• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
the.mayor

Do I Have Celiac?

Rate this topic

Recommended Posts

Please forgive me if I am in the wrong place, as I am a newbie, to the very helpful forum.

Short history and testing:

Date 1955-1964

Age 12-21 chronic ulcerative colitis, blood transfusions, muscelose (sp) predinosone

Date 1964

Total colectomy, ileostomy

Date 1965

Rectal excision

Date 1965 - 1991

GOOD HEALTH

Date 1991-present

Cardiac Artery Disease numerous balloon angioplasties and stents

1993

Diabets type 2 - present undercontrol with meds

1994

Gall Bladder removal

1995 to present

Atypical TriGeminal Neuralgia now under control, treated with opiod large doses

Presently

CAT scan indicated SBO due to adhesions and twisted small bowel

Emergency exploratory surgery around Feb 2 surgery removed adhesions, a hernia

CAT scan indicates some inflamation of illium

Blood work indicates gluten/celiac?

Symptoms: now include the typical gluten sympton. Even though I am on heavy doses of

oxcontin, does this have gluten in it?

Intestinal bloating, severe abdominal cramps, can't sleep lying down very often.

bad nausea, some vomiting.

Does the above indicate gluten? The PAIN is brutal and the nausea keeps me from eating.

Can gluten cause these awfull cramp and body wasting wasting away.

I am to see my diabetes MD today. He has said to see a nutritionist.

Is there an difference between a nutritionist and nutrationalist? Which is better?

What is best for cramping?

What foods should I start with?

Will be seeing an allergist on Tuesday any specific tests he should administer?

Any advice you can give, I will be forever grateful. I am barely hanging on.

John

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

Share this post


Link to post
Share on other sites

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

Share this post


Link to post
Share on other sites
Whoa! I sure hope you have really competenct drs. The only thing I can add is have you ever done the totally gluten free diet? Some sufferers here have reported success on a carb specific diet. I don't know the details of that one, but if you were to type diet in the search, you might find it. When I would get glutened, I found the best source of comfort was a heating pad. Basic, but it helps. Chamomile tea and ginger (like in ginger ale or let the soda go flat if you don't want the bubbles) and also peppermint are good for upset stomachs. I'm so sorry to hear of your health problems; I pray your doctors can start you on the road to good health.

Annette

How long did it take to get things under control?

Does lactose intolerance go hand in hand with celiac?

Thanks for the tips, especially the tea and ginger ale. I do have some ginger tea, which has not helped very much. I take it coffee is a no no, even instant?

John

John, I'm so sorry for all you've had to go through. You say that your blood tests indicate Celiac--are you on the gluten-free diet yet? You should be completely gluten-free, including food, personal care products, meds, etc. What are you eating now? That would be helpful to know. When I was at my sickest, I ate Cream of Rice hot cereal. Bananas are also good for a queasy stomach. It can be hard to even eat the right things when you are nauseous, but sometimes a bit of bland food actually helps. Gluten can cause the symptoms you are having--hopefully the nutritionist is well versed on Celiac and can get you on the right dietary track. I'm glad you found us --the folks here are very kind and helpful. Please keep in touch--good luck with your appts.

I am not eating very much, losing about a pound every 2 days. I am pretty underweight right now, 6 foot 3 inches, weight is 159.

I can eat biled rice, very small portions. I have tried some banana smoothies.

Not ware of personal care products being a problem. I am using Dial Soap, Head and S Shampoo, gel shaving cream or electric razor, Aqua Fresh toothpaste.

Thanks so much for sharing ith me.

John

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,932
    • Total Posts
      943,580
  • Member Statistics

    • Total Members
      67,241
    • Most Online
      3,093

    Newest Member
    Deena Barnes
    Joined
  • Popular Now

  • Topics

  • Posts

    • In Austin, Wildwood Bakehouse and Wilder Wood Restaurant are totally gluten free.  I had the chicken fried steak and gravy and onion rings!!!  Awesome!!!  
    • Hi there I have this exact same thing.. however I don’t have celiac that I know of.. I found this when google searching for what the heck is wrong with my face.  I was wondering if you ever found out.. or if it just went away. Thanks
    • I have read the newbie 101 and have been careful about reading labels. I'm the only one that's gluten free in my household, so they could be contaminating me. I was eating gluten for 6 weeks after my blood test because it took that long to get an official diagnosis and my GP told me to still be eating it for the tests to be accurate. It was probably too soon to retest, but the test was accidentally ordered by the lab. I have been having an increase in joint pain over the last couple months and my rheumatologist ordered lab work. The lab saw the celiac panel had been ordered, but didn't see results so they added it on because they thought it still needed done.  My gut issues are starting to get better, but I'm thinking the joint pain might have been from the celiacs because all of the rheumatoid tests came back normal for the first time in twenty years.
    • Hi and Welcome to the Forum.  I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya.  People make a lot of foolish decisions in the world and it does not mean that you should do it too.  Also, many people are gluten free for a lot of reasons that aren't celiac. One of my best friends has gluten sensitivity but not celiac.  He eats a lot of food that I won't touch due to possible cross contamination which he doesn't worry about too much.  Be true to yourself and keep your self healthy.  It is so hard, but it's better than getting sick! I hate not being able to partake in yummy food at parties, but I have learned what junk food I can eat.  I will make sure to buy some tortilla chips or Fritos for picnics.  I freeze gluten-free cupcakes to eat when we celebrate birthday parties (I can just take one out of the freezer and go).  I make sure to take a dish to share to potlucks.  I ask permission at restaurants and parties to bring my own food - no one has ever said no, and when there is a time to celebrate, I splurge on something I really like.  Fortunately, there are a lot of gluten-free foods that I really like. Do i miss pizza and really good burger? YES! And sometimes, I still feel awkward, but life is so much more than food.
    • If Small was going to get rid of anything in a takeaway meal, it would be the bread with all its dreaded gluten. However, many scientists and nutritionists argue gluten is not a problem for people who do not have celiac disease or who are not "gluten-sensitive". Massey University senior lecturer in food ... View the full article
  • Upcoming Events