Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Teeth Grinding And Tmj


Guest BERNESES

Recommended Posts

Guest BERNESES

Hi Everyone- I have TMJ (I was diagnosed by my ear nose and throat doctor) and I have a mouth guard that I wear at night for teeth grinding. I've been wearing it religiously for the last two months because I noticed that I was waking up with a headache.

I thought it was helping until last night when, with mouth guard in, I was grinding my teeth so loudly that I woke my husband and myself up!

I think two thing may be at play here- I have arthritis in my neck along with a fusion at C4 and C5 and a cervical rib (yep- I've got a rib in my neck! Not funny, Adam :P ). The other thing is I take Celexa, and it is known to cause teeth grinding, and klonopin. I've cut down on both recently and I think that's when it started acting up, but I'm not sure.

I don't know what to do. I was just reading something that said you should wear your mouth guard all day in the beginning (first six weeks).

What do other people do for this? I was wondering if chiropractic treatment might be a good idea. Thanks, Beverly

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Bev--I have TMJ Disfunction, too. I was diagnosed by an ENT also. My dentist told me to wear the night guard as much as possible--just remove it to eat, brush teeth, etc at the beginning. I did that for a while--but it got old fast, if you know what I mean! It was hard to talk with it in, but that got easier the more I did it. I just wear it at night now--and not even every night. But if I go too long without using it, the jaw pain and back of the neck headaches tend to come back, too. I think checking with a Chiropractor is a good idea--I saw a Chiro. who was also an accupuncturist. He confirmed the TMJ, and worked primarily on my neck--that's where most of my pain is. Hope you get some relief soon! :)

Link to comment
Share on other sites
gabrielle Contributor

I also have TMJ with horrible teeth grinding/clenching. I do not have a mouth guard that is fit to my teeth exactly, but I was given a temporary mouth guard to pillow my teeth from grinding. My dentist said that I should wear the guard during the day if I feel stressful (because I clench my teeth when I get stressed). Maybe that would help... I know TMJ can be brought on a lot by stress, so maybe a massage or yes, even the chiropractor would help.

Sometimes, though, my mouth guard does not help and I still feel as though I am in pain. Do you have a mouth guard that is fit to your teeth? Maybe you should call the doctor that diagnosed you, or even see a dentist. Good luck!!

Link to comment
Share on other sites
kabowman Explorer

I think - it has been over 15 years - but I think I only wore it at night and while I was resting and not talking, chewing, etc. to teach my mouth the correct position and to stop the headaches.

What you might want to try in the day because the real mouth gards don't allow you to talk (or at least mine didn't), get a sports mouth guard for during the day or evening when you aren't eating/working so that you can talk a little easier. This is what my current dentist suggests to people having problems during the day and to see if that helps before going through getting the real devise. I'm not even sure where mine is or where it ended up but I had problems from my teens on and I can't remember the last time I had one of my dibilitating headaches. I did some damage to my jaw but it isn't too bad yet.

I have had my teeth re-ground about 5 or 6 times since then because my bite had readjusted but once you get the spacing down and the grinding stops, or slows, life is sooooo much better!!!!

Link to comment
Share on other sites
Guest BERNESES

OK- I'll give it a shot. The one I have is fit to my teeth specifically and maybe I'll talk less :P

Funny thing was, last night when it was really bad, I had just had a massage! EEK!

Link to comment
Share on other sites
Rusla Enthusiast

Well between my thirty year stint with tmj and my life long clenching and grinding issues. We tried every type of retainer but I would either choke at night or my tongue would flip it out during the day. I ended up breaking two of them before I became adept at catching them in mid air while talking to people. Now, thanks to all of that and Celiac, I don't have many teeth to worry about anymore, but I still have tmj.

Link to comment
Share on other sites
mouse Enthusiast

I have been wearing a mouth guard for too many years to count. I don't grind, but I clench my teeth during sleep. I had a new cap put in last fall when another tooth broke (love celiac disease) and I tried to force it in and thus cracked it big time. This Thursday I go back to the dentist and pick up my new one to the tune of $400. I can't wait to get it. I wear mine on the top and mine is ultra thin. I have them make mine thinner then usual as I can't stand the thick ones. I have tried a chiro on several occasions, but the neck adjustments always trigger my migraines. I have arthritis real bad in the cervical spine and even tho I really get tired of the neck crunching, I tell my chiro to stay away from the neck. The massage lady also stays away from that area.

Rusla, you are too funny-catching the mouthpieceLOL.

I have found mine, in the morning, in a hotel room, on the headboard. My husband and I have spent many hours on our hands and knees searching a hotel room for it as I would take it off in my sleep and throw it anywhere. We have taken our bedspread, etc. completely off of our bed in search of it. What a pain.

