This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
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I am going through the diagnosis stage as well. My family has strong history for celiac disease, and while I always had discomfort and other symptoms ( some of which i didnt know about) I wasn't tested until recently because I was DEATHLY afraid of needles. The results are highly positive but I am still getting a biopsy in early August. From what I have learned about it is that the endoscopy is beneficial to looking for not only signs of celiac but also other diseases that have similar symptoms to celiac. Because of your mixed result it wouldn't hurt to get a biopsy but it really is personal preference. I understand what you are going through and didn't like the idea much either but I really think it is something that can help you in the long run.
P.S. There are lots of testing being done for new medications or other ways to "cure" celiac other than a gluten-free diet. It is my understanding that this can only be covered by insurance with a confirmed diagnosis (biopsy) but I don't need to get into that. The bottom line is that a biopsy is confirmatory especially since the doctors could see in the intestine, so to me, I feel better knowing that there's no chance of going gluten-free for nothing.
Hi Everyone! Thank you for all your responses! This site is so helpful and I appreciate everyone who replied to my post. I was able to get an earlier appt with Maureen Leonard who was absolutely wonderful like you all said and after more testing and even a genetics test, my son now has a diagnosis of celiac disease. He's been gluten free now for a few weeks. He is doing very well on the diet so far. He does seem to be sleeping better which was always a problem since he was an infant, so that is a good sign! We test in 3 months and I hope that his iron levels go up.
Are you substituting something for the PPI? I'm not sure what meds will mix well with it, but you could ask the pharmacy or Dr. for advice on what might work. I'm thinking you stopped something that may be helping in some ways, and are now allowing your symptoms to return. If so, it makes sense to find something else to help with symptom control.
I don't know what products you have there. We have Tums (calcium carbonate), Gaviscon (aluminum hydroxide with magnesium carbonate), Pepto and Kaopectate (same product), and Gas-X (simethicone). I believe all of these can be taken with PPIs, but do check. I don't know that Pepcid (Famotidine) can be mixed, but you could check that, too. The Gas X really helps with the bloating and odd pains, as it breaks up the gas. The Tums seems to help neutralize the acid and upset stomach / stomach pain. These two are my mainstays. You may have other products that could be as effective.
Have you tried mixing bone broth with cornstarch or gluten-free flour to make a gravy? Mix in some ground beef, chicken, or turkey, add some gentle veggies (carrots, or maybe a can of Chinese veggies?), a little bit of gentle spices for taste, and then put over gluten-free pasta or white rice.
Make a chicken sandwich with gluten-free bread.
Can you tolerate mayo? Put a sprinkle of salt, pepper, and lemon juice on salmon, then coat with mayo and microwave.
Or mix some mayo with chicken or tuna for a chicken salad / tuna salad sandwich; or eat just a scoop of it.
If you can tolerate dairy, Schar's newest version of table crackers are like saltines and are tasty. If no dairy, try their breadsticks. You could have either with soup or bone broth. Schar's has enough fat to give you calories to help stave off weight loss, and you can add more by brushing a little butter on the crackers.
You could try other casseroles with tuna or some lean ground hamburger.
Have you also looked at a possible new food intolerance? I suffered for a few weeks before I figured out it was dairy for me. Eliminating dairy wasn't enough. I had to get rid of anything that might upset my stomach in order to start getting better. I printed lists of low FODMAP, low acid foods, and low lectin foods, then selected only those foods that were on all 3 lists. You might consider doing this with food lists that are right for you.
Hope this might spark some ideas!
I have a friend with MS, another with breast cancer and a third with RA. At the same age my only problem is I cannot eat gluten! So when I start getting frustrated about food I think about that and how lucky I truly am. Once you get in the swing of it it gets easier and then you start to feel better which makes it all worth it.
Also when I first went gluten-free I read on this group about Mark's daily Apple and the Paleo community. I turned to that which was extremely motivating. I've never seen so many people so excited about not eating gluten. It was a very positive energy and motivated me to find other foods to eat. Also, they love bacon!