• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Lymph Nodes
0

Rate this topic

21 posts in this topic

Recommended Posts

How many of you with celiac or gluten intolerance have or had swollen lymph nodes and where in your body were they found...I know you are out there people...........

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


When my symptoms of chronic fatigue showed up about 15 years ago I had enlarged lymph nodes in my neck, they even took a very painful biopsy which was negative. THey were enlarged and tender for years then slowly diminished.

After I quit gluten and casein 2 months ago they hurt again for a couple of weeks as my body worked to clear the toxins from my body. I used to be swollen and puffy and hung over feeling every morning, stiff like an old lady. Its slowly improving.

also the lymph nodes under my arms hurt too (breast tenderness), I assumed it was the same deal

Mia

Share this post


Link to post
Share on other sites

I actually had a couple of swollen lymph nodes. Had two in the groin area (one of which was removed and biopsied). I also used to get them under my arm too. Haven't had them since going gluten free (3 years now). Think there is a correlation? I never even thought about that!

Share this post


Link to post
Share on other sites

I always had swollen glands/lymph nodes in my neck, painful, for days at a time which were not associated with being sick - doesn't happen now that my diet has been fixed.

Share this post


Link to post
Share on other sites
How many of you with celiac or gluten intolerance have or had swollen lymph nodes and where in your body were they found...I know you are out there people...........

I did, neck and groin mostly. They were swollen for years and doctors attributed it to my 'picker's acne' their misdiagnosis for my DH.

Share this post


Link to post
Share on other sites
Ads by Google:


I did, neck and groin mostly. They were swollen for years and doctors attributed it to my 'picker's acne' their misdiagnosis for my DH.

Vow so far noone has swollen lymph nodes on the back!!! I don't know if they are swollen lymph nodes in my back or what...I may have some swollen lymph nodes in my neck but no where as big as they are in my lower back.

Share this post


Link to post
Share on other sites

Hi just diagnosed with celiac disease as a result of my initial complaint which was swollen lymph nodes in both the clavical and underarm (axial) regions on the left hand side. Tested postive for mono but swollen glands still there after 8 months. Blood tests apart from mono came back normal. Now into 3rd week of gluten free diet so will see if theres any improvement after going gluten free. Had CT and nothing untoward seen. Had scopes in both ways and nothing back on possibility of intestinal lymphoma which is a good sign as intestinal lymphoma doesnt seem to have a good prognosis in terms of survival. Will update post in a while as to how gluten free diet goes in relation to swollen lymph nodes.

Share this post


Link to post
Share on other sites


Ads by Google:


Pain in my left armpit was one of the reasons I kept going back to the Dr. Finally they did an U/S and it showed one enlarged node at 1.5cm. They told me to wait to see if it went down, 3 months later I had another U/S and there were 2 enlarged- 2.1cm and 1.8cm. At that point I was referred to an oncologist and had a CT Scan and XRAY. They had fatty centers and she "didn't think" they were malignant so she wanted to wait 2 more months to redo the U/S. The pain was so bad I had them retested a month later and the largest one they could find was 7mm. So, they went down, but I still have the pain. WEIRD. This was 3 months ago.

Fast forward to last week- I went to a rheum for left sided rib pain I was having (ongoing) and she did a blood test and it was positive for celiac. So, I wonder if those enlarged nodes were related.

Share this post


Link to post
Share on other sites

I have never been diagnosed,,either by biopsy of the upper small intestine NOR blood work that I have celiac disease BUT

wheat product make me sick so I have given them up. But now I find out that some fillers have wheat so I am going to be more Careful.

ALSO, I HAVE SWOLLEN LYMPH NODES in the messentric area of bowel. I also have small bowel thickening in the ILEUM. I will go for another colonoscopy soon so he can ck up into the ILEUM. I am concerned that I may have T-Cell lymphoma.. Does anyone know about this...

Both the cancer docs say do the colonoscopy, do a PET SCAN and then small bowel study.

Share this post


Link to post
Share on other sites

Vow so far noone has swollen lymph nodes on the back!!! I don't know if they are swollen lymph nodes in my back or what...I may have some swollen lymph nodes in my neck but no where as big as they are in my lower back.

No lymph nodes on your low back, perhaps fatty tumor, inclusion cyst....

