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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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kalo

Why to be careful with Lotions, makeup, shampoos etc.

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Just a little note that I discovered at the salon. My haircolor dye has wheat in it! Luckily there is another brand that does not. Unfortunately, she checked AFTER she had put my color on! I did bring my own shampoo and conditioner though. So, before coloring, please check out the ingredients. (I had no ill effects though, thank goodness).

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Guest NitaB

My daughter is a hair stylist, so she has been very careful with me! We've learned to read the labels of the products she uses. She even got me some new products, and took my leftovers in trade! I will remember when I go for a color, to have her check that, too! Thanks for the tips!

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Clinique contacted me with a list of names for wheat, barley, oat etc. chemical names.

Wheat ingredients all say "wheat" in them (Ex: hydrolized wheat protein) except triticum vulgare. A barley derived ingredient is "hordeum vulgare" and something called "panicum Miliaceum" comes from millet whatever that is. The other ingredients say the actual grain used. I was surprised that their lipstick which I have used for years has wheat in it. I gave mine away and bought Lancome. I have to be really careful with what I use, because my major symptom is DH. I'm sure many people with celiac disease will have no reaction from wheat in cosmetics, but I do.

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Guest NitaB

Thank you, Pegster!

I will look at the Lancome line, also. I think my Mary Kay and Estee Lauder lines both have several products with wheat in them.

Even though I haven't been biopsied for DH, I may have it. I still get small, sore bumps on my elbows and knees, but they come and go so quick, I haven't had a chance to get an appt. with a dermatologist! I think mine have never been real bad, so hadn't thought much about it!

Nita

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HI everyone!

Thanks for the info. on shampoo. I started breaking out on my face and realized that my conditioner from Paul Mitchell has wheat germ in it. Been gluten-free for 6 mo. I bought some Garnier Fructis and like it. I also have been using Mary Kay face cleansing products. I called there 1-800 and they are suppose to be sending me the ingred. in the mail. Why they just couldn't tell me on the phone I don't know.

Anyone know about the cleansers???????? I don't use the make-up or cosmetics

Something is really breaking my face out. Anyone else having that problem. It all seemed to start after I had a gluten accident.

Maybe it hormones- I don't know

Any help would be appreciated

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HI everyone!

Thanks for the info. on shampoo. I started breaking out on my face and realized that my conditioner from Paul Mitchell has wheat germ in it. Been gluten-free for 6 mo. I bought some Garnier Fructis and like it. I also have been using Mary Kay face cleansing products. I called there 1-800 and they are suppose to be sending me the ingred. in the mail. Why they just couldn't tell me on the phone I don't know.

Anyone know about the cleansers???????? I don't use the make-up or cosmetics

Something is really breaking my face out. Anyone else having that problem. It all seemed to start after I had a gluten accident.

Maybe it hormones- I don't know

Any help would be appreciated

Thanks!!!!

Joyce

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Tha Pantene shampoo's and continioners are gluten-free.

As for make-up, I use Nutragena (sp?) and Burt's Bee's. Believe it or not, Burt's makes some pretty good make-up.

I do not have DH, but my hands split open when ever I touch Gluten. So I am a believer in keep everything you use gluten-free.

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I really like cetaphil cleanser for my face and have had no problems with it. And for bath soaps I splurge and buy locally made ones with just oils and stuff like that in them. Still looking for a good body moisturizer, though.

Also, if you really want a salon style gluten-free shampoo/conditioner, I use Kenra (I read every last stinkin' shampoo and conditioner bottle in ULTA one day). I have found it helps for me to alternate between that and fructis, I'd hate to become sensitive to one of those.

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HI everyone,

I use MAC cosmetics (which I love) and Tom's of Maine toothpaste. I cannot use Crest or Colgate, even though they are gluten-free. They make my mouth burn and I end up with acne on my face if the toothpaste touches my skin. I also use Burt's Bees face cleanser, toner, lotion, lip balm, and soap. Nearly everything they make is gluten-free. Call them to get the complete list; they are a wonderful company.

MAC cosmetics are usually available at MAC shops in large malls. I have also seen them at cosmetic counters in large department stores. MAC also has a 40% discount program for people in the performing arts/flim/television business. YOu just pay a small fee each year.

Burt's Bees products are available @ Trader joe's, Mrs Greens, Whole Foods Market, and through many mail-order companies.

I gave up on Neutrogena products about 6 months ago. They made me itchy. The company cannot guarantee that their products are gluten-free, so OUT THEY GO! It made me sad to give up my favorite Almay cosmetics (which aren't gluten-free) last fall, too, but honestly, my skin is so much better using MAC and BURT"S BEES !!!!

