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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Swollen Face
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17 posts in this topic

I was just wondering if its just me or has anyone ever had their body swell (besides stomach) because of gluten? I think I was glutened last night but I don't have any other symtoms besides the fact that the left side of my face is swollen. Any ideas? :o

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are you possibly allergic to something else?

I mean, yeah, it's possible it could be from gluten, stranger things have happened.

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Did you eat nuts, peanuts, unusual fruit, or anything different from what you usually eat?

I get a swollen face from eating pineapple...I'm allergic to the peel.

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I get swollen hands and face, especially cheeks and around the eyes. I thought I was just weird, though maybe it is an allergy, too. Even when the D was so bad, I would have a swollen face. I'm still pretty new at this and keep getting gluten accidently. Caramel color seems to be a big one for me. Take care :)

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When I have a gluten reaction, I get a little puffy, like I'm retaining water. In my case, it's all over, especially in my face and hands. My neurpoathy also gets worse and that involves the left side of my face. Do you feel any numbness or tingling in your face?

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Carmel color, that might have been it. Thats the only thing that sticks out, I've never had a promlem with nuts before. Oh and my hands where sooo puffy, I could hardly get my rings on and yes I do have a slight tingle in my face.

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I was just wondering if its just me or has anyone ever had their body swell (besides stomach) because of gluten? I think I was glutened last night but I don't have any other symtoms besides the fact that the left side of my face is swollen. Any ideas? :o

My eyes get swollen sometimes, especially my left one. I thought it might be gluten, but sometimes it seems swollen and I don't have any other symptoms. So, maybe it's an allergy to something else?

S

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I get swollen hands and face, especially cheeks and around the eyes. I thought I was just weird, though maybe it is an allergy, too. Even when the D was so bad, I would have a swollen face. I'm still pretty new at this and keep getting gluten accidently. Caramel color seems to be a big one for me. Take care :)

I was told I have Celiac today. My stoll was tested and aparently I am Gluten Intolerant. Im shocked and unbelieving. My haed hurts a lot, vision difficulty sometimes almost like a alergic reaction. im wondering if anyone else feels this way. i have never broken bones and this is all so new and confusing, please help me. Summer

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gointribal- I get one bump above my right eye. I call it my "glutenometer". If I wake up in the morning and it's puffed out, then I know something snuck past "security". I've been tested for allergies (70 allergens total) and i am allergic to nothing. So, I'm pretty sure that little swelling above my eye is gluten.

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Hello everybody! I am new to all this. Went gluten free 6 m ago,went back to gluten and noticed how horrible I felt. One cookie made me stay in bed the whole weekend.

Just wanted to ask you guys if it is a safe idea to cut off all the grains. I am nutrition student and it has been said that we do need grains for proper brain function. Any ideas?

Also have very loow BP 70/50 :(

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Hello everybody! I am new to all this. Went gluten free 6 m ago,went back to gluten and noticed how horrible I felt. One cookie made me stay in bed the whole weekend.

Just wanted to ask you guys if it is a safe idea to cut off all the grains. I am nutrition student and it has been said that we do need grains for proper brain function. Any ideas?

Also have very loow BP 70/50 :(

Welcome Aga, we really can do fine with minimal grain in our diets. Some people eliminate it completely. Most celiacs can tolerate nongluten grains like rice, millet, quiona, buckwheat wild rice etc. As far as the need to have grains for brain function remember that we heavily fortify or grain foods in this country. That may be where the concern that someone would be deficient if they gave up grains came from. You can get the nutrients you need from other sources and also the fiber. You should grab your text and look for the appendix that has the nutritive values of different foods. There you will be able to look at the nutrients and fiber contents and compare them with what you would otherwise be getting if you were eating the gluten grains. If your book by chance does not have one there are good ones available all over. Something that may also help with your brain and nerve function would be a sublingual B12 supplement. Many of us can not utilize this B from our diet or swallowed supplements.

