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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Not Sure If Son Has Celiac?
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Izak's Mom    0

Hi all - I'm new here and wasn't sure where to post this...here's my question:

My son will be one year old on July 12th. Since he started eating solid foods (from about 5 mos.), he's had chronic diarrhea. The thing is, this is his only 'symptom'. He eats like a horse, has been steadily gaining weight and is not in any kind of abdominal distress. His poop is another story - totally gross blow outs. Like, I had to buy vinyl undies to contain his diapers overnight after deciding I couldn't deal with having to wash his all crib bedding every morning (we're talking poop EVERYWHERE). We first tried cutting out dairy & eggs, but that didn't make a difference. Then my doctor suggested a wheat allergy, so for the past month or so, we've been on a WF/gluten-free diet and lo and behold, HE HAS SOLID POOPS! I hate to be so excited about a turd, but seriously, if you'd seen what it looked like before and after, you'd be excited too! So basically I'm wondering if it's possible for him to have Celiac disease, but to have it only manifest as chronic diarrhea without any of the malnutrition issues. Any ideas? Thanks!

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Hi all - I'm new here and wasn't sure where to post this...here's my question:

My son will be one year old on July 12th. Since he started eating solid foods (from about 5 mos.), he's had chronic diarrhea. The thing is, this is his only 'symptom'. He eats like a horse, has been steadily gaining weight and is not in any kind of abdominal distress. His poop is another story - totally gross blow outs. Like, I had to buy vinyl undies to contain his diapers overnight after deciding I couldn't deal with having to wash his all crib bedding every morning (we're talking poop EVERYWHERE). We first tried cutting out dairy & eggs, but that didn't make a difference. Then my doctor suggested a wheat allergy, so for the past month or so, we've been on a WF/gluten-free diet and lo and behold, HE HAS SOLID POOPS! I hate to be so excited about a turd, but seriously, if you'd seen what it looked like before and after, you'd be excited too! So basically I'm wondering if it's possible for him to have Celiac disease, but to have it only manifest as chronic diarrhea without any of the malnutrition issues. Any ideas? Thanks!

Sure sounds like it to me! I've just been diagnosed at the age of 50 but have had trouble with recurrent diarrhea since childhood... there are all sorts of symptoms, variations & combinations, & if the gluten free diet is helping, I'd say that's almost a dead certainty that he is at least gluten intolerant.

And this may be the one place on earth where almost everybody has gotten excited about a turd! You're in good company here!

Best of luck,

Leah

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AndreaB    1

Sounds like you have your answer. He may have a gluten intolerance and not full blown celiac, but both require a life long commitment to gluten free.

Welcome. :D You will find lots of people here who can help you.

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TCA    4

My son went through tons of test and was inconclusive for celiac. a diet trial is how we got our answer too. I'm glad he's doing better and you figured it out so young. My son was 3 before we did the diet trial. It was amazing at the response.

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Izak's Mom    0

Thanks for all your replies - I feel much better about the diet. For whatever reason, some people - friends even! - don't seem to believe there's a problem unless you have an "official" diagnosis...I mean, how much more "official" does gross yellow squirts vs. nice brown turds get? (sorry to be gross, but it's true!)

And it seems like I'm seeing more and more confirmations of his intolerance every day - like yesterday we were in a restaurant and he managed to eat/suck 3 big pickles before I realized that they weren't 'on his list' - and bam! this morning there was gross yellow squirts along with his regular poop. Fortunately, I've found that the local supermarket has a pretty decent section of WF/gluten-free foods - Ike *LOVES* the Van's apple-cinnamon waffles, and they even sell the Red Mill gluten-free-flour baking mix. I've been experimenting with the whole gluten-free-baking thing - made a killer banana bread and an icky pumpkin bread, but it's nice to know that there's all kinds of good recipes out there.

So a couple of other questions: is it worth doing any of the blood or whatever tests at this point? I suspect that my husband either has Celiac or is wheat intolerant, since he had all kinds of bowel issues as a child and has always been a 'loose' guy, poop-wise. Although he doesn't do anything about it, diet-wise, and I think it would take a whole lot of convincing from me for him to try. But I believe now that Izak gets it from his Dad, and the WF/gluten-free diet has worked thus far...so, should we test? We have his one-year well-baby appt. coming up in a couple weeks and I'm wondering if I should ask his doctor about it.

