• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

If The Celiac Panel Shows You Don't Have The Antibody Does That Mean You Don't Have Celiac Disease?
0

9 posts in this topic

Recommended Posts

honedo    0

Hi all,

I first found out I have an allegy to wheat with a IgE blood test then a nurse pract. ordered more blood tests, I think a Celiac Panel. She called me and said I don't have the antibody for celiac so I don't have the disease but now the GI doctor wants to do an endoscopy to know for sure. He told me to go off the gluten free diet, so I have. My only previous symptoms were bloating and more recently I've been experiencing muscle spasms and back pain, which did not go away even though i was on the diet for 3 weeks. I thought the endoscopy might be a good idea even if I don't have Celiac since its a camera and he might see any other problems going on? Does that make sense? Or should I be questioning whether to have this done at all?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Guest nini   
Guest nini

no.

you need to find out exactly what tests were run, you need to know that the gluten free diet, even for three weeks, will affect the results of your biopsy. So, regardless of what the biopsy finds, you should consider staying gluten free as the possibility of false negative test results are highly possible. However, if you get a positive, It's positive.

back to what tests did they run. There is a specific panel of tests that must be run at minimum, to screen for Celiac.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

the bare minimum they should have done is the EMA and the tTG... if they didn't at least do those two tests, and show you the results, they can't tell you that you don't have it.

Share this post


Link to post
Share on other sites
4tomorrow    0

I had negative blood results, but the GI saw flattening in my small intestine during my endo. My biopsy was inconclusive.

I had enterolab testing and I have Gluten Sensitivity. Not full blown Celiac but I still have to follow the same diet.

Share this post


Link to post
Share on other sites
tarnalberry    314

no, blood tests are not conclusive. if there isn't enough damage for the antibodies produced in the gut to make it into the bloodstream, you won't get a positive blood test result.

Share this post


Link to post
Share on other sites
2Boys4Me    3
I had negative blood results, but the GI saw flattening in my small intestine during my endo. My biopsy was inconclusive.

I thought and endoscopy and biopsy are kind of the same. Isn't the procedure an endoscopy and the samples they take are the biopsy :unsure: ? I don't get it. :blink:

Share this post


Link to post
Share on other sites
Ads by Google:


Lisa    457

If the GI Dr. did an endo and he/she saw damage to the villi he/she should have taken 6-8 samples to be tested. My guess that he/she only took a few. If he/she saw damage, then most likely you have Celica.

Share this post


Link to post
Share on other sites
honedo    0

Thanks all for the info....I'm confused though, nini, I thought you had to consume gluten before the endoscopy so it will show positive results for celiac. If I'm gluten free won't I take a risk having negative results because of the diet?

Share this post


Link to post
Share on other sites


Ads by Google:


Guest nini   
Guest nini
Thanks all for the info....I'm confused though, nini, I thought you had to consume gluten before the endoscopy so it will show positive results for celiac. If I'm gluten free won't I take a risk having negative results because of the diet?

um yes, I guess I wasn't clear in my explanation... you have to be consuming gluten for the endoscope to be accurate, BUT you said you had already been gluten free for 3 weeks, SO, I was just reminding you that even if you eat a ton of gluten leading up to the endoscope, the fact that you were gluten free for 3 weeks theoretically "could" affect the test results. Realistically IF there is damage it won't go away in 3 weeks, but you never know. The human body is amazing in it's ability to heal itself and Dr.s are reluctant to dx Celiac unless they see full fledged villous atrophy.

All I was saying is if after your biopsy you are still left with inconclusive results, please consider giving the gluten free diet a good effort to see if it improves your health issues. Ultimately a positive dietary response to a gluten free diet is the best indicator.

Share this post


Link to post
Share on other sites
CMCM    3

I had a blood test (admittedly it didn't appear to do all the necessary tests) in 2001 which came back totally negative, very low results. At the time, and for at least 20 years prior to that, I had been plagued with digestive and other symptoms, including back and muscle aches and asthma type symptoms. So from that test, the doctor grandly pronounced me non-celiac. My symptoms got worse between 2001 and now, and a recent Enterolab stool test revealed a totally different picture. The test showed antibodies and auto-immune reactions, but no malabsorption (which doesn't necessarily mean there is no damage), and I have 2 genes (celiac plus gluten sensitivity). Since I have long-term ongoing symptoms, I should not eat gluten. I personally do not feel the need of undergoing the physical stress and expense of a biopsy. My doctors are relatively useless anyway, since they don't know squat about celiac disease. Even if I ignore the possible health consequences of continuing to eat gluten, the fact is, I am really sick and tired of dealing with these digestive consequences so what I need to do is obvious: stop eating gluten. Following the diet is really important for putting things into perspective.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,916
    • Total Posts
      938,665
  • Member Statistics

