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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Great Find! Mac & Cheese
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I was talking with the woman at the Celiac Association on Friday who also has a two year old with celiac disease. She told me she'd had a GREAT find, and I wanted to share it with you all. In the spaghetti sauce section of normal grocery stores, where the Kraft Parmesan Cheese is stacked you may be able to find canisters of Kraft Mac & Cheese cheese. Yes, folks, it's possible to give your kids that lovely orange mac & Cheese that they seem only to want. It's a little canister, and it was $1.50 in my store, but it's well worth it to me. Cook the macaroni, toss in some butter and the cheese and walla! They'll never know the difference. Saved again by Kraft!

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Thank you for posting this info..... my daughter will be SO happy, she misses Mac-n-cheese!!!!!

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    • Thank you so much for those links, I will check into it. Her pediatrician told me this afternoon she is wanting to repeat the bloodwork since that one test was elevated. I'm relieved that her pediatrician didn't dismiss it like the other dr in the practice did.
    • http://www.houstonceliacs.org/ https://www.csaceliacs.org/csa_chapter_25.jsp You can check with these groups to see if they recommend any doctors in Houston.
    • I have been having issues with gluten for quite some time now and decided to go gluten free back in October, I finally got the celiac blood test a couple weeks ago and it came back inconclusive. My doctor referred me to a gastroenterologist who I saw today, she told me I'd have to eat gluten rich foods for 1 month and then have another blood test done....of it comes back negative she said I'd need to eat gluten another few weeks (up to another month) and then do a scope and biopsy....this would be hell on me as I have severe cramping and nausea when I am exposed to gluten.  I haven't actually eaten anything that is straight gluten like bread so I'm not sure what would happen. She gave me the option to hold off and continue my diet or go through 2 months of pure gluten exposure (and pain) my question is has anyone been faced with this? Should I just continue with my gluten free diet and assume I have it or is the diagnosis really that important? Doc says based on my symptoms and reactions I more than likely have it. 
    • Hello everyone,

      My name is Alessio, I'm a 25 year old male and for 24 of my 25 years I've been healthy as a rock. Things changed in July 2016 when I decided to quit smoking using Chantix. 3 weeks in the treatment to quit smoking I started suffering from insane anxiety (an entire week of depersonalization) and daily panic attacks, I was hospitalized for a week and sent home with Clonazepam (Klonopin) for the following couple of months which at the time helped a lot. At the time I was quite convinced that what I went through must have been a side effect of chantix but almost a year later and with the Celiac diagnosis I sort of suspect that quitting smoking might have triggered Celiac Disease for me, hence the panic attacks and the anxiety. 

      Around November 2016 I started suffering from throat flares, which was found to be acid reflux ( I very rarely suffered from heartburn, maybe a couple of occasions) but the throat flare was constant, from the moment I ingested something in the morning till when I went to bed. Turned out to be caused by Celiac as well (as soon as i started my gluten-free diet in late December the flare just vanished over a week time).

      I had my biopsy 5 days ago, on the 20th of April and in the GI notes he wrote that there were no signs of cancer, acid damage or ulcers but he could see villous atrophy. Leading up to the biopsy I had to go back to eating gluten for a month a half and that's where the current problems started. I have had a sore throat for the last 4 and a half weeks and 2 lymph nodes very close to the adam's apple (just above it, slightly to the side on both sides) have gotten hard. I've had an ultrasound on the one on my left ( which was the very first one to appear) and it showed a 2cm growth that showed no sign of malignancy, this node at the time was tender and moveable ( a good sign I've been told). On the right side of my neck the node seems to be hard and not moveable. I've had a CT scan for my neck ( I haven't personally seen the results yet) but my doctor does not seem concerned. I have been tested for Strep and Mono and both turned out to be negative.  

      2 weeks ago I started suffering from a very acute burning sensation just between my breasts and shoulders on both sides, it lasted for 3 days straight and woke me up several times and the fourth day i woke up with soreness ( which still persists) in the same areas that were burning, this lead my doctor to test me for Rheumatoid Factor and presence of ANA, the RF turned out to be 10 ( <12 is not indicative of disease) and my ANA were positive to a titer of 1:80 with a speckled pattern, again my doctor shows no signs of concern regarding this. 

      I am suffering from chronic fatigue at the moment and being a carpenter that really doesn't make life easy. I have lost around 20 pounds in the last 2 months, went from my standard 180 pounds to 160 and to today I don't know if I can attribute that to my gluten-free diet ( and minor cutoff of junk food) or whether there might be a second underlying issue going on right now. All in all since doing my gluten challenge I haven't been feeling well.

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      Thanks for your time, and I have learned tons from this website about dealing with Celiac Disease, Thank you.

      Alessio
    • @cyclinglady thanks for checking in  Restricted diet didn't do much. Still had some VA last time they checked. Heath still otherwise fine, so RCD remains unlikely. My sxs kick in lockstep with life stress, so that kind of points to some general IBS stuff on top of celiac disease. Very doubtful I'm getting any gluten in, but fingers crossed my system is just a little hyper-vigilant, as I ponder on this thread.
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