Share this post


Link to post
Share on other sites


Ads by Google:


This is really interesting! I've always had swollen lymph nodes (with illness and without)

Share this post


Link to post
Share on other sites

"When my symptoms of chronic fatigue showed up about 15 years ago I had enlarged lymph nodes in my neck, they even took a very painful biopsy which was negative. THey were enlarged and tender for years then slowly diminished.

After I quit gluten and casein 2 months ago they hurt again for a couple of weeks as my body worked to clear the toxins from my body. I used to be swollen and puffy and hung over feeling every morning, stiff like an old lady. Its slowly improving."

I could have written the above post. After 6 months gluten-free, they still ache somewhat, but they have gone down in size. They start to ache more if I get a whiff or trace of gluten.

Share this post


Link to post
Share on other sites

Just reading post. Realized I forgot to write that symptom down when giving gi my list. Did a search on the forum and here I am. I am still waiting for biopsies to come back, but I also get on on the edge of my face by my chin that flares up and is sore from time to time. I also recently had one flare up there, my armpit, inside of elbow, and top of wrist. I went to dr. And had blood work done and ct scan that came back normal, besides noticing fatty liver. Yes, I get them, too.

Share this post


Link to post
Share on other sites

Prior to getting diagnosed with celiac or even understanding what it was, I had an infetion where I was prescribed two rounds of a really strong antibiotic. All told, I was on this stuff for nearly 30 days, per the doctor's orders, it did work to get rid of my infection, but I quickly realized I had a secondary problem. Halfway through the second round of medication (pills), I started having swollen lymphn nodes. not just one or two, like, ten of them. Around my ears, on the back of my head, on the upper part of my neck, I had more lumps than a rhinoceres. And I kept calling the dr saying, are you sure I'm not allergic to this stuff because seriously, my head is COVERED with swollen lymph nodes? My infection's getting better but what the heck is happening to me??

To this day, I'm convinced the antibiotics (which had this massive warning label about being very hard on the stomach) were what pushed my celiac (which I didn't even know I had) into 'red alert' so to speak. I think that the antibiotic drug course made my intestines so bad they caused my lymph nodes to go crazy. I went back to the doctor in the midst of this. Dr examined the ten or so swollen nodes on my head and became concerned something was horribly wrong with me. I was then informed that after my antibiotic course was done, I should be scheduled for bloodwork immediately. None of them believed what I kept insisting, that the antibiotics--while helping me---were also oddly making me sick!!

Well the antibiotic course finished. My lymph nodes returned to normal as SOON as I was off the meds, and my bloodwork came back with severe anemia. And THAT was what made the doctor realize I had celiac.

So I can't say that celiac is the only cause for swollen lymph nodes, but I'm convinced it was the reason why the ones on my head went so crazy.

Share this post


Link to post
Share on other sites

I get swollen painful lymph nodes, in my underarms, as does a friend of mine, who also suffer with Celiac.  I have noticed they only seem to swell up when I have either vinegar, or grain alcohols.  But, I don't seem to have that symptom from other glutening incidents.  Was wondering if anyone out there has had that experience?  If it has something to do with distilled grains?  I tried to do some research about it as to why, but didn't come up with anything?  If I have anything containing vinegar I get the typical gluten symptoms, rash, nausea, dizziness, headache, stomach pain, fatigue, etc..etc.....but then also this?!  Anybody else?

Share this post


Link to post
Share on other sites


Ads by Google:


I have been suffering with swelling nodes int front of my neck, under my ears, back of my neck. Along with this my ears seemly are blocked, nose congestion. I also, feel like my upper resportary system bronculors I feel as I always have to clear them. My front inner mouth, gums and lips swell.   I could have other swelling glads that I am not aware of. I am also, going through menapause. My GYN put me on the Hormon patch.  Nodes for 3 years chest congestion and ear blocking for 13 years.

 

I have been going to an allergist since Late July 2012 for allergy shots. The "scratch" test indercated I have sever allergys to cat and all types of grasses. Now I was refered to an, ENT where this  ENT put a scope down my left nostrial only said something to the residence in the room and didn't even share with me what was mentioned all he did was, put me on some strong Acid reflux pills. I still have swelling glands and all the above mentioned even after almost a year of allergy shots and strong Acid reflux pills. I am so sick od ofdoctors and miserble and at the point of tears over this.

 

Anyone going through what I am and what types of test(s) have you done with a doctor or on your own that would help?

Share this post


Link to post
Share on other sites

How many of you with celiac or gluten intolerance have or had swollen lymph nodes and where in your body were they found...I know you are out there people...........

