• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
kerri124

Enterolab Testing

Rate this topic

Recommended Posts

I've been gluten-free for over 3 months now. The only testing I had was blood tests that proved Celiac. I've never done the biopsy. Now I've heard that the blood tests may not be the most reliable way to detect Celiac and that Enterolab is better. My question is: Is it possible to get accurate results using Enterlob even though I've been gluten-free for 3 months already? I REALLY don't want to go back on gluten just for a test. Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yes, you can do the testing at Enterolab while you are gluten-free. They recommend you stay on whatever diet you are currently on. They do NOT want you to go back on gluten for testing. You can e-mail Dr. Fine and ask him which test(s) he would recommend, since you have been gluten-free for three months, and on the questionaire that you fill out when you send the test kit back it will ask you if you have been on a gluten-free diet and for how long.

I did go back on gluten for testing and it was awful. I was on gluten for two months and my biopsy was still negative! I was sicker than I had ever been and would not recommend it to anyone. It took me months to heal from the damage and I had trouble digesting anything for at least a month and then only digestive enzymes helped. I am very thankful for Enterolab.

God bless,

Mariann

Share this post


Link to post
Share on other sites

My anti-endomysial antibody and transglutaminase blood tests were negative but I tested strong positive for gliadin antibodies. My Enterolab results are:

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 38 Units (Normal Range <10 Units)

Stool Test for Autoimmune Reaction to Tissue Transglutaminase

Fecal Antitissue Transglutaminase IgA 33 Units (Normal Range <10

Units)

Stool Test for Small Intestinal Malabsorption

Microscopic Fecal Fat Score: 287 Units (Normal Range < 300

Units)

I guess I'm curious what other peoples' results have been but if I am to trust the Enterolab results I should be on a gluten-free diet. My GI doc, however, doesn't want me to go gluten-free until they get the endoscopic biopsies but I have to wait until she gets back from vacation in three weeks. How have other people tested?

TIA,

Jason

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,911
    • Total Posts
      943,455
  • Member Statistics

    • Total Members
      67,049
    • Most Online
      3,093

    Newest Member
    lsmh5173
    Joined
  • Popular Now

  • Topics

  • Posts

    • Update: I have tried calling the company several times and have emailed twice. I have yet to talk to a person on the phone and no one has emailed me back.    I did a little research and they were are already involved with a class action lawsuit about being labeled as salt free and one of the first ingredients is sodium chloride.  I am done with this shampoo because this whole company seems a little shady now! 
    • I've actually been glutened by shampoo with hydrolyzed wheat protein, and I wasn't even the one using it. It was my husbands! I swear I don't go around eating my husbands hair.  I am pretty sensitive though, so it's entirely believable that the trace amounts in his hair were getting onto his and my hands and then making its way to my mouth, etc. etc.  It was a slow and steady low grade glutening that eventually built up to something that I was able to recognize as more definitively "a glutening". Once we ditched the shampoo and I recovered, I realized that I'd been feeling it for weeks.  It's going to depend on your level of sensitivity, but even if you don't feel it, it could still be doing damage. Also... I second that. Starch is a carbohydrate, protein is a protein (obviously), there is no simple process that would convert one into the other. Also, as gluten is a protein, converting starch to protein wouldn't be expected to do anything to gluten ANYWAY.  Speaking as a biologist here. I call poppycock. 
    • I just want you to remind you that I just had a repeat endoscopy last week after my diagnosis some five years ago.   Even though my antibodies are still elevated, my intestinal tract has healed.  But why have I been feeling sick?  I have chronic gastritis.  Who would have guessed?   I do not drink (rarely), take any meds other than my thyroid replacement, and do not have H. Pylori.  That leave autoimmune as the most likely culprit.  I also have some other minor issues that I think is related to Hashimoto’s.  So, I am in an autoimmune flare-up, but celiac disease is not the cause of current my woes. My endoscopy results have validated that I have been doing a good job about avoiding gluten.  I can relax a bit now!   I think because the treatment for celiac disease is a burden placed on us, it can become overwhelming.  Sure, we all eventually master the diet and most of us go on to lead plain old normal lives, but if something is off, celiac disease is the first thing that many of us blame.  Actually, we blame ourselves, to be honest.  We have to remember that we are often dealing with other health issues too.   As far as hair, I buy gluten free shampoo.  It is from Costco and it says it right on the label.  Nice and inexpensive.   Do I really need it to be gluten free?  No.  I think the last time I swallowed shampoo, my mother was most likely bathing me and I did not heed her warning to keep my mouth shut (baby shampoo may not sting your eyes but it tastes awful!).   Like you, sometimes I think it helps to have one less thing to think about and that can be priceless.           
    • https://www.twinings.co.uk/hot-chocolate-coffee-other-drinks/hot-chocolate-and-malt-drinks/twinings-swiss-chocolate-drink Have discovered this drink - it's great, labelled gluten free and is also fortified.   I can't drink too much milk as I get bloated, but find it tastes really nice even made mostly with hot water and just a small amount of milk.  Thank you Twinings.
    • Ennis_TX, thank you for your response! I will take heed of all your nutritional pieces of advice, one by one. And yes, I am aware that a gluten marathon is on the horizon soon.   Before doing the test, however, I shall try to fortify my diet with the nutrients you mentioned, and report back in a week or two.   I think adding some iron supplement is wise too.    
  • Upcoming Events