It was so interesting to read all of these posts. I made the HUGE mistake of coloring my hair at Christmas time and my scalp was so incredibly itchy for several months. I have never had experienced anything like that. I didn't even realize that the gloves that the hairdresser was wearing contained latex, which I am allergic to, so at this point, we aren't sure if the reaction was to gluten ot latex. However, I don't think I will ever color my hair again. It is just not worth it!

My nutritionist told me not to worry about dish soap and stuff like that, since you always rinse it after washing. I haven't even checked those products, but never have reactions at home. I am extremely sensitive to gluten exposure and have horrible reactions and symptoms which last for up to 2 weeks after even one speck of gluten, so i am very careful.

big apple kat

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I bought Retrohair shampoo and conditioner at the salon after reading every ingredient. NO WHERE did they mention gluten or wheat. Today, I called them just to make sure and guess what? All their products contain wheat protein! This really drives home the importance of contacting the manufacturers to me! I was curious as my hands are breaking out. Now I know why. (I was diagnosed with intestinal celiac disease not the dh but I think they are linked). Anyhow, just wanted to share...

Terri in Virginia

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Guest gillian502

It is so funny how if 10 different people call the same company, they'll get 10 different responses! I called about Garnier Fructis about 4 months ago, and was told they contained gluten. Perhaps the representative on the phone didn't know what she was talking about. Also, I received a list from Neutrogena listing many, many products of theirs that they say are gluten-free. They never said anything about cross-contamination. Also, I wanted to mention about Pantene, there are some that are gluten-free and others that the representative said may not be, because they contain fragrence and they cannot be certain if that involves gluten. So beware. Cetaphil is not gluten-free at all...a shame, too, because I really liked them! They have one gluten-free product they told me about, can't remember which one it is, but the rest is gluten. I never trust labels, I read AND I call, because I'm always paranoid about cross-contaminating.

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Guest NitaB

Well, I made a big mistake Thurs. My daughter is a hairdresser and I went to her shop. She has been so good to read the labels for me. She was running behind, as I was her last appt. of the day. I didn't mind, of course. But, she just started putting color on, while we visited. It was completely on, when I thought about the color! We had talked about shampoo, conditioner, etc, not thinking about color! Both of the kinds they use have wheat protein in them! It is good for hair, so is in many products. She will look for something else for me, for next time. I'm not real sensitive to it, but do have itching on my scalp, and a couple of bumps, that are extra itchy. I've had them always, not knowing why! Nor even questioning why, ever! Besides celiac disease, I think the scars on my elbows and knees from itchy, painful sores last winter, were probably DH. I've not had a receent outbreak, so haven't had a skin biopsy.

So, I'm learning the hard way still!

Thank you everyone for posting your findings about products! :)

Nita

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Thanks for sharing your findings with us...

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Wow, that is strange about the Garnier Fructis. The lady told me in early June that all their products are gluten-free. And, if you read the label, it appear so. I guess you never know! As for face cream, when I called Lancome they said all their products are gluten-free but of course there is always a risk of cross contamination from somewhere (I think they need to say that to avoid being sued), so I use their make up and face creams and face cleaners exclusively now. When I contacted Dove they said theirs was gluten-free too, but I'm not crazy about it. We'll keep trying!

Terri

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I really think the Garnier Fructis is gluten-free. My skin is so sensitive, especially on my scalp and face, I get DH when anything with wheat protein touches it. I don't react at all to the Garnier Fructis. By the way, I noticed wheat protein in the ingredients of nail polish!!! I can't believe how long it takes me to shop for everything these days. I carry a magnifying glass for reading small print ingredients.

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Guest NitaB

I just want to reiterate what I said about the hair coloring mistake! It's now been 4 days, and my scalp itches so bad! I think it has always felt tingly when I've had the color on before, and just didn't think anything of it! Now I think the tingling may not be common to others without HD! The back of my neck is red from the scratching! :(

So, keep the tips and reminders coming! We will all learn through each other! :)

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Hey Everyone,

Here's a reply that I just received today from the Oil of Olay Co.:

I'm sorry about your experience with Olay Complete Defense SPF 30. Our

products are thoroughly tested to be safe when used as directed, and we

wouldn't expect the results you described.

We know Celiac is a serious disease, so we want to give you clear

information regarding the use of our beauty care products. If wheat and/or

gluten aren't directly added to a product by us, these ingredients

won't be listed on our packages. Like many companies, we often purchase

the scents for fragranced products from outside suppliers, and the

components of these substances are proprietary information belonging to those

companies. Therefore it's possible that a very small amount (generally

parts per million) of gluten may be present.