I have lymphedema, so yes I have lymph system issues, primarily in my legs. The nodes in my neck get swollen when I have DH break outs. And why yes I've had the under the arm enlarged tenderness issue many times in my life....

Share this post


Link to post
Share on other sites

I still haven't been tested for Celiac disease, but I definitely have swollen lymph nodes in my neck.  They aren't painful, but have been swollen for many years.

Share this post


Link to post
Share on other sites

I've had swollen lymph node sin my neck for many years also.  Decades actually.  Just never thot of it in relation to celiac until now.

Share this post


Link to post
Share on other sites


Ads by Google:


I have a swollen lymph node behind my ear. I don't know how long it's been there. I think a couple of years. I don't know what's wrong with me tho. I suspect a dairy allergy. My enterolab results will be coming back within 10 days. I hate waiting for so long!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,142
    • Total Posts
      939,890
  • Member Statistics

    • Total Members
      66,131
    • Most Online
      3,093

    Newest Member
    Larryx
    Joined
  • Popular Now

  • Topics

  • Posts

    • My son is 13 and we have been dealing with his unusual issues for years. By 3rd grade, he was The Hulk, breaking things, punching holes in walls and raging. He had depression, anxiety and panic attacks. His skin would have rashes or turn bright red and i didn't understand why (now i know it's salicylic acid added to conditioner, sunscreen, lotion, ect). We realized that dyes were a problem and cut those out. Little by little, we removed sulfur, sulfites, preservatives, salicylates (aspirin-we assume he will be allergic to this but he has never had it and we won't ever test it, most fruits, spices, veggies and honey), nitrates, soy sauce and many more. He lived on an all home made, special diet and he was better but not well. (We did the Feingold and Failsafe Diet but that wasn't enough). He was diagnosed with hypersensitivity to medication by 5th grade (tried anti-anxiety meds-big mistake). Consecutive doses of anything would get stuck in his body and then the real fun started, full body rash, suicidal thoughts, vomiting and my least favorite-hallucinations. He was in the ER for a fall from a tree and they gave ibuprofen and Vicodin. Within 30 minutes the rash spread up and down his whole body (including under the damn cast). The worst night of my life was trying to keep him from breaking his own cast off and talking him down from trying to hurt himself.                                                                                                                                                                                                                                                             We tested my son for everything and anything, hormones, vitamin deficiency (later found out they don't test for nearly enough to really know) and thyroid. Everything was normal but a mildly low vitamin D level. He was very unhealthy, he was sick a LOT, allergies were bad, asthma and he developed food intolerances out of nowhere. We did a gluten/dairy free diet (because his sister is gluten/dairy free) but it made no difference and his diet was already so restricted. We did a year long food journal and also found an issue with pork, apples, citrus fruit, cinnamon, ect.  I researched my kid like it was my job. We tried many vitamins and supplements and he had bad reactions to many of them. I finally found a man with several of the same gene mutations (we tested with 23andme.com) who's Dr. thought it was a PST-Pathway issue. We decided to try the protocol of vitamins, supplements and amino acids to see if it made any difference and OMG, what a difference. At this point, we didn't have a pediatrician that actually listened so I asked several doctors about the specific vitamin/minerals/amino acids and kept all the does to a child size dose.  We had always used epsom salts as a response to a reaction in something, not as a preventative measure. We now soak his feet twice a day in Epsom salt water (or in the bath), it gives him a form of sulfur that his body was missing and now he can eat anything he wants (except soy sauce but we'll gladly leave that out). He takes molybdenum everyday with magnesium/calcium and vitamin D3 (and when we stop that, panic attacks come back. Weekly he takes milk thistle (we tried L-Glycine but too much gave him terrible insomnia (like 3 days of barely any sleep) and milk thistle works just as well to keep his liver open and working it's best), B vitamins, Cod liver oil capsules with Vitamins A and D and liquid Zinc.  His personality changed on the L-Glycine in a more outgoing way but then in a manic, not himself way so that scared us. Since the supplements started (6 months ago), his anxiety and depression is gone (and it was really controlling how we lived). He would never talk to people before...he was diagnosed with selective mutism but we felt that was incorrect and he was just very shy. He never liked talking with adults. Now, there is no problem, he is not super chatty with everyone but all he adults in our family noticed immediately. He is ready to stop home schooling and start high school next year. He has become a responsible, sweet, calm and caring child. No more daily fights, no more holes in the walls, no more rage. Our daughter has anorexia and we have been very busy dealing with her behaviors and missed the daily vitamins on occasion for several days....old son comes raging back. It doesn't take too long to figure out the mistake and gets him back where he needs to be. We did some genetic testing with a neurologist who specializes in metabolic function and while he tested for some helpful issues relating to hypersensitivity to medication, I still got the impression that he thought it was a placebo effect. We have burned through many therapists, pediatricians, a neuropsychologist, a psychiatrist, a gastroenterologist and possibly this neurologist. I hate not being taken seriously because while they may not agree with my ideas, they have nothing to offer in return.   
    • Yep no fruit, juice, sugar, or grains like oatmeal. The sugars glucose, fructose etc. Are common causes of flares in some. Sugar free fiber like nuts, but butters, cocanibs seem to be great for me. Keto diet sugar free high fat, mostly over cooked to mush or blended works great for me......heck as a baker I had to invent low carb, grain free, starch free bread. Sorta lead to a god like revelation and business took off with diabetics and my bakery.
    • Gastritis was my initial diagnoses before finding out I had celiac. The pains from the gastritis were terrible. I had to wake up in the middle of the night to eat cause I felt nauseous. The Doc prescribed me omeprozole and antacids. I took the meds for about a week but I cured it mostly by not drinking and eliminated caffeine intake. Alcohol was one of the main causes for mine 
    • The UC is a whole different beast. I’ve been eliminating tons of food. Meat is definitely good to me. I can eat all the steak, chicken, and pork without problems. I agree that paleo would be great for me. I’m gonna look more into their recipes.  Have you had any problems with fruits and veggies causing flare ups? I make smoothies with mixed berries, banana, gluten free oatmeal, spinach, and a splash of juice. It seems to be a cause. Maybe it’s the high fiber? I’m not sure. That and caffeine. I’m having a hard time eliminating caffeine though  
    • Pain wise a glutening celiac gets me more central gut pain and much worse with sharpness, urge to vomit, gurgles etc. UC is more along the the outside edges of your abdomen from the sides, lower area around the belt line, and upper area right under the rib cage, and is more of a boat and pleasure pain like your intestines are huge feeling.  UC triggers alot more gas, and makes you want to lie down I get the urge to massage and press on the pressure areas as it seems to help.
      Timing wise Celiac glutening I notice within 20-60mins and main vomiting starts in 1-3hours after eating it. UC flare you get it like 4-18hours or later depending on transit time of your food. A glutening will normally result in both a celiac reaction and a later UC reaction. For me a gluten CC or consumption issue also causes neurological symptoms, this is not true for some people but for me I also have a gluten ataxia, so the anxiety, panic, fog, mind looping, numb hands, loss of coordination or straight up motor loss is definite sign for me. Others will have to keep track with a food diary to nail down there own as every person can have a slightly different reaction.

