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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Somebody Please Help With Test Results!
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5 posts in this topic

My 2 yr old was positive for IgA and IgG antigliadin antibodies..we decided to have my other two kids (ages 3 and 6) tested. My 6 yr old has some symptoms but my 3 yr old seems fine. Anyway my 6 yr old's IgG was 90 but IgA was negative, and my 3 yr old's IgG was 64 and IgA negative. My dr is out of town until the end of May, and besides that, he doesn't know enough about Celiac to give me any answers. I can't get into a GI dr until July. I wish I knew what these tests results meant for my other kids! I am so frustrated! Please help!

Mel

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Unfortunately it could mean a lot of things. Their IgG could be elevated for other reasons, or they could be in the pre-Celiac stage of gluten intolerance and have not yet gotten enough damage to their intestines for the IgA antibody levels to be higher, or they could have non-celiac gluten intolerance, which is less severe than Celiac, but still needs the gluten-free diet. It is just too hard to say without further testing. Do you have an appt. with the GI in July? I know it seems too long to wait, but as long as the kids aren't suffering terribly I would suggest you keep that appointment. You could ask to be on the waiting list for any cancelations, but July is not too far away and your kids should be tested more to find out if it is gluten or something else causing the elevated IgG.

The same thing happened with all three of my kids. Positive IgG, negative IgA. I wasnot able to get the testing the doctor wanted through Promethius labs, so we ended up testing them through Enterolab. http://www.enterolab.com

My boys both have non-celiac gluten intolerance and my daughter and I are both Celiac with low levels of damage. This was surprising to me, as sick as I have been all my life I thought I would test positive on the blood tests, but it just didn't work out that way. The kids had quite a few symptoms as well. We are all gluten free now and all of us are doing much better.

Hang in there, and remember that you are doing a great job trying to find out what is wrong with your children, so you can help them be healthy.

God bless,

Mariann

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Mariann,

Thank you SO much.

Which tests did you have done at Enterolab? I just can't afford to have all of those tests done.

How will the tests show if they have celiac, or just non-celiac gluten intolerance?

Also, I have been feeding them a gluten-free diet because it is just too risky IMO to have gluten in the house with my 2 yr old recovering. Should I keep giving my other kids gluten for the GI dr in July? Heck, for that matter, how can I be sure my 2 yr old (whose IgA WAS positive) really has Celiac-- should I put her back on gluten too for the GI dr in July?

Please help!

Mel

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For anyone to have an "official" diagnosis of Celiac Disease, they must have positive blood work and a biopsy. That's according to the medical world, I mean. You should phone the doctor and ask if your daughter should be gluten-free yet, because if the intention is to get an official diagnosis with biopsy, she must stay on gluten until that time.

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Thanks Gillian, but we have decided not to do the biopsy. When you say positive blood work, I'm not sure if my other kids' blood work would be considered positive for Celiac. That's what I'm trying to figure out!

I'm leaning more and more towards Enterolab, but I just don't know which tests to get. I would love to get all of the tests done, but $300 a child is not an option.

Mel

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