• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Better/feeling Sick
0

14 posts in this topic

Sunday will mark 3 weeks that I have attempted to be on a totally gluten free diet. I have found that I messed up at least 3 times. Once I had an ihop omelet (which I found out later has pancake batter in it), and other times I was eating shredded cheese, and I forgot and took communion without thinking (duh!). When I get to where I am really hungry I find I am not as careful as I should be. There is so much to learn with all this it gets frustrating! I have felt more sick on and off the past 3 weeks then I think before the diet. The day I went to ihop I felt sick that afternoon. Today I had a salad at a restaurant it had lettuce, tomato, and ranch, and I had very bad stomach pains afterwards. My mom says it's anxiety causing it, or that it is in my head. Is it even possible for me to have a reaction since I haven't been on gluten-free diet for a long time? Would I notice a difference? I am still exhausted constantly. When will I feel better? I am so emotional I can hardly stand it, cuz everytime I turn around there is something else I can't eat. :( I used to eat whatever whenever I wanted before...and I was a big time snacker. My husband is totally sick of it. This sucks!

Anyone have any suggestions? Thanks!

Deanna

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Three weeks isn't all that long - particularly if you're still making mistakes. (I don't recover from a mistake, fully (symptom wise), for a week!) Try not to be too hard on yourself. You're going to make mistakes like that in this gluten filled world, and it takes time to get into the habit of avoiding gluten.

You know that when you're hungry it's harder to make the best choices (and I'm with you on that one!), so prepare ahead of time - keep easy/fast snacks at home (apples and peanut butter, rice cakes, cheese, tuna, etc), and keep something gluten-free and portable in your purse (fruit leather, gluten-free bars, dried fruit and nuts, etc.)

Let your husband know that he needs your support - and if he needs some support, suggest that he post here - some of the people here have family members with celiac, and may be have useful advice for him.

Go easy on your body and get plenty of rest, and start getting some good exercise in as soon as you can (that can help with fatigue).

You'll get there!

0

Share this post


Link to post
Share on other sites

Deanna, Tiffany is so right, three weeks is such a short time! Cut yourself a BIG break! This is just about the most restrictive diet there is, and it takes some getting used to. Some things that helped me: Danna Korn's book, "Wheat Free, Worry Free"--get the bookstore to order it if they don't have it, it's fantastic! Also, this website:

http://homepage.mac.com/sholland/celiac/GFfoodlist011604.pdf

It's 49 pages of gluten-free mainstream foods. Also, the site you're on now has a great list of gluten-free foods and forbidden foods. Click on the "site index" and it takes you to it. If you like to bake, Bette Hagman's cookbooks are great. Even if you're not much of a cook, her recipes are easy to follow and so good, you can't even tell they're gluten-free!

I would also avoid eating in restaurants for a while until you have this diet down pat. That goes for parties and stuff, too, as harsh as that sounds. Don't stop socialing, but your watchword is PREPARATION--eat before you go to the supermarket so you don't find yourself weeping in the cookie aisle; if you go to a party or other social gathering, either eat before you go, bring a little something to share, or talk to the hostess ahead of time. You simply cannot count on there being gluten-free food available for you! Anywhere! That's how gluten accidents occur, and how you end up sick and depressed, have a fight with your hubby, etc., etc., I know, I've been there too many times myself! For the immediate future, your diet is your priority, because celiac disease is a Very Serious Disease. It's not a fad. It's not all in your head, and you're not having an anxiety attack. We will support you! We will walk you through it. It WILL get easier, just give it time. Time is one thing you've got, Deanna! You will figure this out, and you will feel better. We ALL started out in the same place--hearing "Celiac Disease" for the first time and wondering how in the world we were going to do this!

0

Share this post


Link to post
Share on other sites

I am pretty new at this myself so I know how you feel. I have to try to not get mad at my husband when he throws out my gluten free dinner that I cooked and runs to McDonalds!

Is shredded cheese bad? Maybe thats what caused my relapse the other day, still not 100%. I checked everything I put in my cassarole except the cheese, now I can't find any info on it.

