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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Looking For Support Group
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6 posts in this topic

I am looking for a support group in southeast Kansas. I am down around Pittsburg, Kansas, also fairly close to Joplin, Missouri. If there are no known groups in my area, how would I go about starting one?

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Here is the info I found for Kansas here on this site:

Click HERE for the link to ALL support groups.

Kansas

Hays - Resource:

Contact: Debbie Williams

1005 West 28th, #112

Hays, KS 67601

Tel: (913) 625-9114

E-mail: williams@dailynews.net

Hutchinson - Resource:

Contact: Faye Sallee

2509 Lundman Drive

Hutchinson, KS 67502

Tel: (316) 662-6738

E-mail: sallee@southwind.net

Kansas City - Support Group

Contact 1: Helen Richards

Greater Kansas City Celiacs (CSA)

6317 Goodman Drive

Merriam, KS 66202

Tel: (913) 236-9454

E-mail: richgary@swbell.net

Contact 2: Karen & Roger Miller

11714 Hadley

Overland Park, KS 66210

Kansas City - Resource:

Contact: Danelle Sorensen

Olathe, KS

Tel: (913) 397-9284

E-mail: homesweethome@despammed.com

Leavenworth - Resource:

Contact: Latisha May Thomas

1313 Vilas

Leavenworth, KS 66048

Tel: (913) 682-6678

Manhattan - Support Group

Contact: Rene' Eichem

Manhattan Celiac Support Group

2442 Buttonwood Drive

Manhattan, KS 66502

Tel: (913) 776-6013

E-mail: arened@ksu.edu

Contact 2: Mary Jordan

2513 Nutmeg

Manhattan, KS 66502

Tel: (913) 539-2963

E-mail: MJordan672@aol.com

Topeka - Support Group

Contact: Sharon Larson, President

Topeka Celiac Sprue Support Group (CSA)

4310 SE McMahan Ct.

Tecumseh, KS 66542

Tel: (785) 379-0479

E-mail: slars5@cox.net

Wichita - Support Group

Contact 1: Kay Finn

Wichita Celiacs (CSA)

805 N. Cypress

Wichita, KS 67206

Tel: (316) 686-7034

Contact 2: Marty Weeks

8108 Mockingbird

Wichita, KS 67207

Tel: (316) 684-4017

E -mail: weeks@southwind.net

Contact 3: Faye Sallee

E-mail: sallee@southwind.net

Internet: http://www2.southwind.net/~weeks/celiac/

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I checked out those areas, and the closest one is a three hour drive. I need something I can actually get to.

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I am in the same situation as you, each one of those groups is at the very least an hour away from Emporia. I really wish I had a group closer to me, but for now I get my support from online groups. I don't have any other choices right now. Someday I hope to be closer to meetings, so I can attend or just start my own group!! Best wishes.

-Jessica

:rolleyes:

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Yes I am in the same boat, one of the support groups in my area is also 1 1/2 hour away but I think it will be worth the drive. Good luck to the both of you on finding one or starting one.

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Since it is estimated that 1 in 133 people actually have celiac disease, you'd think there would be a support group in every town of over 5000 people. What a shame the diagnosis rate is not up to par. How many people does that make walking around with celiac disease that are totally unaware they have it? Sad.

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