• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Watch What You Say
0

13 posts in this topic

Many on this board, including me, have expressed that we would never want most of our freinds and family to come on this site and read our posts, as they may not be so nice at times and could hurt the feeling of those we care for. Well something interesting just happened when I was searching online for gluten-free places to eat for an upcoming trip. My own post from here appeared about that town/visit. Now I had not said anything that would offend anyone but that is not always the case of course.

For instance, if one of your family members decdided to locate a place for you to eat while visiting with them, they could end up reading a post about how worried you are or that you're dreading the trip. Just thought I'd share what happened to me because I really was taken aback when I got a match that was a post of mine from this site. It's like we think we're just sharing with each other but of course we are sharing with the world.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:
Many on this board, including me, have expressed that we would never want most of our freinds and family to come on this site and read our posts, as they may not be so nice at times and could hurt the feeling of those we care for. Well something interesting just happened when I was searching online for gluten-free places to eat for an upcoming trip. My own post from here appeared about that town/visit. Now I had not said anything that would offend anyone but that is not always the case of course.

For instance, if one of your family members decdided to locate a place for you to eat while visiting with them, they could end up reading a post about how worried you are or that you're dreading the trip. Just thought I'd share what happened to me because I really was taken aback when I got a match that was a post of mine from this site. It's like we think we're just sharing with each other but of course we are sharing with the world.

Excellent point. I've always thought of the Internet as a completely public space. My kids were annoyed for years because I would not get a computer, then would not get on the internet. (We don't have television either) It's good to be reminded.

lisa

0

Share this post


Link to post
Share on other sites

Yep. While some blogs have privacy filters, or at least filters that allow posts to not be indexed by search engines, this isn't a blog, and this doesn't have such a filter. It's always best to imagine that you're saying whatever you're saying to everyone you know now, and could meet in the future. It gives an interesting perspective on self-censorhip, I've learned the hard way.

0

Share this post


Link to post
Share on other sites

try googling your name, your friends names and your family members names

you'll be amazed at what you find!

0

Share this post


Link to post
Share on other sites

Except that I have a very common name and there are thousands with it!!! Sometimes it's an advantage, usually it's a problem, like when trying to buy a house and suddenly my credit shows I owe thousands to someone ...

0

Share this post


Link to post
Share on other sites
Ads by Google:


That's a really good point. Anyone could read what we say here if they wanted and most of us have pictures so it's easy to tell who it is!

0

Share this post


Link to post
Share on other sites

I actually found this board by doing a search for gluten-free bread.

Thank goodness I did, because I don't know what I'd do without this board.

0

Share this post


Link to post
Share on other sites

I just googled my name and my hubby's and it turns out that he is deceased lead singer of Nirvana who just happens to have a cousin with my first name. Weird!!!!

0

Share this post


Link to post
Share on other sites

Thanks for the reminder... Now if only I could get a member of my family to actually do some researching on the subject!

Errrr... Becky, if you read this, I didn't mean you. :)

0

Share this post


Link to post
Share on other sites

My mom has celiac and reads this site regularly, so that keeps me accountable. :D In fact, she is able to go to my user and read all of my posts! It makes me think about what I type a little more since I know I'm not totally anonymous!

Lisa

0

Share this post


Link to post
Share on other sites

Oh, that's very true Tiffany! I had someone from my local Celiac group e-mail me that she found a post I wrote on a doctor....she was researching him. Another woman I didn't know found something I had written about a specific medication and e-mailed me b/c she just moved to my town. We had lunch together :) The internet makes it a "small world." I try to be consistent in character here online as I am in person so that I don't have to be worried about anything I write.

0

Share this post


Link to post
Share on other sites

I googled my first name and it took me to the page that had all the information about me. Now I am thinking I should change my sign on name for here. The problem is my name is so unusual. Any ideas?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,136
    • Total Posts
      929,119
  • Member Statistics

    • Total Members
      63,553
    • Most Online
      3,093

    Newest Member
    LadySprout
    Joined
  • Popular Now

  • Topics

  • Posts

    • Universal testing should start in all schools as early as possible.  I was diagnosed  in 7th grade from a basic sports examination by a Dr.   My Father basically turned a blind eye and said nothing wrong with my son.  A basic examination by a Doctor or good Nurse can see the signs of Gluten allergies. Just need the direction to do so. 
    • Thank you all so much.  It's so great to know there are people out there that have shared my experience. I was feeling quite alone in this. I could never believe that I just had anxiety, and that was that. There has to be a reason for my body to act this way. I feel validated,and hopeful and that's a huge thing for me. I'm going to see my doctor next week, and see what she thinks. I'm hopeful that with all my symptoms (anxiety, skin rashes for months, sensitivity to light|sound, headaches, vertigo, temper) she won't shrug me off. My mom has Crohn's disease so maybe a connection. Thanks again for your advice and your ear, it truly helps.
    • I do buy Plantar's nuts too.so if you are looking for peanuts, cashews, etc
    • I have bought nuts from other suppliers like these black walnuts that only process their nuts (no fancy flavorings...just these black walnuts): https://black-walnuts.com/ You do need to confirm that nuts are not processed on equipment shared with wheat if they are not certified gluten-free or in a shell by calling.  So, mostly, being lazy, I just order from Nuts.com.  
    • We were diagnosed with Diabetes first, but I think she already had celiac prior.   Our doctor told us that she has celiac only 3 months after diabetes.   Her TTG was off the chart high.   Our endo offered to formally diagnose her with celiac without the endoscopy, but I refused to believe she had celiac.   She had no symptoms.   An endoscopy confirmed it.   We went gluten free.  She still is a silent celiac.   We would never know about her celiac if it weren't for her type 1 diabetes.   They did all sorts of blood test on her.   I think her ttg was already off the chart high when she was first diagnosed with diabetes, but since the diabetes is so overwhelming at first, they simply waited 3 months before telling us about the celiac too.  I think this was a kind thing to do. Looking back, she did have a symptom, she stopped growing for a little over a year!   My daughter was always tall for her age, she was a huge toddler, 90th percentile.   One of the tallest kids in her class, then suddenly, I noticed that she became the shortest among all her friends.   At the time of her diagnosis, she was 10 years old, and was only 25th percentile in height.   She is 13 now, and is growing and gaining height.   She is about 5' 2" now.  So while she does not get sick with gluten, we take her gluten free diet very seriously.   Our TTG has been dropping continuously over the 3 years, and it is getting VERY close to be under normal range.   Just on the border, but not quite there...yet.
  • Upcoming Events