• Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Writing My Paper

Rate this topic

11 posts in this topic

Recommended Posts

Hello everyone,

I've been gluten-free for about 1.5 years, and now i am finaaly achieving more than sticking to my gluten-free diet daily, i'm graduating from college! I am writing my final paper on celiac disease, and i'm trying to take an educational approach.

If all goes well my story will get printed in some of the local Orange County papers, maybe i'll try and submit it to magazines too. I am looking for some interesting/ helpful tips from everyone on this board. What are the things (big or small) that has made life easier as a Celiac? What was the hardest thing to give up and did you find something to replace it with? Any tips on keeping on doctors for diagnoses, or even like the last question, what to do about communion? Both good things and bad things will be helpful to my paper. When it's done i'll post it here for everyone to read too.

I have tried to go through these boards and find some answers, but don't want to include anything I don't get permission for writing. So if people will be so kind to post them on this message board over the next couple of days, i will include them in my paper.

If you have any questions, please email me at nadia_van_rooyen@yahoo.com or jordanandnadia@yahoo.com

thank you much!

Nadia :D

by the way, i took charge with my wedding and my whole cake is going to be gluten-free!!!!

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

The biggest realization: realizing that food is not as important as people.

The biggest frustration: restaurants not taking your requests seriously.

The biggest skill: learning to cook in a way that will keep you cooking.

The biggest happiness: not feeling sick!

Share this post

Link to post
Share on other sites

in the procces of writing a gluten/wheat free cookbook

inspirded to write it because i saw how depressed my friend was with the limitations on the foods available to her. i'm creating simple recipies with delicious results. i have lost 40 lbs. eating these foods and she has maintained her weight.

feel free to write @ garcia3169@bellsouth.net buen apetito!

Share this post

Link to post
Share on other sites

Biggest frustrations: I have been sick with stomach and weight problems since I was a small child. I am on my second surgery to look for problems and had one surgery to remove my gallbladder. And after all these years more doctors told me it was a female problem or just in my head. Now I have an actual answer to what is wrong (Celiacs) and a way to fix it (gluten-free for life).

Biggest happiness: Knowing that I will be here to watch my daughter grow up and I will not be too sick to be a part of it anymore. Second biggect hapiness, I got the all clear fromthe doctor to get prgnant again. YEAH!

Family: My husband, daughter, and friends are FANTASTIC about the gluten-free diet. My family (mom, dad, brothers, aunts, uncles, etc.) not so good. Luckily they do not live nearby. I was never tested for celaics as a child even though a doctor said my vili were flat, and a cousin had been diagnosed with Celiacs. I come from a family of stick your head in the sand and all your problems will go away.

My realization: The people who love you and respect you are your family be it through blood or friendship. Children deal with problems much better than adults. And food is not the center of every social occassion. It's a wonderful thing to be gluten-free and healthy!

Share this post

Link to post
Share on other sites

Biggest Frustration: Being sick and having stomach problems, gas, bloating, etc. for seven years...and not knowing what it was....and having people think that I was "getting myself sick" by stressing out....etc.

Hardest Thing to Give Up: Pizza...I thought it would be bagels, since I ate them every morning and loved them, but I found a decent replacement for the bagels early on. I was thrilled to find a replacement for the pizza: Chebe, which is phenomenal...(you can only order it online at http://www.chebe.com, but they don't charge shipping! :D Pizza is now no longer a difficulty...and the rest of my non-celiac family like it as much as regular pizza that when we have pizza for dinner, the whole family eats gluten-free.

What Made Life Easier as a Celiac: First, my family, who have been supportive, helpful, sympathizing, and understanding, especially my mother for finding so many great replacements for the foods I loved. Second, this board...so many questions have been answered; either by posting myself, or by reading posts. I've learned so much from this board, and it's nice to have somewhere to get info. and talk to people who understand.

Biggest Happiness: The feeling of freedom (which is starting to come) when you don't have to worry about getting sick, making up work, etc. and you don't have to endure the cramps, vomiting, nausea, gas, bloating, diarrhea...etc.

Share this post

Link to post
Share on other sites
Ads by Google:

Congratulations! Is that Orange County CA? Or NY? (I'm in Huntington Beach CA.)

Biggest Frustration: Being horribly ill much of my adult life and not knowing why...but feeling like I was losing my mind. Missing out on a lot of fun with my kids.

Hardest Thing to Give Up: Hands down, Take-out Chinese!

What Made Life Easier as a Celiac: The Internet.

Biggest Happiness: Because I was dx'd, my 11-year-old daughter was dx'd, too. Who knows what could have happened to her?

Share this post

Link to post
Share on other sites

Ads by Google:

I'll add my input to answer your questions:

WHAT MADE LIFE EASIER AS CELIAC: SUPPORT from others including a next-door neighbor whose husband is celiac, a local celiac support group (esp. the leader), THIS MESSAGE BOARD and my husband (after I finally told him what I needed). :rolleyes:

HARDEST THING TO GIVE UP: Freedom to walk into any restaurant and order anything on the menu without worrying how it will affect me. :(

SOMETHING TO REPLACE WHAT I GAVE UP: A local totally gluten free restaurant owned and operated by a celiac who brews her own gluten free beer, makes a Chicken Florentine that beats the Coq au Vin I had in Versailles and fantastic gluten-free peanut butter cookies (as well as gluten-free versions of other things we might miss like burger, fish & chips, sandwiches, pizzas, cookies, breads, etc.). :P