Also - this may sound stupid - but how do you deal with condiments? Izak loved ketchup before I realized it wasn't good for him. And pickles he'd eat by the fistful if I let him...do you carry around little bottles of gluten-free stuff or what? Does anyone make gluten-free ketchup packets?

Thanks so much to all of you for your help!!

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TCA    4

If what you're doing is working, I would be hesitant to put him through more tests. We went through all of them twice and got inconclusive results, so we did a diet trial and got our answers. Tests are very inconclusive under 5. Your son is so cute!! Does he have long thick eyelashes? That is another symptom that both my kids have. It would probably be good for your husband to be tested. If you want to rule out celiac for your son, a genetic test can be done while gluten-free. My kids had it and both had genes for celiac and sypmtoms, so that's how we got a diagnosis. If your husband has it, it might put the puzzle together for you. I didn't think I had any problems with gluten, but after going gluten-free for nursing my daughter I saw drastic improvements in my health and now think I'm gluten intolerant. I wish I had beed tested before going gluten-free now. Don't want to go back now.

follow your instincts on your son, though. Testing can be done later if it becomes an issue.

BTW, I have alist for my son of things he eats. PM me your e-mail address if you want a copy

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Guest nini   
Guest nini

sure sounds like it could be Celiac, or at the very least Gluten Intolerance...

as far as pickles and the restaurant is concerned, I'd be more concerned with cross contamination at the restaurant than the actual pickles, a lot of pickles are safe. Also, Heinz ketchup is gluten-free. Most restaurants carry Heinz ketchup and if they don't you can raid McDonald's ketchup supply! (LOL!)

there is a learning curve at the beginning of the diet because gluten can be hidden in a lot of things like seasonings and sauces, and isn't always obvious.

You are in the right place to "get excited about a turd"! I remember the first time my daughter had a formed bm and I was so excited! I swear I thought I would NEVER see that child have formed poo!

I wouldn't worry about any further testing with him as long as he continues to improve on a strict gluten free diet. Initially he may also be intolerant of dairy as well, something to consider.

If you can convince your husband to get tested, do the Enterolab route. That seems to be much more accurate than the blood tests and biopsies...

feel free to e-mail me if you have any questions, my daughter has been on the diet since she was three, and she's doing great now. I think they adapt so much better to it when they are younger. They may rebel when they are teens, but hopefully not. I hope I can instill in my daughter just how important it is for her to stay gluten-free.

my e-mail is nisla@comcast.net

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Nic    1

Hi, since you already went gluten free, to test him would mean giving him gluten again. The biopsy will only come out positive if they are actively sick. A doctor once suggested re testing after my son was already gluten free for 3 months. That would mean not only making him sick again, but also reintroducing him to all the foods that he always loved before being gluten free. I did not have the heart to do that to him. If you see improvement from the diet than that is great :D . As someone else said, you can always have his blood tested to see if he has the genetic make up to be a Celiac. But if he isn't, you still have the proof that he is gluten intolerant and the diet is the same. It sounds like you are doing the right thing.

Nicole

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Izak's Mom    0

Thanks for everyone's advice. I can't see giving Ike gluten again just to do a test - I already know it will make us miserable! I checked out Enterolab, and it looks like a good option. The full panel is pretty expensive though - has anyone been able to get their insurance to cover it? Maybe if I get my son's doc to 'prescribe' it?

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And it seems like I'm seeing more and more confirmations of his intolerance every day - like yesterday we were in a restaurant and he managed to eat/suck 3 big pickles before I realized that they weren't 'on his list' - and bam! this morning there was gross yellow squirts along with his regular poop. Izak loved ketchup before I realized it wasn't good for him. And pickles he'd eat by the fistful if I let him...do you carry around little bottles of gluten-free stuff or what? Does anyone make gluten-free ketchup packets?

Thanks so much to all of you for your help!!

I thought ketchup and pickles were gluten-free? :blink:

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TCA    4

Our insurance would cover prometheus, but not enterolab. different tests, though. prometheus is the standard blood tests and genetic testing.

