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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

I Go To Sleep, And Sleep Through The Night But Wake Up Tired Still...question:

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Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

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I've read that tiredness is the most common symptom of celiac disease.

The feeling of exhaustion was one of the main things that made me originally think there was something wrong with me, along with diarrhoea and weight loss. There were other things that I didn't even think of as symptoms until they disappeared when I changed my diet and came back when I glutened myself.

The tiredness though! It took a while to get really better, maybe a few months even, but when I had my first major glutening I really recognised it again. I explained it to my DH as waking up feeling as though I'd spent the night working down a coal-mine, with physical exhaustion and mental must-get-some-sleep immediately, even after going to bed early and actually getting a good night's sleep. I just couldn't remember how I managed to function before going gluten-free.

Now, most days I get dragged out of bed by the cat wanting feeding at the crack of dawn, (not saying I leap out of bed joyfully or anything) but once I'm up I start thinking, 'Ooh goody, I'm doing such-and-such today... It's beautiful outside... The birds are tweeting again..." I walk to work with an absolutely beautiful view of a mountain with the sun behind it and I often get that feeling of my heart swelling with happiness at how great it is to be up and about and making the most of the day when I look at it. I don't think I used to notice it at all hardly. The exhaustion took away all the joyous feelings. I don't even think I was depressed - not anything, just tired.

Thanks so much for that description. I had been on a cleansing diet of fruit, vegetables and rice for a week and felt much better. Then I ordered a hamburger without a bun and fries two days ago, and for the past two days feel just awful: fatigue, muscle pain, indigestion. Your post explains it well. I am still learning and will be really careful about restaurant grills and frying oil from now on. Karen

When I'm feeling well I might feel a little achy and tired after a hard day a work. If I start feeling that way after a few hours I start thinking about what I ate the day before. If I feel that way as soon as I get up I know I've gone wrong somewhere.

So be hopeful, I think it will get better, although it may take awhile.

Best wishes,


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sleep apnea!

get tested for it, go to a sleep clinic and get a sleep study, that is how i felt so much through my childhood, and in 8th gradi i was finally diagnosed w/ sleep apnea. my CPAP helped a lot, but having jaw surgery really helped a lot!

now i sleep through the night, and can stay awake in chem class, where in middle school, i could baraly stay awake in algebra.

it can also be a symptom of celiac, but i would say go to a sleep clinic before it gets any more worse.

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Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

im sooooo tired as well, before i knew what was wring with me i trained really hard bur now i find it hard just to get out of bed and the boys to sxool, ive been cheating i have to admit ive taken the odd pro plus in the morning just to wake me up, im struggling, im sure that once i get my intake of carbs sorted out ill adjust.

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This was certainly my biggest symptom when I got tested two weeks ago; phenomenal daytime sleepiness. I had studied it and saw all the sleep problems that it could be; and I do seem to have a stuffy nose for the past two years. Anyway, I put mine down to anemia. I am on the mend there, and seem to be doing better staying awake the whole day and not wanting to stay in bed all day. I do still sleep late - always have.

If your insurance covers sleep clinic stuff, go for it...how fun to know. But I'm just worried about the cost of such things for me, so I'm going to hold out and see how the vitamin/mineral thing will work out.

good luck.

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    • 6 months for me stuff was still iffy. I was having bad days good days wtf days. Seemed like ANY change and my body threw a tantrum like a little kid. Yeah sleep patterns lol. I STILL CAN not change them I HAVE to go to bed at a certain time and WAKE at a certain time (9pm-4am)or my cycle goes all out of wack (also take a mid afternoon nap) , the entire day becomes ruined. Meals are the same way. There is this like 30-60mins window if I miss this shot my body goes all kinds of wonky. Mostly it become anemic and my got shuts down and constipation sets in. Always have to have hot fluids or this happens also.....no more cold drinks lol.

      EVEN if your levels are fine, supplementing is something many of us HAVE to do. For me I do not feel "Normal" unless I take my B-vitamins etc. Heck if i miss my magnesium supplement I block up, stop stomach emptying, get cramps, and generally vomit after day 2 if I eat anything. Supplementing is the new "Normal" for me.

      Still to this day food diary shows ups and downs with certain foods, I can not eat many foods, and others HAVE to be prepared in a certain way. heck up until recently I assumed it was a histamine issue or mast cell. Then I found some high histamine foods that should did not bother me go figure, then learned of something called Lectins and my prep methods that work with foods.....corresponds to lowering lectin content.....yeah SO I might have solved that mystery but am experimenting with it still.

      Health wise I am now doing much better and after 4 years found that "Perfect" diet plan for my body (at least for now). Putting on weight,  and trying to body build, still seems to yoyo with ups and days but less now.
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