      I also find with UC I do not directly vomit, Sometimes with UC it can trigger constipation and if not remedied in 12-24 hours leads to m system backing up and vomiting. Celiac can also cause me constipation but there is a slight difference in where it seems to get stuck at first. Hard to explain but you can sort of feel it. Also I find a gluten celiac response will result in a week or more of constipation issues. Starting mid section then moving to the outside gut area and  but some people do not get these and get D instead. So this is not very reliable.

      UC flare ups for me with my damage also always have bloody stools, worse flare ups its not just streaks but clots. Red and Dark red show it is in the large intestines. If you get tar like black  and red it is either a sign it is way back in the large intestine or in the stomach or small intestine. This makes my Anemia SOO much worse. Imagine how you feel with the loss of blood coupled with inability to efficiently absorb nutrients like iron and magnesium

      Thing to recall is UC is mostly the large intestine while celiac is mostly the small, so symptoms and trying to get the feeling of where the problem is can help.  Also if you get a glutening expect to have the UC flare up right after the celiac flare up.

      NOTE it is hard for me to say still, on the exact details and clarity, it has been since june of last year that I had a major gluten consumption issue. UC I get more regular but without the direct comparison in a while my memory is a bit iffy. Just trying to recall those exact pains and feelings from that last time. Also UC seems to wax and wane in and out while almost always being present for months in the background you just feel a bit off in the gut. SO many triggers, I felt that for years I swear til I went to this keto diet and dropped all fruit, sugar, carbs, and grains. Could have been the anemia, but I think it was more of a combination of the inflammation, bleeding, gas, and just being uncomfortable.
  • Upcoming Events