But, I only wear mine at night. When I first started to wear one, I was told to wear it 24/7 for quite awhile and that was an absolute pain. But, I did do it, except, when I wanted to talk and then I would take it out - speak - and then put it back in.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES
Rusla, you are too funny-catching the mouthpieceLOL.

I have found mine, in the morning, in a hotel room, on the headboard. My husband and I have spent many hours on our hands and knees searching a hotel room for it as I would take it off in my sleep and throw it anywhere. We have taken our bedspread, etc. completely off of our bed in search of it. What a pain.

OM- you guys are hilarious! I had read somewhere that people do throw them out in their sleep and I was like "Whaaaaaat?" but you are living proof. :P

Armetta- I did see a chiro for a long time and it helped with my lower back but it never really helped with my neck. What do you do for your cervical arthritis? I've had it since I was like 20 and I've done PT, chiro, massage and nothing really seems to help long term. Do you take medication for it? Do neck exercises?

Well, I just tried to wear my mouth guard and I hate it but I guess I'll suck it up. :wacko:

Link to comment
Share on other sites
barbara3675 Rookie

Many years ago I had a raging case of TMJ. I treated with a dentist that specialized in this. He made a special splint which I wore all the time and also I had some PT in his office. It got better enough that I could only wear the splint at night for many years to follow. I didn't grind my teet, but I did clench very badly. He wanted to build up my teeth so they all match and I refused (very costly) and I am very glad that I didn't do that. Several years later, a gal in his office admitted as much----that it was really unnecessary to go to those lengths. My advice is not to let any dentist try to talk you into extensive dental work. The splint should do it. In those days, though, they took an impression of your mouth and built you one kind of like they do false teeth. I still have mine and it is in such bad shape. I hope I never have to use it again. The dog got it a couple of times when I took it out and set it on the bed table!!!!!! One more time like that and it will be polished off. Once in awhile I get pain in that area and I just cringe as it reminds me of the terrible headaches and pain that I endured during that stage of my life. This can be so awful and those of you that are going through this stage of your life now, have my enduring sympathy. I will say, though, that I think if you use your splint and do the therapys.....it does seem to be a stage and it will pass. I was young, raising a house full of boys and working...you know the routine. When life smooths out a little it will get better......stress is a HUGE player in TMJ. It is also very closely linked with migraines. Barbara

Link to comment
Share on other sites
Guest BERNESES

I've read that stress plays a huge factor in TMJ too and I definitely have flare-ups and times when it is better. I was just sitting here thinking, Oh, what have I got to be stressed about? Then I thought hmm.. I'm having my gall bladder removed, looking for a house, in a PhD program studying for a week long exam, trying to concieve. I can't imagine what I could be stressed about :P

Link to comment
Share on other sites
mouse Enthusiast

Berneses, I used to wear a soft neck brace in the evenings. When early evening would arrive, the pain would get so bad, that all I wanted to do was just take my head off and set it somewhere. The neck brace would relieve the pain after about an hour. It was great. I still have it somewhere. I have not had to wear it for a couple of years and now all I have is the crunching, which I assume is calcium deposits shifting.

Link to comment
Share on other sites
Guest BERNESES

OK- that's good to know. I think I still have my soft brace. Ugh- wish none of us had this pain.

Link to comment
Share on other sites
mouse Enthusiast

I was trying to count all of auto-immune diseases that I have due to being an undiagnosed Celiac for so long. I have not even listed them all below my signature and maybe will do so in the future. I was reading in Dr. Green's new book that only 3% of the population has auto-immune diseases, but that 30% of Celiacs do. Also that it does not stop at one for us, but adds up to several. Life is great if we don't weaken :blink:

Link to comment
Share on other sites
Melzo Rookie

I had TMJ (really, really bad) for around 7 years and had tried several types of mouth pieces to help subside the pain. I actually had to be on pain meds because it hurt so bad. I have found for me that a upper mouth piece that is very thick helps (I wear it only at night). I have also been seeing a chiropractor for once a week for the last two years. I have had absolutely no pain using these two methods. It may be that you just need to find the right combination that suits you. Good luck!!

Link to comment
Share on other sites
Rusla Enthusiast

I got so good and so fast at catching the retainer when I was talking to someone, all they would see if my hand come up and shut. They never knew I was catching my retainer. I always thought that retainer catching should be an Olympic event.

Link to comment
Share on other sites
Guest BERNESES
I got so good and so fast at catching the retainer when I was talking to someone, all they would see if my hand come up and shut. They never knew I was catching my retainer. I always thought that retainer catching should be an Olympic event.