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Izak's Mom    0
I thought ketchup and pickles were gluten-free? :blink:

I thought that distilled vinegar was made by pouring the vinegar through wheat, and since pickles & ketchup are both made with distilled vinegar, that put them on the 'no-no' list...but it sounds like this isn't the case, since according to folks here, Heinz ketchup is gluten-free and the ingredients include distilled vinegar. Clarification, anyone? Thanks!

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penguin    5
I thought that distilled vinegar was made by pouring the vinegar through wheat, and since pickles & ketchup are both made with distilled vinegar, that put them on the 'no-no' list...but it sounds like this isn't the case, since according to folks here, Heinz ketchup is gluten-free and the ingredients include distilled vinegar. Clarification, anyone? Thanks!

Distillation is how vinegar and hard alcohol are made. There is a mash made from grains, usually, and the mash is heated and the vapor goes through a column and condenses down into the distillate, which is the vinegar or alcohol. Distillation is a bit contraversial, but the gluten protein is generally thought of as being too big to make it into the distillate. It's an over-simplified explanation, but that is generally how it works. Distilled liquids are considered gluten-free unless some of the mash is added back in.

Most vinegar in the US is made from corn, anyway. Heinz vinegar definitely is. The only non-gluten-free vinegars I know of are malt vinegar (barley) and apple cider flavored vinegar. Actual apple cider vinegar is safe. Beware other flavored vinegars.

Here's a much more in-depth explanation of distillation: http://en.wikipedia.org/wiki/Distillation

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Ozwizard182    0

I'm happy FOR YOU! :lol: I think everyone, including you should go by the way of GLUTEN FREE; if it's so bad that it's destroying 1 out of 133 people it can't be good anyway, and it causes bloating and all that stuff. Perhaps people aren't fat as they get older just hiding symptoms of Celiacs.

Eat- get a little bigger eat,- get a little bigger.

It's difficult to go all Gluten Free at first, maybe easier if you don't have the deeply rooted symptoms making your life miserable as it does ours, but perhaps in the long run it's better for everyone's system.

Dr Hulda Clark stated not to eat BROWN RICE years ago, perhaps it is just the Best thing to do. So many people are in denial, "Oh I feel fine." Truth is many don't like to or are embarrassed to tell the truth even to their personal doctors.

Good for you and your baby. I also read that doctors feel when parents introduce the babies on biscuits, crackers and similar first foods, they are introducing them to Celiac's symptoms

**Possibilities** Thanks Mah for all the Graham Crackers!

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ChrisG    0

I believe in testing for a couple of reasons. First, if it is Celiac then maybe his dad would test also. As my pediatric GI put it "Don't put a life long diet on your son without a diagnosis." Second, if you have a diagnosis and can take the medical deduction on your taxes...you can claim all your gluten free food. For me it is about $1500 to $2000 extra per year to deduct.

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I get you on the "official diagnosis". My 19 month old has been suffering with intestinal issues since birth, but other than reflux there is no clear diagnosis. 2 scopes, 1 over night at the Children's hospital and more money than I can count to specialist later, and we are still no closer! I put her gluten-free/WF as soon as she could eat, that has made the world of difference, but now we are dealing with milk!

For some reason people don't understand if there isn't a diagnosis. But unfortunetly at this age, getting that is very hard!

Glad to hear the diet is working! It is hard, but it is worth it to see your child not suffering!

Best of luck to you!

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mis.cara    0

Hi Everyone I'm new here I have suspected myself and youngest son as celiacs or a gluten intolerance at the very least for yrs we have servere stomatch cramps more often than not diahrea extreem bloating and triedness as well as an insaitable appetite etc when we eat standard bread and wheat flour/cereals & products, niether of us have been diagnosed and have been living mosrly gluten free for a few yrs now but i was told that we should be formerly diagnosed mainly because apparently if you are diagnosed you can get gluten free food on prescription/subsidy instead of paying the outrageous prices in supermarket. My main concern though is just how sick we would become by going back to a gluten diet to get diagnosed any commets ould be greatly appreciated Cara.x

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