I am finding it alot more challenging since I can't just come home and cook or buy whatever I want. I have to plan ahead and cook from scratch even though I am tired from a long day at work and then hope my family will like it. I think tonight I will have spaghetti but mine will be with spaghetti squash and they can have the noodles and probably the sausage since who knows what is put inside those things!! :o

I had very good luck with the banana nut bread recipe from this website and I added 2 tablespoon flaxseed. It came out really good and didn't last long around here.

0

Share this post


Link to post
Share on other sites

Just to comment on the cooking from scratch thing - it really doesn't have to be difficult, time consuming, or stressful to cook from scratch - after you have a bit of practice at the easy dishes. Chili, tacos, soups, stews, stir fries, and sautees are all great, one pan dishes that take (for some soups, anyway) around half an hour or less. It takes practice working on something specific like that, but you'll get there.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hi, me again.

I found some spaghetti noodles that are made from Rice at Sprouts, and if you cook them long enough they really don't taste much different from regular noodles. So, we can have spaghetti...yay! =)

About the cheese, from what I have been told...already shredded cheese is a no-no, because they add stuff to it so it won't cake. I heard that block cheese is the best to use, which means I have to hunt down my grater. Kraft Naturals has no gluten - I don't know about other brands. Can anyone that has been at this longer verify the shredded cheese thing??? Thanks!

Thanks for responding all! I told my husband about the board on here for family of gluten-free people, he noted it, so hopefully he will come on here. I don't want to drive him any more crazy than I already have.

Deanna

0

Share this post


Link to post
Share on other sites

I've used Lundberg brown rice spaghetti and it was great. My husband didn't even know I had used anything different. :)

0

Share this post


Link to post
Share on other sites

Carol,

So, you must've gotten your enterolab results back. I'm not sure I understand what you may have to do different, being gluten sensitive? Is that not celiac disease, or turn into celiac disease?

Are you doing the gluten-free diet? Feeling any better yet???

Nita

0

Share this post


Link to post
Share on other sites

Hi Nita. I posted my results but then I couldn't find them. Yes, I got my results on the 28th of June. They actually came back on the 25th but Yahoo screwed up and I didn't get them. Basically I was positive for gluten sensitivity but my fecal fat test for malabsorption was negative meaning my intestines haven't been damaged yet. I also have the gene which means it runs in my family. My brothers are chewing on this but not wanting to deal with it. I also tested positive for milk casein allergy which is a bummer. I love my dairy and cheese is a quick food. I've been gluten-free for 6 weeks tomorrow and aside from a little more energy the past week I still don't feel well. Stomache, muscles, head etc. I've also been casein free (second time around as I did it for the first 2-3 weeks) for over a week but I blew it yesterday and ate some jack cheese. I know! Haven't noticed anything different. I'm seriously considering doing the SCD diet by Eliane Gottschell. My book hasn't arrived yet and it needs to be read first. It's alot stricter than just gluten-free but I've heard some amazing things about it. Next week we go on vacation and I need to figure out what I can take with me to eat as I will mostly be fending for myself. We will be seeing relatives in several different locations. Thanks so much for asking.

0

Share this post


Link to post
Share on other sites

Carol,

Thanks for your reply. I'm sorry to hear you aren't quite well yet. I don't know what the SCD diet is.

Good luck on vacation. I have to admit, the days we are off doing stuff with family, are the hardest! We seem to barbecue every weekend, for some reason! I'm getting tired of a hamburger patty, baked beans, and fruit! Well, sometimes there is other stuff, but not always!

Nita

0

Share this post


Link to post
Share on other sites

Hi Nita. SCD is the Specific Carbohydrate Diet. It was originated by Dr. Haas who is no longer alive. This is what he used to treat celiacs and any with digestive problems. My doctor had a woman in her 50's who took 5-6 months on a gluten-free diet to get well. So I'm debating whether I should just stick with this or try the SCD. I joined a support group and we shall see. Suggestions for food for the trip? Thanks much.

0

Share this post


Link to post
Share on other sites

I was going to add that I got INCREDIBLEY sick on Saturday. Haven't been that sick in a long time and it was no fun. runs, throwing up, headache etc. Wondered if it was something I ate (no gluten for sure) but turned out the stomache flue is going around our church. Sure hope it stays away from our house. I grew up with that all the time. YUK!

