• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sleep Problems
0

Do you have sleep problems?   60 members have voted

  1. 1. Do you have sleep problems?

    • Yes
      48
    • No
      6
    • maybe
      2
    • Don't know
      1
    • someone in my family does
      3

Please sign in or register to vote in this poll.

20 posts in this topic

I have sleep apnea and i am only 13 so i was wondering if it is a genetic thng that more celiac familys have sleep related prooblems. i don't know if there is any connection but it is interesting because a lot people in my family have celiac disease and sleep apnea. just wondering!

mollly

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Molly,

Two of my three kids have had sleep apnea. Both were caused by chronically enlarged tonsils. My son has been fine with his sleep since he had his tonsils out 2 1/2 years ago and my daughter will have her tonsils out next month. I am hoping this will help her. Have you had your tonsils looked at?

My middle son does not have sleep apnea, or the tonsil problem, but he has a hard time falling asleep. So do I. It takes both of us more than an hour to fall asleep and we both sleep very lightly. I wake up at least three times a night, sometimes not being able to fall back to sleep for an hour or more. I am sure this contributes to the ongoing fatigue I still am experiencing. If anyone knows what we need to do to help this (other than the Tylenol PM I take fairly often!) I would aprreciate any insight.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Mariann,

Here is my formula for a good night sleep:

Exercise for 20 minutes early in the day

No caffeine

No alcohol

Have a generous portion of protein with dinner

Have a small potato with just butter 3 hours after dinner.

The potato thing is from Kathleen DesMaisons book "Potatoes not Prozac". It is a program that naturally boosts serotonin levels. Your serotonin levels may be low due to malabsorption of tryptophan which is what serotonin is made from. Melatonin, which is what makes you feel sleepy in the evening, is made from serotonin.

It may take a few days to work.

Lisa

0

Share this post


Link to post
Share on other sites

Here I sit, 10 minutes to midnight. Sometimes I have insomnia, sometimes apnea. My sister talked to her doctor, and got help. I will be talking to my doctor June 3. I don't know if it's related to celiac disease. I still have my tonsils.

0

Share this post


Link to post
Share on other sites

i use CPAP but i have not gotten my tonsils out

0

Share this post


Link to post
Share on other sites
Ads by Google:


Sleep apnea is one of the few reasons for removing tonsils these days, chronic infection and diseased tonsils are the other reasons. See if you can get to an Ear, Nose & Throat specialist. A good ENT will be able to tell you if they think having your tonsils out might improve your apnea.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

I have to get a referal(sp?) from my regular doctor, so I scheduled an appt with her June 3. I have had sinus drainage problems all my life, so I'm hoping to learn something besides "hay fever."

0

Share this post


Link to post
Share on other sites

I am gettting my tonsils out on thursday becuae my ENT siaaid becuase i have cconstant tonsilitis i need to have them out

0

Share this post


Link to post
Share on other sites

Hi Molly,

It is not fun having your tonsils out when you are a teenager. I had mine out when I was 15. I recommend you stock up on losts of soft gluten-free foods. It will be better for you to have them out though. Hopefully your apnea will improve or go completely away!

You will be in my prayers on Thursday.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

to correct the apnea they are going to do lower,, upper jaw and chin surgery next summer. myu lower jaw is so far back it blocks my airway. i just had my tonsils out and i am sleeping horribly. i wake up hurting and i also still have the apnea problems. they were going to do the jaw surgery this summer but my "teeth weren't ready" so they were going to do it in december but the recovery period is 2 months and i am starting 9th grade and can't miss finals that time of year. i have to use cpap for another year which SUCKS but whatever

0

Share this post


Link to post
Share on other sites

I'm sorry to here that Molly. :( I was wondering how you are doing finishing up 8th grade while at home. Do you get to participate in your graduation? That would be awful to miss the end of the year because you had to have your tonsils out and then miss two months of school next year!

I hope this next surgery does it for you and that will be the end of your apnea problem.

You are in my prayers.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Recommended reading: "Prescription for Nutritional Healing," by James F. Balch, M.D. and Phyllis A. Balch, C.N.C.

