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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Good Celiac Specialists In San Diego?
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4 posts in this topic

After suffering from chronic diarrhea, cramping and a burning sensation in my stomach over several months and several doctor visits later (in which I tested negative for all kind of tests), it was suggested that I try a gluten-free diet and at the same time see a GI specialist. After reading about celiac disease, I was floored to see that the list of symptoms not only included my current intestinal problems, but symptoms that I've suffered from for years (chronic fatigue, mouth sores at least once a month, muscle pain, bloating and gas). Within days of being on a gluten-free diet, my stomach felt better and my diahrrea and cramping abated. Being a scientist, I even experimented on myself by eating whole wheat crackers and after about 2 hours was cramping up and having diarrhea for the next two days. I was on the gluten-free diet for over a month before I could see the specialist.

This guy was very cocky with me but after hearing about my symptoms, he went ahead and had the IgA and IgG tests as well as the genetic marker tests done. I warned him that I had been gluten free for at least a month, but even so, after seeing the tests - I tested positive for the genetic DQ2 marker, over 90% of celiacs carry this marker - and negative for the IgA and IgG tests, he said I was negative for celiac disease ...period. No offer for follow up tests, no recommendations for what to do next. As many people have already written on this site, I know my body and my symptoms and I know I have celiac disease. I've done a lot of reading and understand that these tests may not be definitive but I don't trust this creep and if I can hope to get a diagnosis in a reasonable amount of time, I need to see someone (in San Diego) who knows of and understands this disease. Thanks in advance to anyone who can offer information, support and/or advise!

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Let me ask my therapist. She's in SD, and said she knows a well-known doctor in the area. Have you tried calling Scripps and asking there?

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Actually, the specialist I saw is at Scripps (La Jolla). I look forward to hearing of any names though. Thanks!

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I think the one she was referring to was at UCSD, but it may take a while to get an answer for you. (I don't see her again for three weeks or so.)

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