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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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plantime

Looking For Support Group

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I am looking for a support group in southeast Kansas. I am down around Pittsburg, Kansas, also fairly close to Joplin, Missouri. If there are no known groups in my area, how would I go about starting one?

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Guest jhmom

Here is the info I found for Kansas here on this site:

Click HERE for the link to ALL support groups.

Kansas

Hays - Resource:

Contact: Debbie Williams

1005 West 28th, #112

Hays, KS 67601

Tel: (913) 625-9114

E-mail: williams@dailynews.net

Hutchinson - Resource:

Contact: Faye Sallee

2509 Lundman Drive

Hutchinson, KS 67502

Tel: (316) 662-6738

E-mail: sallee@southwind.net

Kansas City - Support Group

Contact 1: Helen Richards

Greater Kansas City Celiacs (CSA)

6317 Goodman Drive

Merriam, KS 66202

Tel: (913) 236-9454

E-mail: richgary@swbell.net

Contact 2: Karen & Roger Miller

11714 Hadley

Overland Park, KS 66210

Kansas City - Resource:

Contact: Danelle Sorensen

Olathe, KS

Tel: (913) 397-9284

E-mail: homesweethome@despammed.com

Leavenworth - Resource:

Contact: Latisha May Thomas

1313 Vilas

Leavenworth, KS 66048

Tel: (913) 682-6678

Manhattan - Support Group

Contact: Rene' Eichem

Manhattan Celiac Support Group

2442 Buttonwood Drive

Manhattan, KS 66502

Tel: (913) 776-6013

E-mail: arened@ksu.edu

Contact 2: Mary Jordan

2513 Nutmeg

Manhattan, KS 66502

Tel: (913) 539-2963

E-mail: MJordan672@aol.com

Topeka - Support Group

Contact: Sharon Larson, President

Topeka Celiac Sprue Support Group (CSA)

4310 SE McMahan Ct.

Tecumseh, KS 66542

Tel: (785) 379-0479

E-mail: slars5@cox.net

Wichita - Support Group

Contact 1: Kay Finn

Wichita Celiacs (CSA)

805 N. Cypress

Wichita, KS 67206

Tel: (316) 686-7034

Contact 2: Marty Weeks

8108 Mockingbird

Wichita, KS 67207

Tel: (316) 684-4017

E -mail: weeks@southwind.net

Contact 3: Faye Sallee

E-mail: sallee@southwind.net

Internet: http://www2.southwind.net/~weeks/celiac/

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I checked out those areas, and the closest one is a three hour drive. I need something I can actually get to.

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I am in the same situation as you, each one of those groups is at the very least an hour away from Emporia. I really wish I had a group closer to me, but for now I get my support from online groups. I don't have any other choices right now. Someday I hope to be closer to meetings, so I can attend or just start my own group!! Best wishes.

-Jessica

:rolleyes:

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Guest jhmom

Yes I am in the same boat, one of the support groups in my area is also 1 1/2 hour away but I think it will be worth the drive. Good luck to the both of you on finding one or starting one.

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Since it is estimated that 1 in 133 people actually have celiac disease, you'd think there would be a support group in every town of over 5000 people. What a shame the diagnosis rate is not up to par. How many people does that make walking around with celiac disease that are totally unaware they have it? Sad.

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