I agree with eating foods that encourage healthy brain function. Potatoes are high in starch which for some, can encourage increased blood sugar levels and candida growth.

The above mentioned book recommends calcium and magnesium for people with Celiac and Insomnia. In the evening eat turkey, bananas, figs, dates, yogurt, tuna or nut butter. For children the herbs catnip and chamomile "...are safe even for children if taken in tea form." -Prescription for Nutritional Healing by James F. Balch

Will you let me know if this is a help to anyone? :D

0

Share this post


Link to post
Share on other sites

Just one thing about this poll: it might be hard to get an accurate reading of this because it is more likely that if you come to this section of the board that you have sleep problems than that you don't...therefore, you could be missing out on many "no" votes....of course, there's no way, of course, to prevent this from happening....

-celiac3270

0

Share this post


Link to post
Share on other sites
Recommended reading: "Prescription for Nutritional Healing," by James F. Balch, M.D. and Phyllis A. Balch, C.N.C.

I also recommend the book Herbal Healing by the same author. When the doctor diagnoses something, I always look in those two books. I have found the nutritional and herbal guidelines to be a tremendous help.

0

Share this post


Link to post
Share on other sites

I have sleep problems but I think it might be because of the medication my GI doctor has me on to help prevent my permenant diarrhea.

I almost always feel like I took a handful of those non-drowsy over-the-counter medications that you can get for sinus problems, flu, colds......

I am so wide a wake at night I find it very hard to get a good nights sleep :ph34r: .

-Carrie

0

Share this post


Link to post
Share on other sites

I have gotten very selfish with my sleep. To my knowledge I do not have sleep apnea or any organic trouble, my father has night terrors... they are horrifying. But I often do have trouble sleeping, not so much since being gluten free for 2 weeks now or close to it...

I went out and got the best bed I could afford, I put memory foam mattress pad on it and I only buy the very best sheets, at least 400 thread count, you can get them cheap at overstock.com. My bedroom is my haven, my children know to leave me alone unless someone is bleeding. I keep it very clean, smelling wonderful and cool. If your bedroom is too warm, you wont sleep well. Too cold is far better than too warm.

I have a soft light for reading and a routine that I try very hard not to vary from. I will go without something else to have luxurious sheets.

I do not allow anyone to stimulate me with topics that I am excitable over such as my husband wanting to talk about the addition to the house or the truck payment after 7 PM. Also my husband and I have seperate beds. I love him and all that but its very hard for me to sleep with another person, epeicially if they snore, whistle, chomp or move a lot. Some mates will not like this, they take it personally but if you are like me, try explaining it gently and with love.... once my hubby understood it was not the end of our "intimate times" he was fine and when he realized the more rested I was, the happier I was... he is also more rested because he is not subconciously worried about waking me up.

I have a down comforter so I dont get weighed down in cover weight.

Sleep is so very important. If I dont get a good nights sleep, I am wiped out. When I was stuffing gluten in my face, I never got good sleep. I would wake up sore and tired. Now I fly out of bed, its great.

I kicked all my pets out too. I love my pets but they interferred with my sleep. They have adjusted well to their own beds.

I think if you get selfish about your sleep, your sleep space, do what you need to do to make your sleep space all it can be...its the place to pamper yourself. You should have a bed that when you slide into it you go AHHHH I LOVE THIS BED... it all helps at least it does me.

0

Share this post


Link to post
Share on other sites

Caffeine does it to me everytime. Last night I had a very small glass of Mountain Dew soda and I was wide awake until after 1 AM. Chocolate also - because of the caffeine.

0

Share this post


Link to post
Share on other sites

I know it's been awhile since this thread was used, but I really have a few sleep problems which drive me almost berserk! :angry:

Like you Traci, I have to sleep in a separate room from my hubby, otherwise I just can't sleep at all, and he doesn't either. I snore very loudly. Loud enough, that I often wake myself up with it.

I also think I have sleep apnea, although I've never been to a sleep clinic to be tested for it. I wake up sometimes with the sense that I've been struggling for breath.

I have really bad nighmares almost every night. Not just one, but they go from one to another all night some nights. I'm often trying to excape from my x..(the father of my two grown kids), who is doing all sorts of horrid things to me.

