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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Very Uncomfortable Endoscopy
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5 posts in this topic

My niece, nephew, and sister were recently diagnosed with celiac disease. So, I looked up the symptoms and decided that I probably had it too. :o I had the blood work done two weeks ago and tested as a "weak positive". I had the endoscopy last Thursday and I had great difficulty. :( My doctor thinks that I have a very strong gag reflex because the numbing throat spray did not work as it should have. I will spare you the details. Has anyone else had this expereince? I am so scared that the results will be inconclusive and I will have to re-biopsied. I have vowed to not do the procedure again unless it is a mater of life or death. :angry:

Thanks in advance for whatever help you can offer.

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I am sorry you had trouble. I had the endoscopy and they did not use the throat spray BUT they did sedate me with Versed, it puts you in a twilight sleep and I did NOT feel a thing. Oh and my results showed "patchy inflammation" but was not enough for a dx, so I decided to get tested through Enterolab and it came back positive, went gluten-free and could tell a difference within days!

If it were me and my blood results showed a weak positive I would try the gluten-free diet to see if I improved, there is no way I would go through all the testing again, of course that is just me ;)

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If your doctor didn't sedate you and then give you something like Versed to keep you from remembering the procudeure then I'd find another doctor. I don't remember the first thing about either one of my procedures.

richard

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Thank you for your feedback. I greatly appreciate it. I have an appointment on Friday to get the results of the biopsy. I am thinking that even if it is inconclusive I should go gluten-free because of the blood results, family members having celiac disease, and multiple symptoms which are consistent with celiac disease.

Actually, I was sedated through my IV and when I started having difficulty, they gave me more anesthesia through my IV. The doctor said that he gave me twice as much as he would have under normal circumstances. Also, the same doctor did my niece and nephew's procedures and they did not have any difficulties. So, I tend to believe that it wasn't him, but some odd reaction by my body.

Thanks again!

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    • remind your hubby, "if mama ain't happy, ain't nobody gonna be happy."
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