• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Not Always The Gluten
0

5 posts in this topic

I had been feeling sick for the last week, just feeling sick in general and nauseated. I kept going through every thing that I was eating and trying to find what I was doing wrong. Well, it is not always Gluten I started thinking and went to the Dr. I had a UTI.

--I think we are so used to feeling sick that it really doesn't phase us when we feel bad. So remember that other things could be wrong also :rolleyes:

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


For me it was the opposite. I am so careful about gluten that when I got sick with horrible stomach pain, nausea, exhaustion, dizziness and low-grade fever, I thought I had gotten the stomach virus that has been going around. I thought this was confirmed when my son started throwing up that night. Well everyone else got over it in less than 24 hours, after 5 days I still feel bad.

I finally figured out last night that I think I got gluten contaminated last friday morning. Last friday morning a friend came over with her children. She knows we can't have gluten or dairy, so she brought celery sticks and peanut butter. And I ate some. I don't know where my brain was that day, but it just dawned on me last night that the peanut butter most likely had been contaminated with crumbs! I don't even eat my husband's peanut butter (he is the only one not gluten-free at our house), why would I not realise this before I ate it! I am hoping the pain goes away soon. The nausea comes and goes, but the pain is pretty much all the time. And I am still dizzy and foggy-brained.

I agree that sometimes we think it is gluten when it is another illness, but sometimes it is the other way around.

I hope you are feeling better, Kayjay.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Sorry to hear you're both feeling bad. I was curious, when you say, "pain", what type of pain is it? I know that for me, I have severe, deep, achey type pains all across the area right below the navel. The upper abdomen, you might say. I'm not sure if this is my colitis or the celiac disease. What kind of pain do you have when you know you've ingested gluten?

0

Share this post


Link to post
Share on other sites

Hi Gillian,

For the first two days the pain was located in my stomach (so I thought the stomach virus), but after two days it moved down into my intestines and now it is horrible gut pain and a lot of gas. This lower pain and gas is typical for me with a gluten accident, and since the peanut butter incident is the only time I ate something I didn't prepare myself, I figured it was the cause, but you know what, maybe it was both a stoamch virus and a gluten accident. I will probably never know.

It is hard to say what is causing your pain, but it is proably the colitis. It will cause you to have problems with a lot of foods being irritating on your already inflamed and irritated intestines. Not fun. What is the doctor doing to treat your colitis?

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Hi Mariann,

The doctor is currently treating the colitis with the drug Asacol. I'm eventually supposed to take up to 6 pills a day, but I was having increased abdominal pain with only 2 pills a day, so now I'm down to 1 until my system gets used to it. If not, I'll probably switch to Olsalazine and then to steroids, just until we can get the initial phase of the problem under control. I hate taking drugs, because I'm extremely sensitive to all drugs and their side effects, and I worry about how my body may be affected by them. Asacol is very safe, but I'm trying to get RID of the pain in my gut, not emphasize it! So it's going to take time. I also hate having 2 diseases, because honestly I don't know what's what anymore with my symptoms! I wouldn't know if I had a gluten accident, because I feel pretty bad all the time anyway, and I can't tell the Celiac from the Colitis. I have to assume that I've been doing well on the diet, though, because my endoscopy showed improvement of the villi. Hopefully that will continue.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,312
    • Total Posts
      935,419
  • Member Statistics