Another one is similar. I am trapped, and trying to call out for help and can't form the words. :( They are so aweful, I wake up crying in my sleep.

I already take meds for anxiety/depression and sodium valproate to try and stop them, but it isn't working.

I'm really exhausted most of the time because of it, and have to have an afternoon nap every day. :blink:

So, it goes on, and on, and on.....

Sorry to rave, but it is really getting hard to take.

Maggie

0

Share this post


Link to post
Share on other sites

Well, here I am at 4am writing this post. Once again I am so tired I can hardly function, but neither can I sleep. My legs won't stay still and my mind won't slow down. Every little noise drives me nuts. At least my husband doesn't snore anymore since he has one of those machines for his sleep apnea. We are back in the same bed again...this time a king size version so that neither of us kicks the other when the leg spasms start up. We have to laugh at it or we would go crazy!

I haven't quite gotten to the point of taking a mag sulfate shot, but I will probably get there within the hour. I'd like for my Sunday to be somewhat normal and not be so exhausted. I know it will help, but I hate taking them.

You are not alone with the nightmares and feeling as though you can't quite breathe and can't quite wake up. Those are bad, but the dreams where every house you go into has 15 bathrooms and none of them work are even more strange.

0

Share this post


Link to post
Share on other sites
You are not alone with the nightmares and feeling as though you can't quite breathe and can't quite wake up. Those are bad, but the dreams where every house you go into has 15 bathrooms and none of them work are even more strange.

:D Now that would be bad!! lol

I sometimes dream that I've 'been' to the bathroom, but still need to go. :ph34r:

That's usually when I really DO need to get up and 'go' for real.

Thanks for that. It gave me a much needed chuckle. :P

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,466
    • Total Posts
      930,721
  • Member Statistics