I would suggest also that you post this query in a new post, more people will be able to see it and you'll get more replies.

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I found out I have Celiac two months ago. I was waking up every morning with swollen hands and severely swollen eyelids/puffy face and thats actually how I found out I have Celiac. I would never have gone to the dr's otherwise. I never associated the swelling with my GI issues (I was told I had IBS/lactose intolerance). The only thing I have changed in the past two months is not eating gluten and my swelling has diminshed by about 90%/sometimes gone completely. However, if I go out to a restaurant, it comes back full force and takes about a week to go down again. I definitely believe the swelling is due to gluten. Hope this helps!

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I found out I have Celiac two months ago. I was waking up every morning with swollen hands and severely swollen eyelids/puffy face and thats actually how I found out I have Celiac. I would never have gone to the dr's otherwise. I never associated the swelling with my GI issues (I was told I had IBS/lactose intolerance). The only thing I have changed in the past two months is not eating gluten and my swelling has diminshed by about 90%/sometimes gone completely. However, if I go out to a restaurant, it comes back full force and takes about a week to go down again. I definitely believe the swelling is due to gluten. Hope this helps!

When I was 15, I started having this issue that involved puffy joints at first, which then led to puffiness through my body - usually after eating mall food. Sometimes it was just hands and feet, and I'd get this dizzy feeling then swell up. Sometimes my entire body would swell up. The swelling would get worse in the sun or heat, while the joint pain would prevail in the cold.

My "tentative" diagnosis back then was Lupus, because of the joint pain, positive ANA, high SED rate, anemia, etc. Then it went away, I got better (with ups and downs, but nothing as extreme) until I turned 19 and had a huge Lupus flare (after moving out and cooking for myself... lots of gluten) and got officially diagnosed with Lupus.

Now that I found out about celiac, I can link all of my SLE flares to changes in eating habits. It was a month-long migraine with nausea and swelling in my extremities that finally made me gluten-free diet!

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Hi... I'm new here. I've been (mostly) gluten free for over a year now after a lifetime of struggles with symptoms including canker sores, hives, indigestion/heartburn, bloating, gas...etc.

I've been avoiding eating anything that I don't have complete ingredient and nutritional info for but last night I gave in and had a McDonald's Strawberry milkshake as I drove home after work. I awoke this morning with an EXTREMELY puffy face and bloated stomach. (My 14 year old daughter was aghast when she saw me first thing this morning.)

I can't find any conclusive info relating to gluten content in McDonald's shakes... Can anyone provide me with evidence that the milkshake caused my reaction and that it is related to my gluten intolerance?

Another thought..... Has anyone here wondered if undiagnosed gluten intolerance/celiac disease has contributed to eating disorders??

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I can't find any conclusive info relating to gluten content in McDonald's shakes... Can anyone provide me with evidence that the milkshake caused my reaction and that it is related to my gluten intolerance?

Another thought..... Has anyone here wondered if undiagnosed gluten intolerance/celiac disease has contributed to eating disorders??

With regards the milkshake.....could be a cc thing. All those breadbuns and sticky gluteny fingers. I would think it's highly possible that even if the shake itself was gluten-free, the hands handling the cup/lid probably are not.

Eating disorders. I have wondered about this since I have had issues with this myself. I had a lot of mental health problems, all of which seem to have cleared up gluten-free. Did a gluten challenge recently and they all came back.

I certainly get food cravings after a glutening. It's weird.

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I was just wondering if its just me or has anyone ever had their body swell (besides stomach) because of gluten? I think I was glutened last night but I don't have any other symtoms besides the fact that the left side of my face is swollen. Any ideas? :o

When I'm glutened my whole face swells or gets puffy but only my left am swells. I mentioned this to a friend who is a family physician and she said it's probably a build up of lymph fluid somehow triggered by my body's reaction to gluten.

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I always get swollen legs, hands, face and my left eye sags. I put this down to salt intake as it always happened the day after I ate salty foods.

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