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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Suzn14806    0

Have any of you had the ELISA food intolerance test that you do at home done?

http://www.yorkallergyusa.com/

I have been sick at least once a week sometimes for two or three days in the last month. I have been gluten-free for 7 months and I am really very, very careful. Our house is totally gluten-free. I even buy gluten-free cereal and snacks for when my grandkids come to visit. I seldom eat anything that I haven't made from scratch in my own kitchen. I am quite sure that I have eliminated as many sources of contamination as are humanly possible.

I am thinking that I must have an intolerance or allergy to something in addition to the gluten. The ELISA test looks like a good way to go but it is so expensive I wondered if anyone else has done it and if you found the results to be accurate and worth the investment.

(I have not been able to work for the last six months because of all the sick days that I still have so money has definately become a serious consideration.)

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burdee    80

Maybe you've already considered this, :huh: but I thought I'd throw this out: Have you eliminated lactose as well? I discovered I was lactose intolerant LONG before I discovered gluten intolerance (which often causes lactose intolerance by damaging the villi which digest lactose). I use lactaid supplements to consume dairy. However, I may also be sensitve to caseine. I'm still awaiting my Enterolab package of tests with the free milk sensitivity test. :( I hope I'm not also sensitive to casein--Lactaid has allowed me to eat dairy all these years ... or maybe not. Anyway you might eliminate all dairy or use lactaid to see if you symptoms disappear, before you try to eliminate everything. Dealing with lactose and gluten intolerance are time-consuming enough for me. :blink:

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booksrfun    0

Hi,

Due to numerous ear infections, stuffy nose, headaches and dizziness our nutritionist recommended the York Allergy test for my daughter. It was very easy to do at home and the results came in about 3 weeks. Unfortunately, my daughter showed reactions to everything from gluten, milk, corn, eggs, and wheat to oranges and cashews. I have eliminated most from her diet and she is SOOOOOOOO much better. She used to have a headache everyday...now no more headaches or stuffiness. She still gets occasional (sp?) dizziness but I would definietly recommend the lab/test. It is a highly ranked lab because their results are reliable unlike other labs. (samples of the same blood yielded similar test results).

It has been the best thing I have done for my daughter. She had been to 3 allergists and did not react to the food "skin prick tests" so nobody thought that she had food allergies.

If you have any questions please contact me via this site.

Becky

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    • I'm sorry you're feeling poorly. As I read the good advice you already got and your message, I was wondering a couple of things. 1. You mention your very strict schedule that keeps you on track but it says eating decently well but it doesn't say cooking. If you are eating out a lot, that is clearly a place where you could be getting cross contaminated. 2. Do you have a roommate?  Maybe he/she is not aware of some of your issues (cooking with flour in the house etc) 3. How do you live on only 6 hours of sleep per night?  Maybe for a couple of nights that's enough, but generally speaking people need more sleep than that. Maybe long term sleep deprivation is playing into some of your illness? Good luck!
    • Thank you everyone for your replies. ravenwoodglass: Your advice was helpful  I’ll try to avoid items like this which have so many unnecessary and artificial ingredients – they make me feel out of control. A food and symptom diary is a great idea - especially when trying out new brands of foods. artistsl: Thanks for the tip – I don’t live in the US/UK unfortunately so I won’t be able to purchase this specific brand of kefir. However, I agree that it’s a good idea to try and find another brand which isn’t full of additives. It won’t be a problem.. I’m NCGS as well and I’m very familiar with brain fog and dizziness.. very unpleasant. As for the locust bean gum, I’ll definitely try to avoid it. I don’t think I have an issue with dairy but know that many celiacs/ncgs people do so it’s a good suggestion. cyclinglady: No, I don’t have an intolerance to corn in general.. but maybe I do have some kind of intolerance to the glucose fructose syrup.. it’s a very artificial and processed ingredient and this is not the first time I’ve found myself reacting in a bad way to an item that includes it. Jmg: Yes, the unflavoured ones would be safer, I think. I’m almost sure my reaction wasn’t to dairy as such but to one (or more) of the additives. The reason is that I’ve been eating lots of dairy products since I went off gluten and have been ok. The pattern is this (I guess): if it’s a normal dairy product such as a yogurt made of milk/cream + yogurt cultures (+ fruit + sugar), it’s ok. And unflavoured milk and all kinds of ‘real’ cheese are fine, too: mozzarella, cheddar, cottage cheese etc. Once a yogurt/kefir or another milk product includes additives or unnatural ingredients, there seems to be a problem. You’re right - there are other possible sources of cc.. I try to think about them one by one because it really gets very confusing when there are many possible sources of a glutening/cc.. it’s almost like an investigation. It’s a very good point though, thanks     Feeneyja: Thanks for the suggestion. As I said, for now I’ll probably assume I’m not dairy intolerant but will definitely be wary of it and bear it in mind because many of you guys have pointed it out.    
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