• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Any Good Celiac Specialists In San Diego?
0

4 posts in this topic

After suffering from chronic diarrhea, cramping and a burning sensation in my stomach over several months and several doctor visits later (in which I tested negative for all kind of tests), it was suggested that I try a gluten-free diet and at the same time see a GI specialist. After reading about celiac disease, I was floored to see that the list of symptoms not only included my current intestinal problems, but symptoms that I've suffered from for years (chronic fatigue, mouth sores at least once a month, muscle pain, bloating and gas). Within days of being on a gluten-free diet, my stomach felt better and my diahrrea and cramping abated. Being a scientist, I even experimented on myself by eating whole wheat crackers and after about 2 hours was cramping up and having diarrhea for the next two days. I was on the gluten-free diet for over a month before I could see the specialist.

This guy was very cocky with me but after hearing about my symptoms, he went ahead and had the IgA and IgG tests as well as the genetic marker tests done. I warned him that I had been gluten free for at least a month, but even so, after seeing the tests - I tested positive for the genetic DQ2 marker, over 90% of celiacs carry this marker - and negative for the IgA and IgG tests, he said I was negative for celiac disease ...period. No offer for follow up tests, no recommendations for what to do next. As many people have already written on this site, I know my body and my symptoms and I know I have celiac disease. I've done a lot of reading and understand that these tests may not be definitive but I don't trust this creep and if I can hope to get a diagnosis in a reasonable amount of time, I need to see someone (in San Diego) who knows of and understands this disease. Thanks in advance to anyone who can offer information, support and/or advise!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Let me ask my therapist. She's in SD, and said she knows a well-known doctor in the area. Have you tried calling Scripps and asking there?

0

Share this post


Link to post
Share on other sites

Actually, the specialist I saw is at Scripps (La Jolla). I look forward to hearing of any names though. Thanks!

0

Share this post


Link to post
Share on other sites

I think the one she was referring to was at UCSD, but it may take a while to get an answer for you. (I don't see her again for three weeks or so.)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,038
    • Total Posts
      933,958
  • Member Statistics

    • Total Members
      64,615
    • Most Online
      3,093

    Newest Member
    LAG
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • That sounds so scary Ennis! 6ppm is not what anyone would expect to cause issues. Please keep us updated on how you are doing.
    • Sounds great, thanks ennis! 
    • Emma, please post falafel recipe! And how you eat it ! I've been searching for a good recipe for a long time. 
    • Did you have the celiac blood work panel? did they do biopsies during the endoscopy? Damage sometimes doesn't show up until they put a biopsy under a microscope. they can't just look at your insides and tell whether or not you have celiac.   
    • Don't be worried! Cutting out gluten completely is all you need to do. Many people see their doctors regularly to monitor vitamin and iron levels, and repeat some of the celiac testing to show how well they are doing. I personally had many symptoms, and it took about 2 months for them to all go away. For some it takes longer as the learning curve is steep for the diet. Gluten is hidden in many foods, and learning what it's called can take a while. So is eating out... you will have to learn what to ask when you eat out, and they make mistakes with cross contamination in restaurants a lot. You'll have to learn who to trust. but most people will recommend to eating Whole Foods and not eating out for the first 6 months to heal your body faster. Just because you only have bloating doesn't mean there isn't damage inside your body.  Oh yes, milk is something you might be intolerant to for 6 to 12 months. Your inside damage can make it so you can't digest and absorb it properly, at least the protein in milk, and it definitely can cause bloating amongst other things. Wecome to the board! There is a newbie section that can explain all this and much more. This site is like a godsend to celiac sufferers. Ps keep eating gluten! Your gi is probably going to order a test to check your upper insides, so you need to keep eating it in order to have the damage to show. You don't want to heal first then do the test. Sounds stupid I know!
  • Upcoming Events