Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Dr. Suggests Ingesting Gluten Prior To Biopsy

mcalister14

Recommended Posts

mcalister14 Rookie
mcalister14
Posted

My husband was dx through a blood test with celiac about 1 month ago. We completely changed our diet and got rid of all gluten ( as much as humanly possible). Today he had his first appointment with the GI Dr. He says 3 out the 4 blood panels were negative and 1 very positive and suggests a biopsy. This will be done at the end of the month. He wants my husband to begin eating a regular diet with gluten until then. I am scared to death about this. :o He is already so sick. I just wanted to ask if this is normal procedure. I have read that it takes months for damage to begin healing and I was confused at how eating gluten for 1 or 2 weeks more will make a difference for the biopsy.

Also, should my husband do the Enterolab? I'm not really sure what it is but i've read about it on this site. And is it necessary to be tested for caesin (sp?) antibodies?

Thank you for any advise. We are just very confused. And to add to this my husband doesn't think his doctor is very experienced in this area.

Stacy :rolleyes:

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted

His doctor probably is not very experienced in this area, most aren't. Even in the GI field.

If your husband has been gluten free for a month, it might take longer than a month back on gluten to show damage in his intestines. The lining of the intestines heals rather quickly for most people, even though the symptoms may last longer, since most are related to nutritional deficiencies. It is suggested by Dr. Peter Green (one of the top Celiac doctors in the US) in an article here at Celiac.com

( https://www.celiac.com/st_prod.html?p_prodi...-41104189220.0e ) that a person go back on gluten for 3-6 months in preparation for a biopsy. For some people this is not possible, since they just get too darn sick! You need to figure out if the biopsy is necessary in your husbands case. Discuss it with his doctor and bring in some information with you for the doctor so he can see where you are getting your information.

Enterolab is an option that is available to you, and your husband would not need to go back on gluten for the testing, but the results may not be accepted by the doctor. They are still relatively new tests and have not been accepted into the mainstream medical field yet. But you can learn more about the tests at: Open Original Shared Link

God bless,

Mariann

Link to comment
Share on other sites
mcalister14 Rookie
mcalister14
  • Author
Posted

Thank you for leading me to that article. I understand it more now. This is all so new and crazy still! :blink:

Stacy

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,987
    • Most Online (within 30 mins)
      7,748
    happydays
    Newest Member
    happydays
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Waiting for urgent referral.

      By trents · Posted

      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...