• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Chantalle

To Bluebird (lynn) P.s. Thanks To All For Response

Rate this topic

Recommended Posts

I'm very new here (2nd post). I'm not too sure about everything yet. But I have noticed "reflux" coming up often enough. My son has acid reflux disease and takes pretty high doses of meds normally for adults. He's almost 13 but was diagnosed at 10. He's been through a lot of tests and is back at Children's GI clinic again to see doc and doc wants him to see the psychologist on staff (she knows he has bad reflux but says she feels it's exacerbated by stress). I could go on and on here - but I won't! I guess what I'm getting at is: if I do end up having celiac (I'm going to doc this Friday) is reflux as bad as he has a symptom of him having possible celiac? I wonder....I know you may not know, but the fact your son has reflux - well, I though you might know the connection there.

I've been frustrated all my life over this. I believe that I have lived this way for so many years (since 3) that I just don't know what it feels like to be "normal". I suppose feeling ill so often is normal for me. Then again, it could still just be IBS and I'd be back at square one again. But I know how to live that way anyhow so not so scary for me! Biggest problem for me is that I never have complained to my doctor's about the IBS because I've had it so long it's just a way of life for me. This will pretty much come out of the blue for this doctor (been seeing her for 8 yrs.). I've had the depression too - not severe, but general depression - and hated taking the drugs so now take a low dose one for severe PMS (I'll never go off that - saved my life!! and my husband's!! lol).

At least if I do have celiac in the end I'll have a place to come to for some great help!

Chantalle

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Your son very well could be celiac, especially if you are. Acid reflux like his could be his body trying to digest the gluten. I never complained about only doing a #2 once every 10 days because I thought it was normal for me. Every body is different, after all! I did complain about the pms and cramps, the mood swings were destroying my marriage and the cramps were debilitating! All I got for it was Midol and Pamprin, neither of which really helped. Now that I am glutenfree, I potty almost every day, My midsection does not hurt, and I do not have such severe mood swings. I never had diarrhea or wasting away, but I do still have some joint pain (doc says I have arthritis now). Talk to your sons GI doc about testing him for celiac and gluten intolerance. If you can't get testing, try the gluten-free diet. It is better than the bland diets my husband had to be on!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,936
    • Total Posts
      943,593
  • Member Statistics

    • Total Members
      67,256
    • Most Online
      3,093

    Newest Member
    Gemma H
    Joined
  • Popular Now

  • Topics

  • Posts

    • Welcome!   Did you get skin biopsies?  Some celiacs are seronegative.  They might not even have intestinal damage.  Instead most of  the antibodies (and damage)  are in the skin.  I do not have DH, but suggest you scroll though the DK section and get tips.  Specifically on how to coach a derm properly on how to biopsy for DH (or find a celiac-savvy derm).   It is NOT the same for other rashes from what I have read.  I do not think a person with a gluten sensitivity can have DH because DH is celiac disease.  It just presents differently.   https://www.allergicliving.com/2017/07/11/celiac-thats-skin-deep-the-mysterious-rash-sparked-by-gluten/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ I hope you find relief!  
    • Adding the Frito Lay list that was updated a week or so ago
      http://origin-www.fritolay.com/snacks/special-dietary-needs/us-gluten-free-products-and-products-not-containing-gluten-ingredients.htm
    • Thanks - this was my question, also very confused by conflicting advice. Think I may reschedule blood test, at present in 10 days, as although not gluten free, have eaten very little; two casserole mixes in 4 weeks, Trying to lose weight. Will have an endoscopy for Barretts oesophagus in April so makes sense to get the timing right. Think its unlikely to be positive but in a way hope it is! Ill for about a year now and the only bad blood result is folic acid, very deficient in spite of a very healthy diet, duodenum was inflamed at last endoscopy 3 years ago. I see two doctors as both are part time. First blood test was in Feb , second in Nov by which folate level had improved but still low. Both doctors have now mentioned celiac disease. Take Levothyroxine 150 mcg and TSH normal. Symptoms are more like anemia but no megoblastic anemia or iron deficient showed up. ECG normal Doc is also doing a thyroid panel, hopefully with T3 but haven't been thyroid tired; definitely more like anemia Was fine on Levothyroxine for 4 years. Apologies for rambling!
    • You should hit report when you see this nonsense  
    • I used mine for the first three years I was diagnosed.  I used it for several reason, one it protects me legally from a company letting me go if I exceed my sick/personal time off.  Some companies even have a max of unpaid time you can take, but the FMLA allows me to use that as well and not be affected.     I didn't have a manager that was treating me bad or anything like that, but companies have rules that change all the time and I didn't want to become subject to that.   Also due to privacy acts, my manager received a letter with the FMLA dates and approval and I then never had to give any details about my condition or disease if I choose not to.     Just keep in mind that because you have FMLA does not mean they have to pay you for time off it just protects you to not be penalized for taking time off.       Now that I have my symptoms and condition under control I let my FMLA expire and have not had to use it in years. 
  • Upcoming Events