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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cold Hands And Feet.
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21 posts in this topic

I have had cold hand and feet almost my whole life,, or as long as I can remember.

I was wondering if anyone knew if this was related to celiacs disease. Does anyone else have cold hands and feet almost all the time?

They sometimes get clammy too.

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My feet get very clammy and cold. In the wintertime, I spray them with antiperspirant to stop them from sweating so much. My hands get cold, but I put them in pockets or under my arms.

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Hi Barilla

I am interested to hear responses to this as well. I've been dx with Raynaud's so I get cold waaay too easily and my body then over reacts.

ok, I am about to get very convoluted: I found out about Raynaud's and went to the Dr. to ask about it. I learned that Raynaud's can be related to Lupus so I had to be tested for that. The Dr. gave me meds to use only if I was doing something in the cold (or for use in winter daily) and tested me for Lupus. She thought I had it after taking blood, but then in follow up tests I did not test positive for it. Lupus can be related to celiac disease since it is another autoimmune disease. So. . somehow I think they could be related, but I have no idea exactly.

I'll be going to the dr tomorrow and friday so I'll ask and report back :)

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How is your thyroid? Low thryoid can cause that.

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My feet get very clammy and cold. In the wintertime, I spray them with antiperspirant to stop them from sweating so much. My hands get cold, but I put them in pockets or under my arms.

Hi! That's a good idea. I'll have to try that. My grandmother use to always say, cold hands means that you have a warm heart! :)

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I've always had cold hands and feet too, but wonder if it gets worse when I'm anemic. I'm anemic right now pretty badly, and I'm all over cold, even though it might be 70 outside. Okay, we're not really having spring this year, so it is not 70 outside, it's 60. But still....

maybe anemia?

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How is your thyroid? Low thryoid can cause that.

Maybe I should ask my doctor to test me for Lupus and Raynaud and anemia.

When they checked my levels for celiac's disease (a few weeks ago) I noticed that they checked my thyroid. They said that came back fine. I wonder if it's something they should keep checking.

I'm the same way,, somedays when it is beautiful outside,, I am so cold. It's like my body won't warm up.

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I was just coming here to ask or search about being cold all the time. It is in the 70s here today and I am freezing still......sweatshirt over a shirt and capri pants. I am not underweight, thryroid is fine. I am getting tired of dressing like it is still winter! LOL!

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I also have Raynoids - cold hands and feet (but the rest of me overheats a lot). I have an extremely hard time when I go skiing b/c no matter how many socks and gloves I wear, my toes and fingers go numb immediately. I have to go inside after every run to warm them up. Pain in the butt! I also have night sweats - does anyone else have those?

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I also have Raynoids - cold hands and feet (but the rest of me overheats a lot). I have an extremely hard time when I go skiing b/c no matter how many socks and gloves I wear, my toes and fingers go numb immediately. I have to go inside after every run to warm them up. Pain in the butt! I also have night sweats - does anyone else have those?

That sounds just like my alpine experiences. The medication I would take before a snowboard day helped a lot. I forget what it is called, otherwise I would let you know!

I do get extra hot easily, too. I have a small window of comfort as far as temps. go.

p.s. I am small but not underweight, and thyroid is ok according to recent blood test for celiac.

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I also have Raynoids - cold hands and feet (but the rest of me overheats a lot). I have an extremely hard time when I go skiing b/c no matter how many socks and gloves I wear, my toes and fingers go numb immediately. I have to go inside after every run to warm them up. Pain in the butt! I also have night sweats - does anyone else have those?

I have this too! My hands and feet and lips and nose get really really cold, like ice. My fingernails and toenails will turn blue. Also my core body temp will feel like it just bottoms out, I will be freezing. Sometimes so freezing that my body will shake and my teeth chatter. (do teeth chatter?) Then I will have hot flashes and sweating and a flush face, totally the opposite end of the spectrum.

I always thought the cold was connected to circulation, or lack of.

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Talking about cold noses made me laugh. When my husband and I were dating and he was driving somewhere, I leaned over and put my nose in his cheek and stayed there. He asked what I was doing, and I answered that I was warming my nose! To this day, I get a cold nose and warm it that way!

It's usually REALLY cold out when that happens, so I don't think it's related to celiac for me.

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Yes, I have had cold hands and feet all my life too.

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cold hands aren't a celiac trait, they're a female trait B)... my ex's hands could steal the warmth out of a fridge..

I actually have Raynaud's as well but I'm hot almost all the time, maybe even moreso since going gluten-free.. I do wear gloves on my hands when it's cold out as a preventative measure but haven't had many problems with the Raynaud's since I was in high school... a few fingers used to lose all their color and become numb even when it wasn't that cold outside... I'd just run them under hot water for a couple minutes and they'd be alright.. there was even one time I remember from high school sitting at a computer and my fingers going numb for no reason.. but it's been a number of years since I've had this really happen..

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I also have Raynauld's and at times get very hot feeling everywhere but hands and feet are ice cold. My hubby took to calling me his little ice cube!!!!! Now isn't that flattering and it also leaves a hugh space for off color comments....

thyroid also plays into this factor.

mamaw

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I have Raynaud's Syndrome, I think. (A rhumotologist told me I had it without doing any tests way back when I was in my early 20's. I just told him my symptoms. He did test me for Lupus though. I've been tested for Lupus tons of times, all coming back negative.)

I did some googling on Raynaud's and found that it is also an autoimmune disease. I didn't know that. I had always thought that I had it because I got a mild case of frost bite as a child, but now I'm not so sure. When I'm cold, my fingers loose blood down to my knuckles and become numb. It gets me really freaked out (and my husband too) if I'm out and have no way to warm them up. I bought some of those chemical hand warmer packs which I plan to use next winter. (It's gotten worse since I've been gluten free.)

Is there any reason to get a properly tested diagnosis? I'm kind of sick of doctors at this point.

Made me laugh about the cold nose. I am always finding some warm part of my husband to warm my nose, toes, and knees. Since I have been gluten free, dairy free and lots of other things-free, I have lost lots of weight. I'm cold most of the time, wearing layers which get taken off and put back on during the day and evening. It's 90 today and I'm finally hot!

Bye, Cape

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It's thyroid. Don't believe the TSH tests. A couple of years ago, they changed the standards for the test and made the top TSH normal number 3.3, AND advised that some people need treatment if TSH is over 2. Most labs did not bother changing their normal range, which was 5.5. So many people are over the correct (3.3) number but the lab still says it's normal since it's under 5.5. And the TSH isn't a thyroid hormone anyway, it's a pituitary one, so the test is often not accurate for thyroid. The best test for thyroid is a free T3. ASK your doctor for that test. And the free T3 number should be in the top third of the "normal" range. So don't let them tell you it's normal if it just hits the bottom of the labs range.

Debbie

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You also might want to do an internet seach regarding Dr. Broda Barnes who thought temperature was the best indicator of thyroid. Just like celiac testing, throid testing could use some updating.

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I've just been diagnosed with celiac, and I've had cold hands and feet my whole life! That's interesting. I wonder if it could be connected.

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It seems like it could be realated to anemia because it has a lot to do with bad circulation.

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i cant tell you the number of times my boyfriend and i have been on the couch taking a nap and my feet (Heaven forbid!) touch him, he sits up, wide awake and puts socks on my feet! :D my mom says i was her little ice cube baby, my hands, feet and nose were always cold. The drs tested my circulation and said everything was normal though.

Im not sure how much of it is related to anemia since i have to be tested for anemia every month and its never come back positive. :huh:

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