This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
Subscribe to FREE Celiac.com email alerts
What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
I think it depends on how severe the damage was. I know from reading other accounts that it can take months to "heal". My two year old had immediate improvement (like two weeks), but we were very lucky to have our pediatrition catch the celiac quickly (within two months of noticible symptoms). It sounds like you are doing an awesome job keeping him safe. The only things I can think of off the top of my head are play doh and shampoo. Those were two things we were warned about by our nutritionist based on age. Play doh is made with wheat and shampoo poses an issue because they don't always keep their mouths closed. Maybe check lotions, soaps, toothpastes, lip balm? It's crazy where gluten is hidden in things like art supplies too. Our guy is now three but still puts hands/toys in his mouth frequently enough to cause worry, so we carry baby wipes in the car and use constantly. Hand sanitizer (in my opinion based on similar peanut protein studies) doesn't kill the gluten protein. If he attends daycare or preschool I'd check there for sensory tables full of oats, play doh, art supplies, etc. If you feel comfortable that there's not cross contamination, I'd say he just needs more time to keep healing. We had our little man's celiac panel ran again after three months and then another six months gluten free. His ttg levels drastically improved each time. Good luck!! I hope he feels better soon; it's misery watching your kiddo feel sick!
My 4 year old son was diagnosed with celiac nearly 2 months ago (confirmed by endoscopy). He has been off gluten for at least 7 weeks. We have made our entire house/kitchen gluten free, I pack his lunch, snacks, etc. I don't know how we could be any more careful. He's also off lactose. The severe pain and sleepless night have definitely improved but he still has daily abdominal pain, with fairly bad pain a few times per week. Is this typical? I feel terrible for him and am hoping he just needs more time to heal? Curious how long it took for your children to feel better?!
I am trying to figure out what is happening to me as well.
Here are my symptoms:
As long as I can remember I have had stomachaches. Severe constipation (no bowel movements for anywhere from 2-3 weeks).
Then Sept. 2015 I had to have my gallbladder removed and that is when the real symptoms began:
-Anxiety increased significantly
-My bowel movements became more regular but varying to 3 to 4 times a day to once every few days. Frequent stomach pain and nausea
-head to toe hives, usually my back starts itching first
-Dental health fell apart
-feet swell significantly when I eat wheat (usually only eat wheat)
-Regardless of change in diet and increased exercise I continued to gain weight. Really the only time I can lose weight is when I basically eat once a day.
I had my doctor check my thyroid and for celiacs.
I just got my test results back and all blood work looks normal except low hdl
She tested my IgG and IgA, they look normal (these are the only tests that were given so far unless other tests have not come back yet) Is there more I need to ask her to do? I have gone back and forth with eating gluten and did cut it back prior to the testing but it was not obsolete (I ate it for the last few days prior to taking the test). I notice a huge difference in the pain when I go gluten free, any advice for someone just trying to figure out what is making me miserable?
I believe it is ~$20-25 CAD for the standard jar (600g) at Whole Foods here, so more expensive. This is however, a bargain compared to most other protein powders I see (upwards of $50 for similar amounts!). Packaged food, animal products and alcohol in Canada are stupid expensive, especially if you're off the "main line" (ie. Great Lakes/St Lawrence corridor) as I am. I'm probably a little less affected by this as I never did purchase much packaged food even pre-diagnosis... and now I buy almost none. Luckily in-season veggies are super cheap in most of Canada except the far north, where veggies don't really grow haha.
So I'm still learning. We buy harvest land ground turkey because I like their company, but today in the ingredients I saw vinegar. It doesn't say on the package if it's gluten free. So I went ahead and bought a different brand that doesn't list vinegar as an ingredient, just rosemary extract.
I know that not all vinegar is "bad" for us. Has anyone contacted their company to know if their vinegar is derived from grains? Their turkey has never bothered me, but I was a silent celiac before I was diagnosed so I'm afraid that I'll never know for sure if I'm getting gluten. That's a whole other topic....haha