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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Burning Tongue, Mouth Sores
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10 posts in this topic

This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

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This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

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Wow--that's interesting. I used to get a burning feeling in my mouth--like the whole inside of my mouth was on fire. That has not happened once since I went gluten-free. I do believe it is connected.

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My son had something called a geometric tongue before going gluten free. It just looked like sores all over his tongue. He was too young to complain about it, though. It's clear now that he's gluten-free. That is a symptom I have read about in various places.

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I have the same thing. I have had mouth sores for 10 years and used to go down inside me throat while in my mouth and now they are only on my tongue. I suffered with them for four years then about 6 years ago my asthma/Allergy specialist presribed Paddock 10mg Troche. They helped them. You suck on three tablets a day for a couple of days then they disappear. You must remember though after you have these attacks to change your toothbrush so that it doesn't come back. If you are wondering what they are, they are to treat fungus. Now it probly isn't a fungus but a reaction from the celiac disease. People who have this disease get mouth sores. These pill are a miracle worker and the best part is they have no taste. I have these tablets with me all the time just in case I start to get them. I now only get them every 2-3 months and then I use this treatment and they go away. I have been recently diagnosed with Celiac and my great uncle (who died from not treating his celiac) used this treatment, too. I hope this works because when I was got them I couldn't go to school for 2 weeks at a time. They are a life saver. Make sure they are the tablets because they can come in powder form and the tablets work better. Also they won't have any side effects because they are not absorbed in the blood stream.

Once again the medication is Paddock 10mg---use 3 times daily till it is all cleared up...also when you have these attacks stay away from salty foods, fruit, juice. Altoids and Chloraseptic spray help with itchness and burny feeling. Altoids help with the treatment from the tablets and Choraspetic spray helps keep the tongue numb.

Get some fast...,

Ashley

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It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

It can give you a false negative if you went gluten free before you blood tests!

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OMG! I though this was my own post when I read this!!!!! I had this exact same thing in febuary, soars, followed by a burning tounge, making it hard for me to even talk! I went to the helath center at school and they just told me type II herpes: canker soars...these were not canker soars!!! It would come and go and eventually a friend recommended to try going gluten-free, it worked! I havent been diagnosed though...and I still have occasional redness on my tounge and litte dots that look like soars, but nothing like what i had before.....

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I believe there is absolutely a connection!! I've had the tongue, mouth & throat sores for most of my 38 years of life. A couple of times diagnosed as canker sores or a herpes virus, then fishered tongue, & geographic tongue. I have Crohn's Disease, & after lots of specialists & GI Dr's etc it was told to me that it makes perfect sense....as we now know that celiacs and IBD often go hand in hand, and that they affect your intestinal tract-which starts in the mouth! It also goes to show, if that's what your tongue looks like, imagine what the rest of your body is going thru as a response to what we are consuming!

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OMG this is a wake up for me too, I have had terrible mouth sores for years now, they come and go but they are all over my mouth along my gums, top of mouth under tongue and on tongue.

My doctor keeps giving me antibiotics to swish and spit and it never works I keep telling him, and toothpaste and mouthwash can agrivate it.

I am also B12 insufficient and anemic. My doctor treats every symptom i have as a seperate and exclusive thing but I think he needs to put these things together to come up with a comprehensive diagnosis.

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I first had geographic tongue around age 10. Doc told my mom (who is 100% celiac and in denial)some people just have it and it wasn't a big deal. 25 years later... no more geographic tongue, mouth sores, or burning tongue!

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