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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Canadian Karen

Introducing Myself

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Can someone please tell me how I can post an intro of myself in a specific forum category?

I find this format confusing....

Thanks!

Karen

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Hi, I'm Karen. I am 41 yrs old and have had celiac disease for more years than I can remember (since my teens at least). I originally was diagnosed with celiac at age 23 and after 1 year on the gluten free diet with no results, the diagnosis was changed to Crohn's. Finally, 1 1/2 years ago, the blood test confirmed indeed it was Celiac.

I have been on the gluten-free diet since the second diagnosis, but still have not seen any improvement. I basically have had diarrhea permanently for over a decade. I also have hypo-thyroid disease, which is another autoimmune disease affiliated with Celiac.

I came across this board while searching for support. I am currently off work for a two week rest as I had another flare up with excruciating pain. Today is the first day that is seems to be subsiding. Have been eating only rice bread toast for weeks now.

This time though, it also came with the worst case of gas and belching I have ever had. It was absolutely constant - my throat, esophagas, ribs, everything was sore. Has anyone else experienced this? Also, there was a pain in my back on both sides flank area....

I am so worried that there has been so much damage gone unchecked for so long that I will never get better.....

It doesn't help that I work full time, have four children (including 3 yr old twin boys), which doesn't leave much rest time.....

Well, that's me in a nutshell. Hope to gain some valuable info from you guys!!

Karen

;)

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Welcome to the board. I'm sorry to hear about your troubles.

As for not finding any relief after 18 months on the diet, my first question would be to ask if you are 100% positive that you have eliminated ALL possible sources of cross contamination and gluten exposure (be it packaged products, stamps/envelops/play-dough, cosmetics/soap/shampoo, a not-entirely-gluten-free kitchen, medications, or anything else). My second question would be to ask if you have followed up on whether or not you have any other food intolerances or allergies which could be contributing to your symptoms.

I hope you're feeling better soon!

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