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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lactose Intolerant?
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7 posts in this topic

I have only been gluten-free for a few weeks now, but still get sick occasionally, even when I eat things that I KNOW are gluten-free. It's usually after I eat a dairy product, but it does not happen everytime I eat a dairy product. What should I do?

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Many people who have had longterm celiac intestinal damage (flattened villi) can no longer digest lactose protein from dairy. I actually discovered I had lactose intolerance (my symptoms: bloating, gas, cramping and occasional diarrhea), before I learned I was celiac. I thought it was family heritage/genetics (American Indian on my dad's side who are usually lactose intolerant). So I started using 'lactaid' supplements when I consumed dairy to digest lactose. However, gluten intolerance later explained my lactose intolerance. Some people are also sensitive to caseine which Lactaid may not help. So I would suggest: (1) If you really like dairy, try 'lactaid' supplements to help digest lactose; or (2) avoid all dairy products (substitute soy milk if you need a form of milk unless you have problems with soy), esp. if you suspect caseine sensitivity after trying 'lactaid' without success. After following a gluten free diet for awhile (to allow their small intestines to heal) some people regain the ability to digest lactose. I'm hoping for that, but won't count on it. <_<

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I've heard that lactose intolerance is kind of typical after first going gluten-free. I wouldn't normally expect permanent lactose intolerance in my case, because I have no damage.. just the symptoms.

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cynicaltomorrow -> Did a doctor tell you, you were lactose intolerant, or just assuming you do, since you have a reaction after milk products?

I'm asking, because I thought I was lactose intolerant, because I had bad reactions to milk and icecream, but enterolab's testing said I was intolerant to casein, which is a protein in milk (lactose is a sugar). So if a doctor hasn't told you otherwise, it might be that?

I have no "damaged" to my intestines, bisopsies showed the vili were fine, as it sounds like came up for you? Though I developed bad reactions to dairy a few years ago, use to beable to eat it with no problems. Hoping once gluten-free and healed of problems, I'll beable to again. =)

burdee -> Lactaid sucks! LOL, well maybe since my problem is the casein. Tried the stuff, and felt just as awful as I normally would.

Oh, so cynicaltomorrow.. if you've tried the Lactaid and it worked, then I'd figure casein isn't your problem.

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Alexolua: 'Sorry Lactaid didn't work for you, but that further showed that your problem was with the caseine, not the lactose. FYI there are tastier forms of "lactaid' supplements (the chewable wafers) and terrible forms (tiny pills which just got stuck in my teeth but didn't all get to my stomach). Maybe because Lactaid does work for me (prevent those painful symptoms) that means I don't have caseine sensitivity as well. But just to be safe I ordered the Enterolab milk sensitivity tests along with their test package. I don't know HOW damaged my own intestines are, but I've heard that longterm celiac damage creates the malabsorption problems with lactose as well as fats, proteins, etc. which I DO have.

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Oh, I'm not trying to bash Lactaid if it came out that way, sorry. =)

I just didn't know such a thing as casein existed when I used it, so I thought I was just lactose intolerant and it was a bad product. So I was just joking about it sucking, since I know now it wouldn't work for me.

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Hmmm, the problem with Lactaid sounds like worrying about sugar in your cake, when you're gluten intolerant. Of course, some people get hard time digesting lactose, but caseine intolerance is no fun at all. To support Alexolua, I had absolutely no troubles with diary in the past, no matter of volume. I'm still pretty sure I could have a gallon of milk, if there was no caseine. I do wonder why Enterolab offers the milk test for free - perhaps another submerged iceberg?

MARK

gluten-free/CF since September 03

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