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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

I Haven't Slept Through The Night In Years!
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I was actually looking at this site because my baby just tested positive for celiac (blood). I stumbled upon the sleep sectioin, not realizing this was even a celiac symptom.

Over the past several years, I can count the times I slept through the night (6+ hours) on 1 hand. I wake up dozens and dozens of times each night, although I'm not sure why...was thinking my back/joint pain. It takes me hours and hours to fall asleep. My most restful time is probably from 4-6 am, although I'm still waking up, it's easier to fall back asleep. I have had back, neck and hip pain for years which has been attributed to car accidents from 20 years ago. I alternate between diahrrea and constipation, but rarely seem "normal." The fatigue is by far my worst symptom with the back pain being a close second. I can barely function every day. I feel like a zombie. I am bothered by loud stuff...tv, talking, toy noises, etc. I get migraine headaches (I think....I've never been diagnosed with them though). They come on sudenly and get so severe. Tylenol/Ibuprofen do nothing to help. The only way to get rid of them is laying down in a quiet, dark room and sometimes they go away by the next day...although I usually have a "sore" head for several more days. Ice on the back of my neck and forehead help a little during these episodes.

Are all these other things symptoms, too by any chance? Also, I was incredibly ill when I was pregnant with this baby (all my pregnancies were rough, requiring IV hydration due to hyperemesis), but this one was especially bad. I was in bed from very early on (before I even had confirmation I was pregnant) until the day I delivered and had a PICC line through the whole thing for fluids and Zofran. I had home healthcare nurses come about twice a week. Could the fact that he is celiac or maybe that I am celiac have anything to do with this? I've always had gluten in my diet and never even heard about celiac until just a few weeks ago.

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Hi there :D The sleep problem may or may not be a symptom of celiac disease, but if your child has a positive diagnosis, you should definitely get tested yourself, as it is hereditary.

Hugs

Susie x

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I sleep much better now that I'm gluten-free. I used to get up at least once per night, sometimes two or three times. Now I sleep straight through, 8 hours!! :)

The other symptoms could be from the gluten. I had rough pregnancies and dehydrationg problems, too. I couldn't get up from the fatigue when I was pregnant, but I was not made to stay in bed.

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I sleep much better now that I'm gluten-free. I used to get up at least once per night, sometimes two or three times. Now I sleep straight through, 8 hours!! :)

The other symptoms could be from the gluten. I had rough pregnancies and dehydrationg problems, too. I couldn't get up from the fatigue when I was pregnant, but I was not made to stay in bed.

I wake up all night from back pain and stomach rumbling or distension. It is considerably better since I've gone gluten-free, though not perfect. The back pain I would describe as extremely intense. I, too, had difficult pregnancies, many issues. And I do know about intense pain -gave birth naturally to 10 pound son! I think you should continue to read this forum and also ask your doctor for a complete celiac panel, particularly if you know you have a child with it. There are great people here with so much information; it's been wonderful for me and I've never used a computer much! Good luck!

lisa

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I wake up all night from back pain and stomach rumbling or distension. It is considerably better since I've gone gluten-free, though not perfect. The back pain I would describe as extremely intense. I, too, had difficult pregnancies, many issues. And I do know about intense pain -gave birth naturally to 10 pound son! I think you should continue to read this forum and also ask your doctor for a complete celiac panel, particularly if you know you have a child with it. There are great people here with so much information; it's been wonderful for me and I've never used a computer much! Good luck!

lisa

Thanks for your story, Lisa. It's therapeutic just hearing that you're not alone...sometimes I just question if these things are just normal and I just complain too much. I'm definitely getting tested as are our other children. Yikes about your 10 pound childbirth experience! :o Luckily, my births have all been quick and not too problematic, 1 natural, the other 2 with epidurals (that only worked on 1 side), but all under 4 hours, the last one was only about 20 minutes of intense pain...I count my blessings on this as I've heard horror stories. Hope you continue to feel better!

Lucy

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Thanks for your story, Lisa. It's therapeutic just hearing that you're not alone...sometimes I just question if these things are just normal and I just complain too much. I'm definitely getting tested as are our other children. Yikes about your 10 pound childbirth experience! :o Luckily, my births have all been quick and not too problematic, 1 natural, the other 2 with epidurals (that only worked on 1 side), but all under 4 hours, the last one was only about 20 minutes of intense pain...I count my blessings on this as I've heard horror stories. Hope you continue to feel better!

Lucy

Thank you, Lucy- the same thoughts to you! I just reread your posts and I have to say, between 4 and 6 AM is my best sleeping time as well!

lisa

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I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that diet is a valid diagnositic tool, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

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I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that a valid diagnositic tool is diet, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that a valid diagnositic tool is diet, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

I have been glutening (I love the made-up words i've been learning here! ) myself for my entire life...never heard of celiac or gluten-free or any of that until just a couple weeks ago, so to answer your question...No, but I am planning to. I'm still trying to get a little more information...this site is incredible..I've learned so much more here so much more quickly than through any of our doctors. I am so ready to get my life back to normal though. This probably sounds strange, but after years and years of problems and not getting any help from doctors and my family thinking I'm a complainer and looking for attention with all my problems, it would be a huge weight lifted off knowing that I had celiac this whole time. Not only can I fix my problems, but I know I'm not crazy. Do you still have any of the symptoms after going gluten-free? Was it really hard to make that transition? Thanks for info!

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Insomnia has been a reliable symptom for me. I conclude it is due to the discomfort of this condition, since the rare times when I've gotten rid of the discomfort have been followed quickly by sleep.

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Do you still have any of the symptoms after going gluten-free?

Yes, my condition has not improved at all since diagnosis. But I haven't had much time on the diet, and I went undiagnosed for a long time.

Was it really hard to make that transition?

I've only had an easy time because I'm so used to having to change my diet, most people say it's terribly unpleasant. "No pizza?! OMG Ima gonna dieeeeeeeeeeeeeeeee", but see I just want to stop suffering so that's ok. ;)

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