed confirmation to make others believe that my symptoms have been real.) Anyway, Im sure a few of you know that feeling?

I've always had many - many of the symptoms described for GI, but was told it was stress, ibs, anxiety...etc... I know they say that oats are gluten-free, but I did oatmeal virtually everyday for the past two and a half years and in pictures you can see a dramatic change in my appearance. Drawn, pale face with dark circles. This is when I decided to "find out" what was really wrong. Then I found out that my older brother was diagnosed with Celiac Sprue several years ago. Sad really. I stopped oats 2 weeks ago and any visible gluten a week ago, and already I can tell a difference. I do not have that pressure in my head, the fogginess, or the extreme tiredness - or any stomach aliments! nausea! dizziness! (which was happening daily.) Also I have not taken any antacids or acid reducers, have not needed them.

I was just wondering about those numbers? Not that it matters? I have an appointment for followup with a gastro, and honestly do not want to start eating grains again. I, like many of you, have my answer just in a week without grain. Thank you again for taking the time to answer.

May I ask another question? When you are substituting gluten-free flour for wheat flour, does it matter if you are substituting for whole wheat flour or white flour? I have an awesome carrot cake muffin recipe, that I thought was part of my healthy whole wheat diet, that I would like to make gluten-free and freeze for breakfasts? Breakfast ideas are the hardest for me - I miss my oatmeal!

Sorry for rambling.

Share this post


Link to post
Share on other sites
Guest nini

if you miss your oatmeal that much, you may like Barkat's porridge. I love it. I can flavor it with any flavor I want... add fruit preserves to it, sugar and cinnamon, peaches and cream... on and on, it's really yummy and so much better than oatmeal.

Share this post


Link to post
Share on other sites


Ads by Google:


Thanks Nini...

I liked my oatmeal just with a "bit" of sugar sprinkled on top. I will have to try the porridge. Is it something you can buy at a grocery, or does it need to be ordered? My Natural store didn't have it yesterday. Anyway, I've been eating Gorrilla Munch instead, it is good, but sweet. My son, who is four, loves it! and the Peanut Butter one!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,400
    • Total Posts
      941,081
  • Member Statistics

    • Total Members
      66,424
    • Most Online
      3,093

    Newest Member
    Full Essay Help
    Joined
  • Popular Now

  • Topics

  • Posts

    • Anybody have raised liver enzymes just before diagnosis. All my liver tests where fine except my ast level was very slightly raised. GP said it was of no concequence and is quite typical with celiacs before going gluten free. I have had celiacs now confirmed by blood test and biopsies. Just wondering if this is quite a normal thing.
    • My only symptom was slight nausea that lasted all day. I had a lot of mashed potato soup as it was easy on my insides (the mashed potatoes dissolve in the chicken broth). And I had smaller meals 6x per day. Easier on my insides to avoid very solid food. The nausea lessened and went mostly away in the first six months.
    • I still vote on removing dairy completely for 60 days. This could help in many ways Probiotics are helpful normally later on, but initially if she has damaged or leaky gut it could make the issues much worse. It works for some makes stuff worse for others. I keep going back to the dairy as it is common to cause a feeling of bloat, fullness, inflammation, leaky gut issues, etc. Try making or using nut based milks, heck one of my favorites and simplest ways is to blend a few tbsp of nut butter into water to make a nu milk drink. Your doing smoothies? Try adding 1/4-1/2 cup of almond butter to a water base blend  it first to get your starter base milk.  Adds a ton of good easy to digest calories if you use a nut butter, I love doing this with walnut butter, try it with her favorite nut butters.  Kite Hill makes some good heavy almond based cheeses you can find in most stores. I have some coconut milk blended soup recipes if you wish make something easy to drink and get in some good fats. Have a butternut curry, pumpkin curry, and one tI even made that taste like pumpkin pie.

      I posted a recipe the other day for a avocado icing, >.> You could make something up like this and she can just eat it by the spoon.
    • Hi, sorry to suggest removing yet another thing from the poor girl, but have you tried going completely milk free. So not just limiting lactose, but trialling a period with absolutely no dairy whatsoever?  Reason being, lactose intolerance is only one of the two possible milk issues, the other is casein intolerance. I spent a long time allowing myself small amounts if milk on basis that my stomach was ok, only to realise my issue was the casein not the lactose. That means complete avoidance.  May not be that, but a trial of completely avoiding it (substituting soya or almond based alternatives) would at least exclude it?  Best of luck to you both from all the way across the Atlantic matt    
    • Awol touched on what I thought it could be, night numbness and cramps is often a magnesium issue, Also with gluten ataxia nephropathy is common causing numbness, tingling, or control loss. As you mention a constant I am thinking perhaps more of a deficiency, Raven goes on another topic, I had a issue in my shoulder messing up and pain and numbness in my back/shoulder with numbness in my arm a while back from some muscle and nerve issues and had to have it worked on by a massage therapist, seems my muscles had healed wrong after working out and caused some issues, she was getting rolling, bands and large knots out of the area around my shoulder blade and neck for over 30mins.  
  • Upcoming Events