    • Total Members
      65,841
    • Most Online
      3,093

    Newest Member
    Jon baker
    Joined
  • Popular Now

  • Topics

  • Posts

    • ....OK ADMIN just delete this one just another slap in the face article. " After demand from the neighborhood, they will soon add gluten-free options, though these crepes will be prepared on the same griddle, so they're intended for those with mild celiac disease or those who just prefer to eat gluten-free. " 

      Sorry Numskull but "mild celiac" FFS there is no such thing, bloody residue smaller then crumbs and you get months of heighten antibodies an damage. This is very misleading and can lead to people newly diagnosed hurting themselves. NOW if you have no problem with gluten free oats, you can make a crepe like batter very easy, it is a bit fluffier like a hybrid between pancakes and crepes but try this one.
      I used to use gluten-free Harvest oat flour to make these but as I have adverse reactions to any kind of oats I gave this up. 50g Oat Flour
      1/4 tsp Salt
      1/2 tsp Cinnamon
      1 tbsp Maple syrup
      1/2 cup water
      2 tbsp applesauce
      Mix all ingredients togehter then let sit for 10mins for the it to thicken up before pouring in the pan. I used to cook them like pancakes but can be used for crepes due to the texture.
    • I’m so sorry you feel you must steal, that must be awful. The only thing I might consider is that it can become a habit, especially the self-justification part. Not that I'm recommending it right now for you , but with a ketogenic diet, the body goes into ketosis, not ketoacidosis, which is something that people with Type I diabetes can go into: in addition to their bodies burning fat, they also have insanely high levels of glucose in their blood. There’s no risk of ketoacidosis on a ketogenic diet, and in fact in the old days before insulin, one of the remedies was a ketogenic diet. It’s still often used for seizures as well. Plumbago
    • Hi Mary Anne, They take the skin biopsy from adjacent to a "lesion".  There are many possible symptoms of celiac disease.  DH is the skin rash symptom of celiac disease. It can take a year for itching to go away from what I've read.  Reducing iodine intake during symptoms may help reduce their duration.  You have to be gluten-free for symptoms to subside as DH is an immune reaction caused by celiac disease. A good place top start looking for knowledgable doctors is in a local support group.    
    • ... these crepes will be prepared on the same griddle, so they're intended for those with mild celiac disease or those who just prefer to eat gluten-free. View the full article
    • I have said since diagnosis that there are two places that I never want to be in for fear I would die from what they would feed me. One is a hospital and the other is jail. Fresh or frozen fruits, veggies, fresh meats, eggs, cheeses etc are also the same proce for us as for anyone who isn't celiac. The specialty gluten free baked goods and convience foods are more expensive but we should be eating minimal amounts of those to begin with anyway. I also have a very limited income so I go with eggs in many forms and Thai Kitchen rice noodles with various veggies and canned beans like Garbanzo (Chichi) for protein. Some schools have food banks for students. Check and see if your school has one. There may not be a lot you can eat there but there will be something. Most cities have a food bank or Catholic Charities (you don't have to be Catholic to use their services) that can help.  My local one is good about letting me know when they have safe foods. They also get a lot of fresh produce this time of year. Have you checked into getting food stamps? You can just sign up for those but not the other services and the process is easier if you are not applying for cash help. You mention having your roommates using your pans and silverware and then having to buy new. A good cleaning on the silverware is enough to remove any gluten residues and if the pans are in good condition they will be fine after washing also. You might want to keep your food preperation items in a bin in your room and just wash and put them away after use then you will know only you are using your plates, pans, etc. I realize how important your education is and the need to finish but have you considered  temporarily suspending your studies until your health has improved? I had to do that with only 3 credit hours left in my degree programs. My grades were suffering and it was important to me to keep my high GPA. Talk to your advisor and see if this might be something you can arrange.  If you are in student housing with your roommates also talk to your advisor about the possibility of a move to better quarters. One of my children was put in senior housing as a freshmen to accomodate her need for her own cooking space. Wouldn't hurt to ask. I hope things improve for you soon. Everything about dealing with celiac can be overwhelming for a bit but hopefully things will improve for you soon.
  • Upcoming Events