Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Heart Arrythmias?

colorado kathy

Recommended Posts

colorado kathy Newbie
colorado kathy
Posted

I've been reading where a number of people have had heart arrythmias w/celiac. Would anyone be willing to share what kinds of problems they've had and what the treatment was? Thanks - Kathy

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


whitball Explorer
whitball
Posted
I've been reading where a number of people have had heart arrythmias w/celiac. Would anyone be willing to share what kinds of problems they've had and what the treatment was? Thanks - Kathy

I have had heart issues for awhile, but usually with stress. After I went gluten-free, I had an episode where I had "heart skips" every 2-3 minutes. I had it checked, but turned out to be an extra heart beat, but also could be from aspartame from drinking diet pepsi. So, I have stopped almost all aspartame and have had few issues since.

Link to comment
Share on other sites
jaten Enthusiast
jaten
Posted

Yes, I was diagnosed with PVC's (common and often benign) and PAC's (the real trouble) many years ago. I was diagnosed with this long before I was diagnosed with Celiac, but probably not before I was Celiac. Many tests were run, and I have no damage, etc., but the PVC's and PAC's are always evident and frequent. Doc could find no reason for them, but is alarmed at their severity. I have been on med to control them (and it does fairly well), but have to have med changed about once every couple of years because one will stop working after awhile.

Since Celiac diagnosis in Dec., I have read that arrhythmia can be a symptom of Celiac.

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Before going gluten-free, I would get them terrible! They terrified me! It felt like my heart was skipping a beat and then pounding through my chest on the next beat. Sometimes, it would last up to 1 hour. I had the test where I wore the monitor for 24 hours, but it didn't show anything.

After going gluten-free, they went away - totally. I NEVER get them anymore......

Karen

Link to comment
Share on other sites
i canary Rookie
i canary
Posted

I have very short episodes where my heart skips. Scary when it happens. As far as I know I'm not taking anything for it. I'm taking 40 pills a day - so I might be confused as to what is for what. Next time I'm talking to my doctor - I'll ask her.

Canary

Link to comment
Share on other sites
Carriefaith Enthusiast
Carriefaith
Posted

When I eat gluten by accident, I can get very bad heart palpitations, heart racing, and heart pain. The episodes can be quite scary. During my last severe episode, my heart was skipping beats, racing really fast and then I would get very sweaty, clammy, dizzy, nauseated, and then I'd feel like I would pass out. I think I even blacked out a few times. This all happened within 24 hours of eating at a restaurant. My doctor thinks that the heart problems are a wheat allergy reaction, since I am also allergic to wheat. He told me that I should not be eating food that I haven't seen being prepared, like at restaurants. I only eat food that I, or someone I trust, has prepared.

Link to comment
Share on other sites
megsylvan2 Apprentice
megsylvan2
Posted

Yes, I had them too. Some kind of sub atrial/ventricular complexes (don't remember the exact name). It was like Karen described - skipping a beat and then pounding and racing. It was a wild heart arrythmia. It made me cough and was very uncomfortable. I couldn't live with it. Had all the cardio testing done, and it was nothing significant. Was put on Atenolol, and that controlled it very well. Then thought I was getting some adverse side effects from the Atenolol. Happened to mention it to one doctor who told me that more likely the cause of the heart arrythmia was too high a dosage of synthroid - my thyroid medication. Endocrinologist tested that and found it was a little high. Reduced my dose, and I was able to go off they Atenolol without any return of heart symptoms.

All of this was pre-GI problems and pre-gluten free. After gluten free, I even had to give up they synthroid, and when I started taking that again, the heart problems came back. I have read here that gluten-free may help resolve thyroid issues, so now I'll need to work on that. But, long story short, you might want to get your thryoid hormones checked.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

I also get PVCs, my dad and I both do. I typically get them when I'm run down or on occasional after stopping suddenly during a work out. They are usually benign and most folks don't need meds. But if it is happening frequently or during activity, I would mention it to the doc. As long as I take care of myself I don't usually have any problems. When I do get them, it feels like the heart is stopping for a moment and I lose my breath. PS--There is some relationship to the Vagus nerve/Digestive system and PVCs also. Many years ago my dad had what we now call the "fake heart attack" with chest pain and arrythmias/palpitations. Docs did all the scans/tests and he was fine. Attributed the symptoms to a heavy meal he had eaten that night and the Vagus nerve :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748
    Aventine
    Newest Member
    Aventine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      50 YO Male Recently Diagnosed with Celiac Disease

      By trents · Posted

      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...