0

Share this post


Link to post
Share on other sites

Carol,

How awful, the flu! :o Oh dear, you poor thing! I'm sorry you are also casein alergic, as that limits you so much more! BTW, I only took the Evista for Osteo for 2 days. I need to call the Dr. back to tell her!

I have found that if I have lunch out, I try to eat at a place with all meals served all day, rather than just lunch. I sometimes order a beef patty, fresh fruit, scrambled egg, or salad, and use my packets of gluten-free dressing I ordered from the gluten-free Pantry. I'm certainly eating more fruit and salads than before! An omelette is good for me, and I feel like they are made separately in it's own omelette pan. But, my cholesterol is a bit high, so can't continue to eat them for long!

My favorite breakfast at home is, Van's gluten-free toaster waffle, with straberry jam or syrup, and fresh strawberries. Or with blackberry and fruit. It's very good! Dinner isn't hard, with meat and potatoes, salads, or other vegetables.

I made meatloaf this evening, using oatmeal. I sure hope it sets okay!!! Oat never bothered me before, but haven't had it in over a month. Will see how I feel in the morning, as it seems to take a few hours for me.

Good luck with your vacation! I don't have any overnighters until Oct., a Caribbean cruise. Princess is supposed to be very helpful.

Nita

0

Share this post


Link to post
Share on other sites

Thanks Nita. I will let you know how our vacation goes. Oatmeal in your meatloaf? My aren't you getting brave. ;) I'll be interested to know about your experience with it. As to what bothered me before gluten-free, I can't really say. EVERYTHING bothered me I guess. Except for nuts which cramp me up and go right through me (not in the form of flour though). Whole corn is the same way. I get constipated and have BM's of some sort all day long whether its large or rock size. Today they were a funny green color which is strange. I'm doubled over all day long with gas and ichyness like I have to go but nothing comes out (even though I do pass some during the day). :( This is 24/7. Actually I don't know if it was ALWAYS there and just took a back seat to my other symptoms and I'm just now becomming more aware of it which is probably the case. Wondering what to do about it (except the SCD diet might help). I also feel it in my head. I purchased some dried fruit today to see if we like it. It was ok gluten wise. If we like it I will get several bags to take on our trip for snacks. I might even make some gluten-free muffins if I have time and I'm feeling up to it (yea right! Before Fri/Sat). B) Guess I'm just rambling. Didn't sleep well last night so I need to crash early.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,549
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you ps, it may be better if the thread title was changed as we now have two 'overwhelmed' topics. If it were 'Bile ducts and celiac?' then it may attract more users with direct experience?
    • Hello and welcome Maybe? From reading others accounts there's a big variation in how quickly gluten antibodies respond to the gluten diet. I did similar to you and my doctor said that 1 week back on should be enough to show up in a test, but he didn't know what he was talking about sadly... The 2 week figure refers to the endoscopy, for blood testing 8-12 weeks on gluten is more normal.  Basically if it comes back positive fine you have your answer. If its negative it may be a false negative due to your going gluten free beforehand. If you want to pursue a diagnosis then yes. Don't go off gluten again until you confirm that all testing is complete.  Keep a journal noting any symptoms, that may be useful to you later. More info here: There's some good info in the site faq: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/ I know how you feel! Partway through my gluten challenge I knew that too results notwithstanding. Fwiw I think you've found your answer. Good luck!
    • Learn more about testing for celiac disease here: http://www.cureceliacdisease.org/screening/ You do have to be on a gluten diet for ANY of the celiac tests (blood and biopsy) to work.  While the endoscopy (with biopsies) can reveal villi damage, many other things besides celiac disease can cause villi damage too: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ So, both the blood test and endoscopy are usually ordered.  There are some exceptions, but those are not common.  
    • Exactly what are your allergy symptoms?  Were they IgG or IgE?  Allergy testing as a whole is not super accurate -- especially the IgG.  Were you on any H1 or H2 antihistamines for the last five days  when you were tested?   As far as celiac testing, four days without consuming gluten probably would not impact testing.  
    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
  • Upcoming Events