Totally cracking up! But you look too elegant for that!

armetta or anyone else- Fibromyalgia? I'm starting to feel like the world's biggest hypochondraic but I realized today that my jaw, face, neck, arms, wrists (supposedly have some carpal tunnel), and back all hurt. I took some ibuprofen and it seems to have dulled things a bit but Ii really try to stay away from NSAIDs.

Link to comment
Share on other sites
jerseyangel Proficient

B--The TMJ can affect the jaw, face, neck, and arms--I get it all. The reason I never persued the Fibro. for me is that I don't get pain when I press on an area--they're just sore. Much more so when I wake up--and are somewhat relieved by a shower (if I'm lucky that day!). I've often wondered about that, though, because I also get hip pain, and I doubt vey much that it's caused by the TMJ! The ENT that dx me said to take a pain reliever and put a warm cloth on the joints where the jaws come together in addition to the night guard. Also to eat soft foods when it acts up. I also gently massage the joints when they're particularly sore.

Link to comment
Share on other sites
mouse Enthusiast

I have had Fibro since the late 70's. When I got diagnosed they called it Fibrositis and they thought it was rare. I think there are 16 or 18 pressure points and when I was diagnosed I had every pressure point active. My TMJ was diagnosed when I was 19 (now 64) at the University of Washington dental school. No mouth pieces at that time. I was just told to not eat whole apples and don't let anyone operate on my jaw.

Link to comment
Share on other sites
Guest BERNESES

Thanks ladies- I don't think I have the pressure point pain. It's supposed to REALlY hurt when you press on one of those points, right?

Link to comment
Share on other sites
mouse Enthusiast

OH, YES, it really hurts. Especially the sides of my thighs. I sleep on my side and I am like the princess and the pea (fairy tale). I can not even have a PJ seam on my side or the bed sheet wrinkled.

Link to comment
Share on other sites
Guest BERNESES

Oh armetta- that's horrible! I definitely don't feel that- just achey. That must be excruciating. I'm so sorry. Hugs, B

Link to comment
Share on other sites
Moongirl Community Regular

Right around the time I started to get symptoms of celiac disease, I started to feel pain in my jaw. About a year later my dentist Dx me with tmj. I have a great mouth piece he made me i wear at night, its one of those thin flexy ones...and yes i too have been on the floor in the morning searching for it...lol

If effects so many places on ur face and neck. Sometimes i get the pain right about my eyebrows, but its not a headache...it called refferred (sp) pain. The point is ur jaws, but it can shoot to so many other places, because u have so many nerves in that area....i feel that moist heat helps when im really sore/stiff. Also i have a great massage therapist....she told me that acupucture would help a lot, but i havent got to that route yet.

People always tell me to take up yoga to, stretching out the muscles is also useful, but who has the time...oye!

Link to comment
Share on other sites
barbara3675 Rookie

It's interesting how it all goes.....TMJ years ago, migraines for over 30 years, fibro dx three years ago and now a gluten intolerance (with a gene dx) two years ago----a definite thread to be found here. Going to be 61 soon, the migraines still come occasionally, but THANK GOD for Imitrex, TMJ totally under control, take some serious meds for the fibro/now with infrequent flares (in one right now) and eating gluten-free----still have to work more than full time, stress level gets high at times. It's too bad all doctors just don't get the connection. Barbara

Link to comment
Share on other sites
Lillyth Explorer
What do other people do for this? I was wondering if chiropractic treatment might be a good idea. Thanks, Beverly

Dude... My chiro totally fixed my tmj...

I swear by it!

By the by, my chiros totally belive I have celiac, whereas my medical docs don't. Nuff said? :D

Link to comment
Share on other sites
CarlaB Enthusiast

I have had TMJ for as long as I can remember. My chiropractor could help tremendously, but it would always come back. I saw an orhtodontist who specializes in it, and got a splint that's worn 24/7 for six months (yes, even while eating). It pulls the bottom jaw down and forward so that the joint isn't jammed up (if that makes sense). Now the otho is grinding down the splint so that my teeth lengthen (on their own, not with caps or other expensive solutions). Believe it or not, they do grow. My top and bottom teeth have not touched for months except for the front teeth, but are now starting to come together. This has completely healed my TMJ!!! At this point I wear the splint at night because of my grinding. All was completely covered by my medical insurance (not dental) because it's a joint problem.

My chiropractor did help a lot with comfort, but my muscles needed to be trained to hold the jaw in place, which is what the splint did.

I think the whole thing is aggravated by the joint pain I get from the gluten intolerance.

Carla

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    2. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    4. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders
      9

      Joint swelling when ill even on gluten-free diet


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,066
    • Most Online (within 30 mins)
      7,748

    Danyelhack
    Newest Member
    Danyelhack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
×
×
  • Create New...