TIPS FOR KEEPING ON DOCS FOR DX: ZIP. I gave up after my own PC diagnosed me with 'IBS' 7 years ago and recommended I follow the IBS diet which told me to eat more whole grains (esp. wheat bran) which made my symptoms worse! :angry:

WHAT ABOUT COMMUNION: I take the juice (wine) and pass the 'bread' plate, but we just pass the elements in our church now. 'So glad we aren't 'served' anymore, so nobody (except my husband) notices I don't take the 'bread'. ;)

WORST THING ABOUT CELIAC: Being or learning I was? 'Sorry I forgot how you asked that question. WORST ABOUT BEING: All the excruciating pain I suffered and other confusing but less painful symptoms I experienced most of my life (I had 'symptoms' from early childhood which were misinterpretted by my parents and misdiagnosed by my doctors) BEFORE learning I had celiac. WORST ABOUT LEARNING: Fear everytime I had a gluten 'slip' (from mystery ingredients or cross-contamination) that I was further damaging my intestines which have suffered so much celiac damage for soooo many years. :o

BEST THING ABOUT CELIAC: Again I'll answer with being and learning: BEST ABOUT BEING: I'm a LOT more vigilant about choosing foods which are beneficial for my body, not just what tastes good and satisfies hunger, because longterm malabsorption has deprived me of vital nutrients and zapped my energy too long. ;) BEST ABOUT LEARNING: FINALLY an explanation for all those painful and embarassing symptoms as well as a treatment to resolve the pain and 'symptoms'. :D

I WANT TO ADD: I don't consider learning I have celiac diseasea burden, but rather a blessing. I'm SOOOOO glad to finally experience less pain (I went from excruciating to tolerable to no discomfort for short periods) so I can eat without fear that I'll hurt for the next 4-12 hours. I used to eat from pain of starvation (because I avoided eating until my blood sugar was so low I had to eat) to pain of dull bloating discomfort followed by sharp cramping pain. I LOVE knowing I can eat gluten-free foods without discomfort. Maybe people, who see their celiac diagnoses as a burden, didn't suffer enough pain to realize the benefits of going gluten free. ;)

Share this post

Link to post
Share on other sites

If you go to a member's profile by clicking on their name, you can see when they last posted. For jordanandnadia, it was November 2004.

Share this post

Link to post
Share on other sites

Ads by Google:

BIGGEST FRUSTRATION: being sick my whole life with seemingly unrelated symptoms, being told over and over that it was "anxiety" or "all in my head" when I knew I had no control over it. Feeling hopeless like I would be sick forever, and nobody cared.

Hardest Thing to Give Up: cheese fries at outback steakhouse, they were my comfort food.

What Made Life Easier as a Celiac: Gluten free animal crackers, that look like everyone elses. (well, it made things easier for my girls, haven't figured out my "super great thingy" yet)

Biggest Happiness: knowing that I wasn't losing my mind, knowing now that ALL of my sypmtoms were caused by celiac, and that soon when I am healed up, I won't be sick anymore.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • Please help,  I am 30.All my life from childhood I had upset stomach pain and cramps.As a child was frequently treated for giardia and still had cramps.As a child so strange I had bumps with water on skin.Not redness nothing else.Just bumps filled with water all over my body.Later I never had these.But in my early teens I started with fatigue anxiety.Then extreme fatigue.Hair fallen.Eyebrow loss over a few years to nonexistent eyebrow.Always low iron even with supplementing.Low vitamin D3.Low calcium and magnesium.Gastrointestinal for a few months now I have cramps daily.Diarheea almost daily.Treated for parasites and giradia.nothing changed. OTHER symptoms.  Bone pain.Spinal pain.Headache.Eye floaters.Done MRI and eye exams nothing all clear Low iron again at blood work. Low exercise tolerance. So bloated I seem like pregnant in 9 months even !!!if i lost weight the last three months Itchiness all over body but no bumps just redness Itchiness extreme on the scalp. Petechiae small red spots all over my body this is for years now. Tried gluten free even though in my country very hard to keep up with this. Only for few days then gave up and tried again and so on. Did some blood work but only 2 antobodies and not IGa and Igg judt one of them.Negative.this was two years ago. I don't know what to do. Oh and mouth ulcers. And have gas i am afraid because i can hardly control because i am extremely bloated. I am desperate. Thanks.  
    • I know this thread is very very old, but I want to suggest one thing to tired people. Get a sleep study. Sleep apnea is something that can cause you to be very tired, and it can kill you. A sleep study is super easy and the cost of an office visit copay. It's easy to treat with cpap and it's amazing how much better you feel.
    • Hi Monica I hope you are feeling better now.  In any case, your post made me think of something I have been reading about lately - Dr. Satsha Gominak's work. It connects sleep disorders and body aching. She corrects it by tightly controlling the levels of vit. D and B complex. Be aware that this can be caused not only by too little panthotenic acid, but also too HIGH panthotenic acid supplementation. And we celiacs sometimes rely too much on our suplemments.. I am guilty too.  Unfortunately, she is not the most straightforward speaker but her work is very eye opening. Please look into it.   
    • Always carry lots of gluten-free snacks whenever you travel, on the flight and elsewhere. Sometimes you are hungry and need something right away and it's too hard to find a place to accommodate ! I always packed one suitcase of food, which also included non gluten-free snacks for my 3 boys. We are always very thrifty, lol.
    • You may want to keep a food and symptom journal. Our reactions can be delayed and that can make it hard to pinpoint what 'got' us. A journal can help you see a pattern and help us figure it out. Enjoy that pudding.
  • Upcoming Events