    • Total Members
      64,970
    • Most Online
      3,093

    Newest Member
    Kathy Moore
    Joined
  • Popular Now

  • Topics

  • Posts

    • In the face of budget cuts, and in a move that may offer a glimpse of things to come, doctors with the the UK's National Health Service are eliminating gluten-free food prescriptions for adults, beginning in parts of Devon. As of July 1, the Northern, Eastern and Western Devon Clinical Commissioning Group (CCG) responsible for planning and buying the majority of healthcare services for local people have recommended limiting gluten free foods including bread, pasta, flour and multipurpose mixes, to under 18 years of age. View the full article
    • We rarely drink orange juice.  Why?  Because it is full of fructose which is not bad, but you would probably never sit down and eat more than 2 oranges in one sitting.  Makes you wonder why diabetes is so prevalent.  The other reason is laziness.  I have citrus trees and juicing them takes time and work.  I reserve that for special occasions.   Citrus is acidic.  It can be harsh on a damaged gut.   My non-celiac kid actually gets hives from eating too many oranges.  Moderation can be a good thing.   Consider getting your vitamin C by eating fruit and not juice.   
    • Hi duliano, Was he tested for celiac disease?  If he is positive for celiac disease, you'll need to spend some time learning about it.  Celiac disease tends to run in families, so you and your spouse should also be tested if it is celiac. There is another condition called NCGS which some people have.  Those people also get sick from eating wheat, rye, and barley, but they don't have the gut damage that celiac's get. Recovery from celiac disease damage can take 18 months or more.  It is not a fast process for most of us.  The antibodies that cause the damage slowly reduce in number over time.  Possibly weeks to months.  Even a small crumb of wheat, rye or barley can cause the antibodies to flare up again.  Then the damage starts again and it's back to recovery. It sounds like you are giving him a good diet.  Meat, veggies, nuts, and eggs are good for the first 6 months.  After that people find they can sometimes add dairy milk back into their diet.  You need to avoid cross contamination from shared foods like mayo or peanut butter or even a  shared toaster.   Think of gluten like a tiny germ that you can't see but it can be there.  It's really helpful to not have any gluten in the house, if that is possible.  Also you have to watch out for other people giving him treats that have gluten. Welcome to the forum duliano!
    • My RA blood test was negative and my dsDNA was negative too.  I think that the dsDNA is the lupus test.  I think.  I haven't been referred to a rheumatologist.   
    • Some people will always test negative on the blood test, odd and rare but it happens. You also have to be eating gluten on a daily basis for the antibodies to show up for it in the test for at least 12 weeks. You can follow up with a endoscope and biopsy, if your having gut issues this might be a great idea to rule out other issues. I might also suggest a colonoscopy to rule out Ulcerative Colitis or other digestive issues there. Other thoughts you could have SIBO or NCGS. NCGS  can not be diagnosed...heck I was writing up a bit of a summary page for someone else about it might as well make use of the partially filled out notepad here.  Forgive any typos or misinformation still working it out for various sources. " 1. Acne, Flushed Skin, or Rashes
      Non-Celiac Gluten Sensitivity can manifest itself as a chronic skin condition such as a rash, acne, or red/flushedcheeks, but these conditions could also be hormonal. On the other hand Celiac disease also has Dermatitis herpetiformic or DH, which is characterized by rashes and chronically itchy, elbows, knees, buttons, and back. 2. Distended Stomach or Bloating
      A distended or bloated stomach applies especially after gluten consumption and is a fairly clear sign of gluten sensitivity. A distended stomach is also characteristic of malnutrition as well of celiac disease. 3. Diarrhea, Gas, or Constipation
      These three  symptoms can simultaneously occur after eating gluten and may be a sign of intolerance because,especially the former, is a way for the body to expel harmful allergens or other substances. Often, diarrhea(frequent loose or liquid stools) occurs with gas, resulting in a “feeling of a full or tight abdomen” as put by the NFCA. Constipation, essentially the antithesis of diarrhea, is also a symptom of non-celiac gluten sensitivity and is characterized by infrequent, hard, painful bowel movements from lack of physical activity or poor diet,namely a diet high in refined carbs rich in gluten. This can be made worse if one has a magnesium deficiency, does not get though hard fiber, or drink enough water. All of which can be made worse by the feeling of bloat/gas making one feel too full to need to drink or eat high fiber foods. 4. Brain Fog or Migraines
      Brain fog is a major characteristic of non-celiac gluten sensitivity. Chronic or debilitating migraines goes hand in hand with the idea of brain fog and results in depression or irritability. These again can be made worse by deficiencies, like B-vitamins. 5. Joint Pain or Numbness in Extremities
      Tingling, pain, or numbness in the joints or extremities is abnormal and should be a clear sign of a health problem like gluten intolerance or celiac disease. Colloquially, this tingling is described as “pins and needles” or a limbbeing “asleep.” If this happens frequently for no apparent reason, it could be a sign of gluten intolerance. Again these can help be alleviated and be made worse by deficiencies in Magnesium, B-vitamins
      Total elimination of the gluten protein for an extended period of time, say two weeks or a month, is the only true way to identify if these symptoms are linked to gluten intolerance, and even then, it would not be certain. If the protein is eliminated and any of the above symptoms dissipate, then it should be noted that gluten intolerance may be an issue, but be sure to consult a professional for solid proof."  
  • Upcoming Events