Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Comcast Big Wig Has Celiac

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

Some lady from www.celiaccentral.org spoke to our suport group on Sat. and said the Comcast CEO or CFO (or something like that) was dx'd with Celiac. He is promoting charity event to raise awareness/money for research so he has Fortune and Money magazines doing articles about it. The Money article runs in Dec. issue and Fortune runs in the Nov. 13th issue. Comcast provides cable services all over the country. This could be big people!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Even though he's not a celebrity...he would certainly have some pull. Thanks. :P

Link to comment
Share on other sites
jenvan Collaborator
jenvan
Posted

Wow, that could be great for the celiac disease community. Hmmm, guess I need to mark my calendar in advance for these ! Thanks Tiffany!

Link to comment
Share on other sites
ebrbetty Rising Star
ebrbetty
Posted

that could really help us

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

Boy, this could be huge! I hope he feels the same frustration as we do regarding the lack of awareness--he certainly has the ability to get the word out there--looks like he has already started! Looking forward to the articles--thanks, Tiffany :)

Link to comment
Share on other sites
Guhlia Rising Star
Guhlia
Posted

Wow! This could be our big, mainstream break, huh? Thanks for posting!

Link to comment
Share on other sites
floridanative Community Regular
floridanative
  • Author
Posted

Well my guess is this guy is frustrated because apparently he was sick for years and years and he was recently diagnosed, maybe less than a year ago. I'm going to try and find his name because I didn't write it down Saturday and the lady mentioned it a couple of times. Anyway, I really do think this could be great for all of us.

Okay - the guy is Ed Snider and he's the Chairman of Comcast. On the site above (old site called www.celiacawareness.com) there is a link about the Money/Fortune mag. articles and their issue dates. Time Warner is involved as well. Maybe they own Comcast...not sure about that. Yes - this is a very good thing. :D

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

His name is Ed Snider.

And he won the 2005 William Penn award, whatever that is.

Link to comment
Share on other sites
DingoGirl Enthusiast
DingoGirl
Posted

We've got to get him on our board.....you know, in all his free time.....

Oh Iwrote an email to Oprah today about Celiac and how aghast I am that she has not addressed it....wonder how many of us have emailed her??

Link to comment
Share on other sites
tarnalberry Community Regular
tarnalberry
Posted
We've got to get him on our board.....you know, in all his free time.....

Ha! He can probably afford his own, dedicated chef, and train that chef to cook gluten-free for him! **whistfully dreams** :-P (He should still try the mariposa biscotti, though. :-D)

Link to comment
Share on other sites
marciab Enthusiast
marciab
Posted

Yeah, I was thinking that he probably has his own chef too. BUT, he must go out sometime. Possibly the next time he goes to Trump's for dinner, he'll teach Donald about Celiac.

This could be very good for us... :D

Link to comment
Share on other sites
debmidge Rising Star
debmidge
Posted

Maybe Comcast can run some public info commercials about celiac for free......

Link to comment
Share on other sites
Guest Robbin
Guest Robbin
Posted
:) Money talks, so maybe the message will get heard and the medical community will wake up when they get a whiff of green ;) . It is outrageous how long some people have to suffer before they get a dx, and how many die undx? I hope you are out there Mr. Snider and join us!!!
Link to comment
Share on other sites
gfp Enthusiast
gfp
Posted
His name is Ed Snider.

And he won the 2005 William Penn award, whatever that is.

William Penn was by all accounts a pretty stand-up guy. (if not a button down guy)

Voltaire wrote about him in his "Letter's concerning the English" and his tolerance and treaty's with the native populations were legendary.

Open Original Shared Link

Ha! He can probably afford his own, dedicated chef

He can but that doesn't mean he will. He is also experienced in changing and forging legislation ....

Link to comment
Share on other sites
Rikki Tikki Explorer
Rikki Tikki
Posted

Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything

Link to comment
Share on other sites
Lymetoo Contributor
Lymetoo
Posted
Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything

Same thing with Lyme disease. Even some of her best buddies have Lyme, but she won't do a show on it. Alice Walker [The Color Purple], Amy Tan [Joy Luck Club] and Rebecca Wallace [Ya-Ya Sisterhood] all have Lyme. People are falling victim to this disease every day and their lives will never be the same....and it does kill people.

Any national exposure for celiacs and other "obscure" illnesses is great news!

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Regarding this Ed Snider guy, all I can say is "The Lord works in mysterious ways........"

Hugs.

Karen

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
We've got to get him on our board.....you know, in all his free time.....

Oh Iwrote an email to Oprah today about Celiac and how aghast I am that she has not addressed it....wonder how many of us have emailed her??

YOU WOULD BE SUPRISED HOW MANY DOCTORS AND OTHERS ARE ON THIS SITE, lurking and looming posting ANONYMOUSLY.

FORGET OPRAH she's useless!

Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded.

Many of us worked very hard tring to get Oprah on our side. I'm no longer a fan. We can make a big impact in other ways.

I think it's good news this comcast guy has celiac disease. Welcome to our world!

Link to comment
Share on other sites
DingoGirl Enthusiast
DingoGirl
Posted
YOU WOULD BE SUPRISED HOW MANY DOCTORS AND OTHERS ARE ON THIS SITE, lurking and looming posting ANONYMOUSLY.

FORGET OPRAH she's useless!

Many of us worked very hard tring to get Oprah on our side. I'm no longer a fan. We can make a big impact in other ways.

I think it's good news this comcast guy has celiac disease. Welcome to our world!

Hey - how do you know about the lurking doctors? that is crazy! :lol: and of course fantastic...

No, I haven't given up on Oprah, but my new target is Dr. Mehmet Oz - - we should bombard HIM with letters!

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
Hey - how do you know about the lurking doctors? that is crazy! :lol: and of course fantastic...

Because I know a couple that are...

Link to comment
Share on other sites
celiac3270 Collaborator
celiac3270
Posted

Phenomenal!!!! This is amazing... I love that he's already taking the initiative with those articles.

Power/pull + initiative = success.

Link to comment
Share on other sites
lindalee Enthusiast
lindalee
Posted
Hi Dingogirl:

I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything

Oprah LOVES her bread! She tries to stay away from it. Maybe if she thought it might harm her she would listen. She has said in the past -how it puts weight on her thighs. Haven't watched her much lately (been on this site LOL :lol: LL

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    2. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      What kind of stool test was done? Can you be more specific?
    3. mishyj
      - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    4. mishyj
      - mishyj posted a topic in Coping with Celiac Disease
      3

      Why?

      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any...
    5. cristiana
      - cristiana replied to Aussienae's topic in Coping with Celiac Disease
      64

      Constant low back, abdominal and pelvic pain!

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,216
    • Most Online (within 30 mins)
      7,748
    William day
    Newest Member
    William day
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      Why?

      By mishyj · Posted

      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
×
×
  • Create New...