    • Total Members
      63,895
    • Most Online
      3,093

    Newest Member
    LMS
    Joined
  • Popular Now

  • Topics

  • Posts

    • KathleenH, I swear by MatteosPizza and they make National Delivery. I have been known to buy them by the dozen. https://www.matteospizza.com/ BellaMonica's is not a bad corn based crust.  By not bad I mean "suprisingly good" that can be bought at most grocery stores. Here is there ZIP locator page to see if they are carried in your local area. http://glutenfreepizza.typepad.com/gluten-free-pizza/where-to-find-bella-monica.html I hope this is helpful. posterboy,  
    • Hey all--have Hashimoto's and am being worked up for epigastric discomfort and IBS like symptoms---   My blood work had an IgA within the lower end of normal range, negative TTG, but weakly positive DGP.   My endoscopy showed a "nodular" duodenum with the biopsy stating there was "reactive lymphoid hyperplasia"...   I have a follow-up with the GI in 3 weeks.   Wondering about any help?
    • DH wasn't linked to celiacs until 1967 from my research...
    • I was at a used book sale yesterday and happened to see an old dermatological textbook.  Of course the first thing I looked up was dh just to see what it had to say.  What I read shocked me as well as scared me half to death. The description of dh was right on, severe itching, blistering, bilateral, arms/elbows etc. but there was no mention at all of celiac, wheat, gluten or anything along that line.  The reason they gave for the cause of dh was "a manifestation of an internal cancer," and later it said it results from cancer, usually cancer of the ovaries or one other that I can't remember.  Being a hypochondriac, this was about enough to put me into cardiac arrest. I looked at the publication date and it was printed in 1963 which really isn't all that far back.  Has anyone else ever heard of this?? I thought by 1963 they were quite certain that dh was a form of celiac or did it come way after that? Sorry if I'm freaking anyone out by asking this.  That's not my intent at all, but since cancer is one of my biggest fears I found this rather unsettling.
    • Feeneyja, This will be a little long but I will  try to be brief as possible. See this discussion thread that talks about how Pellagra is often diagnosed as other disease's today because doctor's rarely recognize it today in a clinical setting. Pellagra's is described as the 3 D's if you don't count the 4th D of death if it goes long enough and is not diagnosed in a timely manner. Dementia (Neurological) Digestive (GI problems), Dermatitis issues (Ezcema, Psorsias, Acne etc.) According to mdguidelines website http://www.mdguidelines.com/pellagra indicates that quoting “The diagnosis of pellagra is straightforward when the classic rash is present but may be elusive if there are only gastrointestinal and/or neurological manifestations.” And why I believe in many cases Pellagra goes undiagnosed today.  Because doctor's have forgotten how it presents. A longer researcher article about the neurological presentations of pellagra mention the many ways a Niacin deficiency can present itself. Here is the link https://www.hindawi.com/journals/cggr/2012/302875/ and I will quote some of the neurological/dementia related symptom's of an undiagnosed pellagra patient. "Mental symptoms were wider than dementia, in that depression, fatigue, psychomotor retardation, mania, obsessions, and a whole range of psychoses with auditory and visual hallucinations were well described, along with personality change and sociopathic and drug and alcohol addictive behaviours. Panic disorders were seen as was a general inability to deal with physical or mental stress. Poor brain development such as hydrocephalus or cerebral palsy was also common. Acute delirium or even coma occurred, with some patients having myoclonus and other extrapyramidal signs reminiscent of the spongiform encephalopathies. The dementias of pellagra included features akin to Lewy body, Alzheimer’s, frontotemporal, vascular, and prion diseases. Parkinsonism was also common and a festinant gait was first described in pellagrins. Tremors of various descriptions, including asymmetric rest tremors, were noted and some patients had typical paralysis agitans. Pellagrins had a characteristic expressionless facies, so some signs of parkinsonism were present in most cases. Many features of pellagra closely resemble the nonmotor aspects of PD. The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." It is me again. You can see the neurological symptom's of Pellagra are severe and wide ranging. Taking Niacinamide 3/day for 6 months can alleviate many of these symptom's if your daughter has subclinical pellagra and the doctor's don't know to look for it. I had deep depression for many, many years and I shudder to think now that only a Vitamin could of helped me 30+ years ago and the doctor's didn't know to look for it. Shoot it isn't just Niacin.  All B-Vitamin's help your stress levels.  IF you have stress B-Vitamins can help your stress levels. I take Folic Acid for Blood pressure problems and it keeps my BP with in a normal range. A article on celac.com discussed this topic in detail a few months ago. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html I hope it is helpful.  Good luck on your continued journey. If you have never heard of Pellagra you are not alone. Dr. Heaney discusses why this is so in his online article Pellagra and the 4 D's. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ If you don't have time to read the whole hindawi article I also suggest this shorter but informative blog about why a Niacin deficiency can cause dementia related conditions. https://pellagradisease.wordpress.com/ Then decide for yourself and your daughter's sake to decide whether to take Niacinamide or not to see if it helps the D's symptom's she is experiencing (Digestive, Dementia etc.) The International Journal of Celiac Disease makes note of this in their research that Pellagra could be contributing to symptom's being diagnosed as Celiac disease today instead of a possible (co-morbid) Pellagra that causes the same symptom's. When they discuss how Pellagra and Celiac disease are related (Co-Morbid) in a Celiac diagnosis are surprised to find that in 58% of Celiac's -- can also be diagnosed with Pellagra. See this link http://pubs.sciepub.com/ijcd/3/1/6/ Quoting 3. Pellagra and celiac disease "The two diseases can be connected in two aspects. 58% of pellagra patients were shown to have malabsorption and many had intestinal pathology on biopsies [36, 37]. Alternatively, Pellagra was described in celiac disease [38]. The skin manifestations in pellagra might have some additional etiologies, since multiple nutrient deficiencies are at the origin of the cutaneous manifestations in celiac disease. The following nutritional deficiencies inducing skin rashes, were describe in celiac disease: Zinc, Iron, Vitamin A, E, B12, niacin, folate, selenium and essential fatty acids [39, 40]." If one is being diagnosed incorrectly the other co-morbid conditions can continue to cause Celiac like symptom's. But if the majority of those who have been diagnosed as Celiac could be helped by taking Niacinamide I see no you reason you shouldn't try it. Or at least research it some more. Again good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  • Upcoming Events