• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Drip

New To Board Have A Few ?

Rate this topic

Recommended Posts

Hello everyone. I am new to the board and wanted to say hello to everyone. I have a few ??? and I apologize if this post ends up long.

When I was a child ( from when I can remember until I was around 12 or so) I could not eat any wheat products, had to have potato or rice bread, rice cereal, If I did I would get very sick, stomach pains, I would throw up and have diarrhea. All I can remember was that I was a pretty sick little kid. But then I got off the diet, my mother said I grew out of it. For a long time I did not get that sick again. I always felt tired and I have had problem with diarrhea my whole life, but never got really sick like I did when I was a kid. But I am in my 40 now and the last few years I have been really not filling to well.. I have had problems with my stomach and intestines. Very bad gas, blotting, diarrhea, cramping, soreness in my throat, and sores in my mouth. I asked my mom what I had when I was a kid and she said I was cystic, could she have meant CELIAC.

OK, what I am getting to is could they have thought I out grew this sense this would have been in the 60 and 70, it sounds like they know much more today about CELIAC then they did back then and now it is getting worse sense there has been damage done after all these years..

Thanks for any help that anyone can give me.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It sounds like you most definitely had celiac. Back then, they thought you could "outgrow" because a fair number of people seem to get better when they hit puberty. And then as they get older the symptoms come back. I've seen messages on various boards from a large number of people who went through just this scenario.

Now we know that you're never "cured." Since you're still eating gluten I would go ahead and get tested, but I'm betting you have celiac. Yes, you've been doing damage, but going gluten-free will likely reverse everything (unless you've also developed other autoimmune diseases).

richard

Share this post


Link to post
Share on other sites

Yes, this same thing happened to my sister. I didn't know about it until I was found to have the condition, when my mother suddenly remembered that my older sister had to go wheat-free when she was a child but later "grew out of it". This was just how it was handled back then. :unsure:

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,700
  • Member Statistics

    • Total Members
      67,278
    • Most Online
      3,093

    Newest Member
    Grainge
    Joined
  • Popular Now

  • Topics

  • Posts

    • I would say no even then....it belongs in its own little corner in hell. We have had members get sick from cross contact touching and handling paper mache, playdough, and dry wall spackle containing wheat then touching their mouths, or food.....heck you can inhale the powder from the sanding spackle and have it get trapped in the mucus in you respiratory tract to run down your stomach and make you sick......has happened to a few on many occasions.
    • Cross reactivity is a bit of a myth type thing, but we do get food sensitivities and intolerance issues that do creep up and they are always different for each person. A food diary and keeping track of what causes symptoms is what you need to do. Here is a true gluten avoidance list and a article on food sensitivities.
      https://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html
      https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
    • Celiac Disease is damage to the nooks and crannies in our intestines leading to malnutrition, vitamin deficiencies with all the various symptoms that make it so hard to diagnose. Then you add years of the antacids, antibiotics, Tylenol, opioids, alcohol, etc., each with their own particular side effects and damage. Now you've got a toxic environment that kills off the beneficial bacteria increasing malnutrition. Theoretically you can eat anything except gluten. But wheat is so ubiquitous in our diet and economy there are unlimited opportunities for cross contamination. So read the label. Use common sense. If there isn't a label it doesn't have wheat so you can eat. Big Food likes to add wheat to everything because it is addictive and helps them ensure you can't eat just one. Why on earth else would Campbells Tomato Soup have wheat listed as an ingredient? Meantime your body is in distress from malnutrition so you need to be sure to replenish D3, and Iodine for starters and treat and support any other symptoms while you heal. Good nutrition without wheat is the only way to stop progression. And just like chewing paint chips made with lead is bad, so is food with wheat.   well said, doesn't need a label.
  • Upcoming Events