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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help...gf But Getting Worse
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Hi everyone,

I'm not officially diagnosed; my gastro doesn't think celiac disease as only the anti-gliadin was high, but my enterolab results were very very high so I went gluten free (and casein free) on Saturday.

Already, I am feeling much much clearer in my head (the "fog" has lifted) and my ears have cleared up, but my stools are getting worse. (sorry for the descriptiveness) I didn't really have stool symptoms before, maybe they were a little soft, pale, and floaty, but not a big deal. But now, they are almost like D and this has been in the days since I quit gluten and casein. Does anyone know what's going on? Why would I be getting worse? I would appreciate your stories/advice/theories. Thanks so much.

--Laura in CT

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It sounds like in some ways you're getting better, but the diarrhea of course is not a good sign. That could be a reaction to your change in eating habits, though, which is common. Are you losing weight or feeling worse in other ways? Have you had a colonoscopy? If the diarrhea is a problem for you a colonoscopy and an endoscopy to check for damage to the small intestine is a good idea. Change doctors if you have to, to get this stuff done. I went gluten-free 9 months ago after my diagnosis, and I felt absolutely terrible on this diet for months. I stuck with it, though, and eventually it did get better. The incredible change in my usual eating habits just didn't sit well with my system at first. This could be what's happening to you, but I'd ask the doctor. Perhaps your symptoms are being caused by something else like Colitis or Crohn's, and that's why a positive eating change did help somewhat but not completely. Anytime you change eating habits, your body is going to react, so this may be just temporary!

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are you eating anything as substitutes for gluten-filled foods that could exacerbate the problem? are you taking any different supplements?

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For the first 2-4 weeks I went gluten free, I felt worse than ever. My nutritionist says it was my body detoxifying. I was only eating potatos, rice, carrots and apples. But when I finally started healing, boy did it feel good. Nothing actually hurt. Processed foods made me sick right away again when I added them back in.......even though they say gluten free. I hope you feel better soon so you know you're doing the right thing.

Blessings,

Lily

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