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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Good Celiac Specialists In San Diego?
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After suffering from chronic diarrhea, cramping and a burning sensation in my stomach over several months and several doctor visits later (in which I tested negative for all kind of tests), it was suggested that I try a gluten-free diet and at the same time see a GI specialist. After reading about celiac disease, I was floored to see that the list of symptoms not only included my current intestinal problems, but symptoms that I've suffered from for years (chronic fatigue, mouth sores at least once a month, muscle pain, bloating and gas). Within days of being on a gluten-free diet, my stomach felt better and my diahrrea and cramping abated. Being a scientist, I even experimented on myself by eating whole wheat crackers and after about 2 hours was cramping up and having diarrhea for the next two days. I was on the gluten-free diet for over a month before I could see the specialist.

This guy was very cocky with me but after hearing about my symptoms, he went ahead and had the IgA and IgG tests as well as the genetic marker tests done. I warned him that I had been gluten free for at least a month, but even so, after seeing the tests - I tested positive for the genetic DQ2 marker, over 90% of celiacs carry this marker - and negative for the IgA and IgG tests, he said I was negative for celiac disease ...period. No offer for follow up tests, no recommendations for what to do next. As many people have already written on this site, I know my body and my symptoms and I know I have celiac disease. I've done a lot of reading and understand that these tests may not be definitive but I don't trust this creep and if I can hope to get a diagnosis in a reasonable amount of time, I need to see someone (in San Diego) who knows of and understands this disease. Thanks in advance to anyone who can offer information, support and/or advise!

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Let me ask my therapist. She's in SD, and said she knows a well-known doctor in the area. Have you tried calling Scripps and asking there?

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Actually, the specialist I saw is at Scripps (La Jolla). I look forward to hearing of any names though. Thanks!

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I think the one she was referring to was at UCSD, but it may take a while to get an answer for you. (I don't see her again for three weeks or so.)

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    • I think that if you soaked in the paddle in vinegar and scrubbed it a few times, you will be fine.  But if in doubt, just set the mixer aside for a while until your family's health has improved.  In the meantime, use your arm to mix dough!  My grandma never had a mixer!   I bought a bunch of new stuff because I had been married for 25 years when diagnosed.  It was time for new things!   Everyone is different in their response to gluten.  Science has given us a good estimate, but we know that nothing is "one size fits all".  You just have to figure out what is best for you and your family.   My anemia resolved within months of being gluten free (ferritin levels).  I still have Thalassemia, but it is mild and my body has adapted.  It is most likely the one reason that I never made the Olympic team!  😆 BTW, family and friends are not allowed to bring in gluten into our house with the exception of beer.  They can contribute to a potluck by bringing beverages, uncut fruit and veggies, new condiments, tableware, and ice cream ......etc.
    • Thank you so much. It's so nice to have such friendly and helpful people to talk to while I await my answers.  I had an interesting experience yesterday... I ate a bowl of Kraft mac n cheese... then passed out for 4 hours and woke up vomiting. I've had a lot of experiences like that after eating over the past 2 years, but I never put those pieces together because celiac disease was totally off my radar. Just found it very interesting.  I've been pushing down lots of gluten-y foods just to make sure my tests will come out right. So tired of waiting! Really, if this isn't the answer to my 40 lb mysterious weight loss, fatigue, and painful gas/bloating... then what's left? Cancer doesn't seem likely in a 33 year old, but I am really scared.  Thanks for helping me through this. Anyone who stumbles accross this place is lucky to find such supportive and kind, helpful people!
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