We sought advice from physicians; they told us it would be very

unlikely a person with Celiac disease would have a reaction from a trace

amount of gluten coming into contact with his skin or hair. This is because

wheat, rye, barley and/or gluten generally cause symptoms when they're

ingested. Since our beauty care products are designed to be used

externally on the skin, their use shouldn't be an issue for someone with

this disease.

Since gluten sensitivity can vary among people, it would be best if you

consulted with your physician about the use of all types of consumable

goods, if you haven't already. You might even consider using one of

our fragrance free products that doesn't list gluten or wheat extracts on

the label.

I hope this response has been helpful to you. For more information

about Celiac, you may want to check out http://celiac.com/ and

http://celiac.org

If you have further questions or concerns, remember we're only an email

away! Thanks for getting in touch with us.

Dana

Olay Team

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Also Johnson & Johnson baby shampoo is gluten-free - I called the manuf.

Dawn :D

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Just an FYI Burts Bees has a line of makeup, shampoos, lotions and even toothpastes, which is wonderful smells great, is gluten-free friendly and is also eco friendly plus the manufacturer will provide you with a list of all their gluten free products. We love their lip balms and lotions as they smell great and feel awesome too. I use their foundation/moisturized tint and its great. :D

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Gillian--Did the manufacturer tell you Cetaphil had gluten in it because I don't see it in the ingredients? I'm very sensitive to gluten in products, or at least to hydrolyzed wheat protein and the like, and I have used Cetaphil for years with no problem. I'm just wondering if I've missed something. I'm talking about the cleanser, not the lotion.

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Guest sushi

Reading this thread of postings has been very enlightening. Does anyone know if there is a list posted anywhere of what is gluten-free? I have been looking for a shampoo and will check out those mentioned here. I have also been wondering if I should continue coloring my hair. I had a very bad allergic reaction the last time I went to the hair dresser and had my hair colored.

Susette

HI

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A list of products would be very helpful. Try http://www.celiac.com/st_main.html?p_catid...-12104486024.2d

the list of mainstream products that are gluten-free on this website.

I had my hairdresser check the ingredients on all of her haircolors for me and she found one that didn't have wheat listed. I also have her put a roll of cotton around my hairline which really helps because I used to get blisters on my face after a dye job. I'm not ready to give up coloring my hair. I also bring my own shampoo with me to the hairdresser now.

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I don't really use lotion...don't have issues with my shampoo....use Banana Boat sunscreen.......but about the soap.

My dad travels a lot and sometimes he brings home some of the soaps from hotels if he stays at really good ones. Is this bad?.....how impt. is the soap thing? I wash my hands A LOT...I used to do it because I thought that I just had a terrible immune system and washing a lot would avoid germs, thus avoid sick. Since then, I'm not as crazy about washing my hands unnecessarily, but still do it a lot.....esp. with cross-contamination issues. Is soap a big issue? If so, what are some mainstream brands of soap that I could use? Thanks.

-celiac3270

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celiac3270,

The celiac disease experts say that things that touch your skin do not affect celiac.

My nutritionist told me that things like dish soap don't matter because you rinse the dishes after using the soap.

However, it's obvious from reading posts on this site that a lot of people are sensitive to products on the skin, whether or not they have an intestinal effect.

I use gluten-free choices only in instances where there is a possibility of ingestion. (hand lotion, makeup, lipstick, suncreen, hairspray, hand wipes, etc) I am not particularly careful about soap, dish detergent, etc, since they are rinsed clean.

Best wishes,

Kathleen

(gluten-free since Aug. 2003, confirmed celiac disease, possible DH)

PS BY the way, has your immune system improved since diagnosis? I have had substantial improvement and rarely even get colds now. The pneumovax helped a lot, though.

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I was just at a Clinique counter & their makeup does say wheat & the newer one says barley. The girl argued with me that if I hadn't had a problem, then what does it matter. Well, it sure explains why my rash has gone away since I quit using Clinique products. Same with Estee Lauder.

I am now going to try Bare Essentials makeup - made from crushed minerals - "definately gluten-free".

I have been using one Neutrogena shampoo/conditioner that doesn't have anything listed, but I can't tell you how bad my head itches.

I did ask Victoria's Secret about a specific lotion & splash & they said it was gluten-free.

I am beginning to think it's all in who you ask - you can get many different answers from the same darn company!

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